Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastroscopy Done - Biopsies Taken - Gastric Ulcers Found

toomuchagony

Recommended Posts

toomuchagony Apprentice
toomuchagony
Posted

Hi Folks

So okay, figured I was due to give ya an update on my progress here... and I have a question on what was found during my gastroscopy.

Firstly, I'm doing really good ever since Thurs. April 17th (I marked it on my calendar as the difference from the day prior was miraculous, and I knew I had finally turned the corner towards HEALING at last :D I awoke that morning without what has been my "usual GAS" for the past 4 months, and thru the day it was reduced so that I did NOT have to eat my typical daily "30 Rolaids PLUS 1 zantac 75, and 3 peppermint caps & 3 Phayzme simethicone caps" , and only needed to take the zantac & Phayzyme and about 10 Rolaids that day. AND my D stopped completely and has NOT returned now for a week! So in general I'm thinking that I have actually finally succeeded in ridding my environment of hidden :ph34r: gluten and am actually (at least til my next CC :unsure: honestly GLUTEN-FREE here!

Meanwhile in the "medical dept"... things are slow going due to our crappy health care sysytem in BC, I have had to do a lot of "waiting" through this diagnostic testing process which has made me slightly more cynical of the medical system and it's delivery, BUT none the less, I did have my bloodwork tests done, in March they were "Negative, Iga 2 <20", however I was gluten free for 4 days prior to testing so who knows eh. I also had a "Breath Test for Helicobactor Pylori" which was a negative result at same time. Now I've finally gotten a Gastroscopy done as well on Tuesday, a'course now I have to WAIT another 3 weeks to actually learn the full results of biopsies that were taken, though I did learn (not from Dr but by asking a nurse myself what was found out before leaving!) I do have "Gastric (stomach) Ulcers", which he also took biopsies from and apparently is checking those for both the H. Pylori Bacteria Infection (which my "Breath Test" in March was negative for :blink: and Stomach Cancer as being the "cause" of the gastric ulcers. From my own perspective today, I just can't imagine I would be feeling so much better every day if in fact I was currently dying of Stomach Cancer eh (prognosis & speed not good) so I really doubt that is a cause. Perhaps the bacteria breath test was a false negative, that I'd maybe go for.

So anyhoo, now this has me wondering here... Is it possible my digestive system being so compromised by Celiac for months AND my life being extremely STRESSFUL during the same period of time would or could have contributed to either, "causing ulcers" OR "permitting H. Pylori to overproduce" and cause ulcers. I'm myself not at all convinced that "Gastric Ulcers" were the "entire problem" or the cause of my 4 month long bout of D. Typically from what I've read on them one tends to "vomit" (and I have not and do not have that symptom at all), and no where did I read that D was a usual symptom of ulcers. In the case of H. Pylori Infection certainly that can/does cause D as a symptom as well, BUT then I have to ask eh... "would an H. Pylori infection react POSITIVELY from the gluten-free diet"??? It would seem obvious that my having gastric ulcers would certainly exaserbate my "intestinal healing" if I am suffering prior or already from celiac damage. BUT from view in side of this poor old body, truly the one thing that made a difference to my being sick, consistently and progressively day by day, was/is "NOT eating gluten"! So I sure would appreciate hearing folks thoughts on all this.

AND also btw... one other important (to me) thing... for da past 20 or more years I've had a "itchy rash" which is on my feet, it flares and abates, it has always been diagnosed as "exzema/dermatitis" etc and I have been prescribed "creams" which do nothing at all to either relieve or cure my rash, it does as it does. Well gee go figure huh... since I have become gluten-free - my rash is at least 80% HEALED a first for decades! So hmmm eh, I have a feeling it is a mild form of HD that is on my feet... my Dr says no.

Anyhoo... love to hear what ya'll thinks eh :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nora-n Rookie
nora-n
Posted

The rash could be DH, of course.

I think I have read on the forums that one can have ulcers from gluten.

nora

toomuchagony Apprentice
toomuchagony
Posted
  • Author
The rash could be DH, of course.

I think I have read on the forums that one can have ulcers from gluten.

nora

Hi nora... thanks for yer reply :D

(and thanks fer not giving me a well deserved chibe for transposing the acronym "DH" in my post eh ;)

All I know fer sure about my poor feet is they're remarkably better since I stopped gluten. Guess it could be "coincidence" (though I don't believe in them personally I believe in God), however the fact is that apart from my departure from gluten I have done absolutely NOTHING to "treat" my foot rash, and yet it is "changing". Also, this improvement began to occur nearly immediately after I began gluten free efforts, (though I was a few weeks at least still likely having major CC issues so it was slow then) it definetly however had a distinctly noticeable "raging flare up" in a direct and immediate response to the one particularly bad instance of me glutening myself by licking an envelope. It raged bad a week & half, now today (I think :rolleyes: gluten free) they are once again demonstrating a significant "healing" and importantly (for me) are NOT ITCHING at all... so DH or no, my feet seem to like my current diet eh! :D

Regards my query about the "gastric ulcers" and Celiac... I went to the "online medical encyclopedia" at the "College Of Family Physicians Of Canada" website today and used it to research gastric ulcers, and I noted two things from doing so... firstly, once again there is NO mention what so ever of "D" being one of the "symptoms" of gastric or peptic ulcers, and I most certainly had D occuring spuratically in January and then DAILY ongoing non-stop D from Feb 11 (my birthday wouldn't ya know eh <_< right through until just this past Thursday, April 17th, so a "run" (no pun intended huh) of 66 full days straight. Also, I think notably, one of the chief symptoms of gastric type ulcers is "vomiting", I have never once through all of this done so. My primary symptoms all along have been SEVERE weight loss / GAS / Bloating / CRAMPS / Back Ache / Brain Fog / and D!D!D!D! And ALL of which now since da 17th (prior to my gastric ulcer even being found on my Apr 22nd GI scope) (and a'course since I went gluten free) are absolutely and significantly improved, and in the case of my D it has abated for a whole week now! :o

The second thing I noted at that website I will quote to ya here directly from the page:

"For some people, physical stress (such as being sick for a long time) may help cause ulcers."

So it seems to me that fairly answers my question of whether or not my "Celiac sickness" & "Stress" may be a "cause" of my gastric ulcers. :D Anyhoo... shall have to see what the results are in 3 wks to know more from biopsies. Naturally I'll post an update to this thread when I get them.

ptkds Community Regular
ptkds
Posted

When my youngest dd was 14 months old, she had stomach ulcers. She also tested negative for the H. pylori bacteria. Her gastro told me it was probably from Celiac disease and to remove gluten. We did, and she has done great since! So, I do believe that gluten can cause ulcers in a Celiac, because a 14 month old baby can't be stressed enough to cause ulcers.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,556
    • Most Online (within 30 mins)
      7,748
    Rachel Wilson
    Newest Member
    Rachel Wilson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.