Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hahaha! I Just Did It Again!

mysecretcurse

Recommended Posts

mysecretcurse Contributor
mysecretcurse
Posted

It's almost funny.

I can't believe myself.

I went and did all my shopping at my favorite organic vegetarian grocery store. They have a HUGE gluten free selection there, I love it. Its even bigger than whole foods. You can get almost everything gluten free there. Well I got a lot of stuff and picked up these flax/hemp protien and nut bars..that were IN the gluten free section and said "Wheat Free!" on the box.

I'm so stupid. Why wasn't I more careful.

I chow one down then a while later feel sort of sick and actually LOOK at the label.

OATS. #&^#&*#(&*#*(&#* oats!

Oats are not ok for me. I get so sick from them, pretty much just as sick as wheat.

I've heard so many times people saying on this forum that be careful wheat free doesn't mean gluten free, and there I go, NOT checking. Those things were not cheap either.

I'm really annoyed. To me, putting "Wheat free!" (yay) on the box is pointless because most people who need

to be wheat free need to be GLUTEN free. It's like false hope. I mean it's my fault because I didn't check closer, but still..having them there in the gluten free section really makes me mad. Maybe I should mention it to the manager next time I'm there, but I don't want to look stupid lol.

Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

Ok I'll stop complaining now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

((((((((((Hugs)))))))))

Don't beat yourself up over it, your body is going to do that for you.

I hope your reaction isn't too bad and that it passes soon.

ShayFL Enthusiast
ShayFL
Posted

I even read EVERYTHING if it says "gluten free". Ive been burned twice. "Gluten Free" on the front in big letters, but in small print on the back "processed in a facility that also processes wheat".

Hope you feel better soon.

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
I even read EVERYTHING if it says "gluten free". Ive been burned twice. "Gluten Free" on the front in big letters, but in small print on the back "processed in a facility that also processes wheat".

Hope you feel better soon.

Thanks. I usually do too! I think the fact that it was just there in the gluten free section with all the other things (that was the ONE thing I didn't look too closely at, all the others were fine) that threw me.

Hopefully you won't see these posts from me anymore for awhile because I'm going into super careful red alert mode.

Phyllis28 Apprentice
Phyllis28
Posted

I found "Wheat Crackers" in the gluten free section at WholeFoods. The only ingredient was wheat. The box is very similar to the "Rice Crackers" that the same company makes, which are gluten free. The store employees who stock the shelves do not , nor would I expect them to have, very much knowledge about a gluten free diet. I read all labels, even when the product is marked gluten free.

Hope you feel better soon.

babysteps Contributor
babysteps
Posted

Feel free to mention to your store that "wheat free" doesn't mean "gluten free" - they sound like they might listen :)

Yah, I read every label too, ever since I got sick from unsalted butter that had "natural flavors" as an ingredient - who knew butter had 'ingredients' like that?!?

Hope you feel better soon.

Juliebove Rising Star
Juliebove
Posted

I have learned the hard way I have to read every label, every time. I've forgotten a few times and now my daughter reminds me. She has more allergies than I do.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Welda Johnson Newbie
Welda Johnson
Posted

I hope you quickly feel better. I think this has happened to most of us. I sometimes get in a hurry, even after spending years and years checking every label and ingredient, and somehow something will just get past me. It is my reminder to slow down and take better care of myself, so that is a good thing. I wanted to comment on your intolerance of oats, because I have some of the same intolerances as you do. Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal. I also cannot handle oatmeal, so maybe that is one of our jobs--to tell people to be careful of eating oats, as well as checking all labels. Best of luck to you on your new pathway! Welda

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
Feel free to mention to your store that "wheat free" doesn't mean "gluten free" - they sound like they might listen :)

Yah, I read every label too, ever since I got sick from unsalted butter that had "natural flavors" as an ingredient - who knew butter had 'ingredients' like that?!?

Hope you feel better soon.

Ha. Funny you say that, I was just thinking earlier how stupid it is that ANY butter would have gluten in it. I use challenge butter now. It's gluten free and pretty good quality.

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
I hope you quickly feel better. I think this has happened to most of us. I sometimes get in a hurry, even after spending years and years checking every label and ingredient, and somehow something will just get past me. It is my reminder to slow down and take better care of myself, so that is a good thing. I wanted to comment on your intolerance of oats, because I have some of the same intolerances as you do. Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal. I also cannot handle oatmeal, so maybe that is one of our jobs--to tell people to be careful of eating oats, as well as checking all labels. Best of luck to you on your new pathway! Welda

Oprah is going gluten free???

:D:)

Thats awesome. I really like Oprah. She is sort of ahead of the curve as a human being, I like everything she does and most of what she has to say, especially how she seems to think outside the box in the areas of spirituality and medicine. Cool! I missed this episode, I don't get home from work til 5 now and always miss her show.

And you are right, we do need to spread the word about oats. Whether or not some may be able to "tolerate" them I don't think they are good for any celiacs or even sensitives in the first six months or so at least. If you are going to go gluten free, might as well do it 100% so its not an effort wasted.

Aleshia Contributor
Aleshia
Posted
Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

can you explain the cysts thing? I have lots of cysts on my head... but by cyst do you mean things that go away? or like bumps that stay and get bigger???

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
can you explain the cysts thing? I have lots of cysts on my head... but by cyst do you mean things that go away? or like bumps that stay and get bigger???

By cysts I mean cystic acne.

I have been suffering from horrible acne for years, turns out it was being caused by gluten. I don't even think

its really acne maybe some weird form of DH or another skin thing. They are big, dark red sometimes even purplish red lesions which are very painful and itchy and take forever to go away.

ShayFL Enthusiast
ShayFL
Posted

Would be nice to be like Oprah...decide to go gluten-free and your nutritionist makes a plan and the chefs that travel with you do all the research and prepare all of your meals/snacks/drinks. All you do is consume....dang I want that!!

I have cysts on my head. :(

FoxersArtist Contributor
FoxersArtist
Posted

HaHaHa!

I just did this also. I felt quite cross with the company who made a delicious looking oreo cookie claiming to be "wheat free." I never actually ate one but when I went to get the box out of the cupboard to try one, a little lightbulb went off in my brain saying "wheat free? Now, what exactly does that mean? Shouldn't it say 'gluten free?'" Indeed, it was not gluten free. It had barley in it. Bummer. They are still sitting in my cupboard, making me angry every time I open it. I really need to give them away to someone else...LOL.

-Anna

It's almost funny.

I can't believe myself.

I went and did all my shopping at my favorite organic vegetarian grocery store. They have a HUGE gluten free selection there, I love it. Its even bigger than whole foods. You can get almost everything gluten free there. Well I got a lot of stuff and picked up these flax/hemp protien and nut bars..that were IN the gluten free section and said "Wheat Free!" on the box.

I'm so stupid. Why wasn't I more careful.

I chow one down then a while later feel sort of sick and actually LOOK at the label.

OATS. #&^#&*#(&*#*(&#* oats!

Oats are not ok for me. I get so sick from them, pretty much just as sick as wheat.

I've heard so many times people saying on this forum that be careful wheat free doesn't mean gluten free, and there I go, NOT checking. Those things were not cheap either.

I'm really annoyed. To me, putting "Wheat free!" (yay) on the box is pointless because most people who need

to be wheat free need to be GLUTEN free. It's like false hope. I mean it's my fault because I didn't check closer, but still..having them there in the gluten free section really makes me mad. Maybe I should mention it to the manager next time I'm there, but I don't want to look stupid lol.

Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

Ok I'll stop complaining now.

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
Would be nice to be like Oprah...decide to go gluten-free and your nutritionist makes a plan and the chefs that travel with you do all the research and prepare all of your meals/snacks/drinks. All you do is consume....dang I want that!!

I have cysts on my head. :(

I was thinking that earlier too...and wondering why the hell someone doesn't tell her that oats are not gluten free? You would think all her "people" would be well read on what is and what isn't acceptable in a gluten free diet.

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
HaHaHa!

I just did this also. I felt quite cross with the company who made a delicious looking oreo cookie claiming to be "wheat free." I never actually ate one but when I went to get the box out of the cupboard to try one, a little lightbulb went off in my brain saying "wheat free? Now, what exactly does that mean? Shouldn't it say 'gluten free?'" Indeed, it was not gluten free. It had barley in it. Bummer. They are still sitting in my cupboard, making me angry every time I open it. I really need to give them away to someone else...LOL.

-Anna

LOL! You have no idea how much stuff I keep giving my mom. I go over for a visit with a big bag of this or that and she is just like "again?" haha. Damn its hard.

myst Newbie
myst
Posted
I was thinking that earlier too...and wondering why the hell someone doesn't tell her that oats are not gluten free? You would think all her "people" would be well read on what is and what isn't acceptable in a gluten free diet.

If she's eating the recipes the chef is preparing, she's not even close to gluten free.

Open Original Shared Link

Oprah has decided to give it a try! The plan is to eliminate caffeine, sugar, alcohol, gluten and animal products from your diet for up to 21 days.

The tempeh scallopini and the tempeh creole both have spelt flour. :o I have to wonder about some of the other recipes as well. <_<

myst

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
If she's eating the recipes the chef is preparing, she's not even close to gluten free.

Open Original Shared Link

The tempeh scallopini and the tempeh creole both have spelt flour. :o I have to wonder about some of the other recipes as well. <_<

myst

*sigh* We should all write her.

tom Contributor
tom
Posted
. .

Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal.

I didn't see the show, but her Recipes page has the poll question "Do you think you could give up animal products, caffeine, alcohol, bread and sugar for 21 days?"

It doesn't appear to me she's trying to be gluten-free at all.

mysecretcurse Contributor
mysecretcurse
Posted
  • Author
I didn't see the show, but her Recipes page has the poll question "Do you think you could give up animal products, caffeine, alcohol, bread and sugar for 21 days?"

It doesn't appear to me she's trying to be gluten-free at all.

Maybe she is doing that no flour no sugar type diet, meaning actual flour stuff like noodles, but not caring about the gluten itself in other things.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    3. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    5. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,469
    • Most Online (within 30 mins)
      7,748
    Jcarder
    Newest Member
    Jcarder
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.