Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hahaha! I Just Did It Again!


mysecretcurse

Recommended Posts

mysecretcurse Contributor

It's almost funny.

I can't believe myself.

I went and did all my shopping at my favorite organic vegetarian grocery store. They have a HUGE gluten free selection there, I love it. Its even bigger than whole foods. You can get almost everything gluten free there. Well I got a lot of stuff and picked up these flax/hemp protien and nut bars..that were IN the gluten free section and said "Wheat Free!" on the box.

I'm so stupid. Why wasn't I more careful.

I chow one down then a while later feel sort of sick and actually LOOK at the label.

OATS. #&^#&*#(&*#*(&#* oats!

Oats are not ok for me. I get so sick from them, pretty much just as sick as wheat.

I've heard so many times people saying on this forum that be careful wheat free doesn't mean gluten free, and there I go, NOT checking. Those things were not cheap either.

I'm really annoyed. To me, putting "Wheat free!" (yay) on the box is pointless because most people who need

to be wheat free need to be GLUTEN free. It's like false hope. I mean it's my fault because I didn't check closer, but still..having them there in the gluten free section really makes me mad. Maybe I should mention it to the manager next time I'm there, but I don't want to look stupid lol.

Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

Ok I'll stop complaining now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

((((((((((Hugs)))))))))

Don't beat yourself up over it, your body is going to do that for you.

I hope your reaction isn't too bad and that it passes soon.

ShayFL Enthusiast

I even read EVERYTHING if it says "gluten free". Ive been burned twice. "Gluten Free" on the front in big letters, but in small print on the back "processed in a facility that also processes wheat".

Hope you feel better soon.

mysecretcurse Contributor
I even read EVERYTHING if it says "gluten free". Ive been burned twice. "Gluten Free" on the front in big letters, but in small print on the back "processed in a facility that also processes wheat".

Hope you feel better soon.

Thanks. I usually do too! I think the fact that it was just there in the gluten free section with all the other things (that was the ONE thing I didn't look too closely at, all the others were fine) that threw me.

Hopefully you won't see these posts from me anymore for awhile because I'm going into super careful red alert mode.

Phyllis28 Apprentice

I found "Wheat Crackers" in the gluten free section at WholeFoods. The only ingredient was wheat. The box is very similar to the "Rice Crackers" that the same company makes, which are gluten free. The store employees who stock the shelves do not , nor would I expect them to have, very much knowledge about a gluten free diet. I read all labels, even when the product is marked gluten free.

Hope you feel better soon.

babysteps Contributor

Feel free to mention to your store that "wheat free" doesn't mean "gluten free" - they sound like they might listen :)

Yah, I read every label too, ever since I got sick from unsalted butter that had "natural flavors" as an ingredient - who knew butter had 'ingredients' like that?!?

Hope you feel better soon.

Juliebove Rising Star

I have learned the hard way I have to read every label, every time. I've forgotten a few times and now my daughter reminds me. She has more allergies than I do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Welda Johnson Newbie

I hope you quickly feel better. I think this has happened to most of us. I sometimes get in a hurry, even after spending years and years checking every label and ingredient, and somehow something will just get past me. It is my reminder to slow down and take better care of myself, so that is a good thing. I wanted to comment on your intolerance of oats, because I have some of the same intolerances as you do. Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal. I also cannot handle oatmeal, so maybe that is one of our jobs--to tell people to be careful of eating oats, as well as checking all labels. Best of luck to you on your new pathway! Welda

mysecretcurse Contributor
Feel free to mention to your store that "wheat free" doesn't mean "gluten free" - they sound like they might listen :)

Yah, I read every label too, ever since I got sick from unsalted butter that had "natural flavors" as an ingredient - who knew butter had 'ingredients' like that?!?

Hope you feel better soon.

Ha. Funny you say that, I was just thinking earlier how stupid it is that ANY butter would have gluten in it. I use challenge butter now. It's gluten free and pretty good quality.

mysecretcurse Contributor
I hope you quickly feel better. I think this has happened to most of us. I sometimes get in a hurry, even after spending years and years checking every label and ingredient, and somehow something will just get past me. It is my reminder to slow down and take better care of myself, so that is a good thing. I wanted to comment on your intolerance of oats, because I have some of the same intolerances as you do. Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal. I also cannot handle oatmeal, so maybe that is one of our jobs--to tell people to be careful of eating oats, as well as checking all labels. Best of luck to you on your new pathway! Welda

Oprah is going gluten free???

:D:)

Thats awesome. I really like Oprah. She is sort of ahead of the curve as a human being, I like everything she does and most of what she has to say, especially how she seems to think outside the box in the areas of spirituality and medicine. Cool! I missed this episode, I don't get home from work til 5 now and always miss her show.

And you are right, we do need to spread the word about oats. Whether or not some may be able to "tolerate" them I don't think they are good for any celiacs or even sensitives in the first six months or so at least. If you are going to go gluten free, might as well do it 100% so its not an effort wasted.

Aleshia Contributor
Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

can you explain the cysts thing? I have lots of cysts on my head... but by cyst do you mean things that go away? or like bumps that stay and get bigger???

mysecretcurse Contributor
can you explain the cysts thing? I have lots of cysts on my head... but by cyst do you mean things that go away? or like bumps that stay and get bigger???

By cysts I mean cystic acne.

I have been suffering from horrible acne for years, turns out it was being caused by gluten. I don't even think

its really acne maybe some weird form of DH or another skin thing. They are big, dark red sometimes even purplish red lesions which are very painful and itchy and take forever to go away.

ShayFL Enthusiast

Would be nice to be like Oprah...decide to go gluten-free and your nutritionist makes a plan and the chefs that travel with you do all the research and prepare all of your meals/snacks/drinks. All you do is consume....dang I want that!!

I have cysts on my head. :(

FoxersArtist Contributor

HaHaHa!

I just did this also. I felt quite cross with the company who made a delicious looking oreo cookie claiming to be "wheat free." I never actually ate one but when I went to get the box out of the cupboard to try one, a little lightbulb went off in my brain saying "wheat free? Now, what exactly does that mean? Shouldn't it say 'gluten free?'" Indeed, it was not gluten free. It had barley in it. Bummer. They are still sitting in my cupboard, making me angry every time I open it. I really need to give them away to someone else...LOL.

-Anna

It's almost funny.

I can't believe myself.

I went and did all my shopping at my favorite organic vegetarian grocery store. They have a HUGE gluten free selection there, I love it. Its even bigger than whole foods. You can get almost everything gluten free there. Well I got a lot of stuff and picked up these flax/hemp protien and nut bars..that were IN the gluten free section and said "Wheat Free!" on the box.

I'm so stupid. Why wasn't I more careful.

I chow one down then a while later feel sort of sick and actually LOOK at the label.

OATS. #&^#&*#(&*#*(&#* oats!

Oats are not ok for me. I get so sick from them, pretty much just as sick as wheat.

I've heard so many times people saying on this forum that be careful wheat free doesn't mean gluten free, and there I go, NOT checking. Those things were not cheap either.

I'm really annoyed. To me, putting "Wheat free!" (yay) on the box is pointless because most people who need

to be wheat free need to be GLUTEN free. It's like false hope. I mean it's my fault because I didn't check closer, but still..having them there in the gluten free section really makes me mad. Maybe I should mention it to the manager next time I'm there, but I don't want to look stupid lol.

Sorry all my posts are like "I got glutened %#*#$@" lately. It's just hard. I barely am starting to feel sort of better from the last time I got glutened and I go and screw it up and am messed up for another week. I already have cysts popping up on my skin. ARG.

Ok I'll stop complaining now.

mysecretcurse Contributor
Would be nice to be like Oprah...decide to go gluten-free and your nutritionist makes a plan and the chefs that travel with you do all the research and prepare all of your meals/snacks/drinks. All you do is consume....dang I want that!!

I have cysts on my head. :(

I was thinking that earlier too...and wondering why the hell someone doesn't tell her that oats are not gluten free? You would think all her "people" would be well read on what is and what isn't acceptable in a gluten free diet.

mysecretcurse Contributor
HaHaHa!

I just did this also. I felt quite cross with the company who made a delicious looking oreo cookie claiming to be "wheat free." I never actually ate one but when I went to get the box out of the cupboard to try one, a little lightbulb went off in my brain saying "wheat free? Now, what exactly does that mean? Shouldn't it say 'gluten free?'" Indeed, it was not gluten free. It had barley in it. Bummer. They are still sitting in my cupboard, making me angry every time I open it. I really need to give them away to someone else...LOL.

-Anna

LOL! You have no idea how much stuff I keep giving my mom. I go over for a visit with a big bag of this or that and she is just like "again?" haha. Damn its hard.

myst Newbie
I was thinking that earlier too...and wondering why the hell someone doesn't tell her that oats are not gluten free? You would think all her "people" would be well read on what is and what isn't acceptable in a gluten free diet.

If she's eating the recipes the chef is preparing, she's not even close to gluten free.

Open Original Shared Link

Oprah has decided to give it a try! The plan is to eliminate caffeine, sugar, alcohol, gluten and animal products from your diet for up to 21 days.

The tempeh scallopini and the tempeh creole both have spelt flour. :o I have to wonder about some of the other recipes as well. <_<

myst

mysecretcurse Contributor
If she's eating the recipes the chef is preparing, she's not even close to gluten free.

Open Original Shared Link

The tempeh scallopini and the tempeh creole both have spelt flour. :o I have to wonder about some of the other recipes as well. <_<

myst

*sigh* We should all write her.

tom Contributor
. .

Oprah has just started a 21 day gluten-free diet on her show, but is eating oatmeal.

I didn't see the show, but her Recipes page has the poll question "Do you think you could give up animal products, caffeine, alcohol, bread and sugar for 21 days?"

It doesn't appear to me she's trying to be gluten-free at all.

mysecretcurse Contributor
I didn't see the show, but her Recipes page has the poll question "Do you think you could give up animal products, caffeine, alcohol, bread and sugar for 21 days?"

It doesn't appear to me she's trying to be gluten-free at all.

Maybe she is doing that no flour no sugar type diet, meaning actual flour stuff like noodles, but not caring about the gluten itself in other things.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.