Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Afraid Of Developing A Life Threatening Disease

jasonD2

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

I don't have celiacs but tested slightly positive for anti-gliadin antibodies. im doing my very best to avoid gluten, but sometimes its out of my control regardless of how careful I am. I was unemployed for 5 months and spent that entire time preparing my own food for the most part, but i then landed a great job in sales and am now forced to eat out most of the time. I have other food sensitivities as well and developed IBS/Leaky gut 6 yrs ago after a horrible case of food poisoning. my insides have never been the same and i beat myself up constantly for not taking better care of myself years ago after i got sick, but nuthin i can do about it now.

Anyway, i really am doing the best i can now and if i place super strict limitations on my diet (i.e. eating rice and chicken every single day) I will depressed and miserable. Thing is Im also seriously afraid that I am setting myself up for even more serious problems later in life. If I eat things i shouldnt, then i am further compromising my intestinal health and according to a lot of stuff on the web, this will set the stage for diseases like cancer, MS and lupus. I am so frustrated...I want to eat and enjoy life, but I dont wanna get very sick in 10-20 years. I also wanna do my job well and not worry every second of the day where im gonna eat and will they have anything on the menu suitable for me. Right now every day is a struggle for me and I have become a completely different person. Its been 6 years and i must confess I'm still shocked that this has happened to me. I dont know what to do. I'm currently under the care of a naturopathic physician, but every single supplement he wants me to take isnt tolerated well by my body. only thing i take routinely is Biogest digestive enzymes and the occasional probiotic.

Sorry for the long vent but i really feel so helpless.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
I don't have celiacs but tested slightly positive for anti-gliadin antibodies.

Why dont you think you have Celiac? Which antibodies were elevated (IgG or IgA)?

jasonD2 Experienced
jasonD2
Posted
  • Author

it was stool IgA- cutoff for normal was 10 and mine was 20 - not even sure how accurate the test was since i heard they give a lot of false positives. my stool IgG was negative but at that point I already started to cut out gluten

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,569
    • Most Online (within 30 mins)
      7,748
    lizz Z
    Newest Member
    lizz Z
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.