Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Feller On Board


joopie

Recommended Posts

joopie Newbie

hello,

first let me say i have visited this site before and it seems like a warm croud- so, thanks in advance for sharing your thoughts!

i have had many unexplained health issues for many years- recently switched to a integrated medicine w/ a naturopathic doc- just had some blood work done- doc says celiac disease... i am hoping this might be the answer to my problems - i have adjusted my diet to be gluten free-below are results:

Endomysial Anibody, IgA in a reference range from 40 - 350 result = 330 - negative?

Tissue transglutaminase, IgA w/ negative range <20 result = 37 positive.

Gliadin IgG w/ negative range <20 result = 2 negative

GliadinIgA w/ negative range <20 result = 4 negative


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Hi and welcome. Those are positive results as far as I can see. You have come to a good place for info and support and do feel free to ask any questions you need to. Do feel free to just vent also, we have all been through it and do understand the anger and frustration. There is a lot to be learned at first but you will get the hang of it. I hope you are feeling better soon.

ksymonds84 Enthusiast

Tissue transglutaminase, IgA w/ negative range <20 result = 37 positive.

Hello and Welcome to the board! You've found a great place to learn all you can about celiac. The tissue transglutaminase test is a big one for diagnosing and your being positive sounds like the gluten free diet will make a difference.

joopie Newbie

thank you ravenwoodglass and ksymonds84 fro the response!

i am doing as much research on the gluten subject as i can.

i am also sensitive to sugar- my glucose borders on pre-diabetic... i have always been lean in build so i need to be careful not to go catabolic on the new diet.

this change will prove challenging- but, i am fortunate to have a very supportive wife who has already making some incredible gluten free meals- and a beautiful 5 year old son to keep my spirits up.

thanks again- i look forward to feeling better, learning more and helping others if i can,

B) , joopie.

lizard00 Enthusiast

Welcome to the gluten-free life!!! It's really not so bad! In fact, if you feel better, it's GREAT!

Having a supportive spouse (or other family members) is really essential, I think, to being successful with adapting to your new lifestyle. My husband has been great since the beginning, and I don't have an official diagnosis. I hear other people who's families are downplaying the importance of being gluten-free, and it makes a huge difference. My husband took the time to find a gluten-free cookie recipe to surprise me with. It's not so much the cookies (they were yummy!) but the fact that he made the effort to find the recipe and make them that really make me grateful for his support.

Feel free to ask any question, be angry, whatever. This forum is absolutely wonderful and full of people with a wealth of knowledge.

RiceGuy Collaborator
i am also sensitive to sugar- my glucose borders on pre-diabetic... i have always been lean in build so i need to be careful not to go catabolic on the new diet.

Don't be surprised if you find your weight going up a bit. Malabsorption has a tendency to keep a celiac thin (though not for all of us). Also, I wonder if leaky gut issues could be responsible for blood sugar problems, as it seems to me sugars would more easily and quickly get into the bloodstream. Some have reported that their diabetic symptoms vanish once gluten-free for awhile.

joopie Newbie

lizard-

you are so right about a supportive spouse - very important! she has already put together some things from gluten free recipes- i will have to post some pics of the goodies she is already making.

hey riceguy-

i do hope you are right about the removal of gluten and its possible effects.

-thinking positive and sticking to the plan!

B) , Joopie.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



joopie Newbie

celebrating first week gluten free - accomplished!

chocholate/chocolate chip muffins for everyone- compliments of my wonderful wife!

(gluten free of course)

B) , joopie

my pic won't post? :(

004.webp

psawyer Proficient
my pic won't post? :(

004.webp

The %7Boption%7D tag is not enabled on this board. You can create a link on which people can click using [ url ].

As in click here.

Click the BB Code Help button at the bottom right of the window when composing a post for specifics.

Congratulations on your first week! The muffins look lovely.

joopie Newbie

thanks Peter for the info and congrats!

it really is a big change! my wife is helping me huge! sippin' on some wine right now- normally it might be a micro-brewed beer....

B) , J.

Karli Rookie
thanks Peter for the info and congrats!

it really is a big change! my wife is helping me huge! sippin' on some wine right now- normally it might be a micro-brewed beer....

B) , J.

I am a newbie, too. Good to hear the positive response/feed back you are getting from other members... I am getting positive support of my husband, too. He does a lot of the cooking... and now that he understands the cross contamination issue... he has revamped the kitchen cupboards. He still has his store bought bread and crackers ... but for baking we are convertint to glutin free. My sister got her 'test' after I showed positive for Celiac... small bowel involvement and blood work too... So I have given my cake mixes etc. to her... Fortunately, I had discovered on my own that baked goods tended to bother me... Frankly, I have very few symptoms.... so this all came a shock to me....

As I mentioned, my sister got her test right away.... other family members are dragging their feet... any hints on how to urge them to the doctors office.... (brother, sons) my double cousin is having her blood work done this week.... It seems the women are taking this more seriously...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    2. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

    3. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

    4. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

    5. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,001
    • Most Online (within 30 mins)
      7,748

    bonniebeebe143
    Newest Member
    bonniebeebe143
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.