Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bruising... Hair Loss... Weight Gain... Help!


AshleyRay

Recommended Posts

AshleyRay Newbie

I was diagnosed a year ago with severe celiac disease. My docs claimed I had the worst mal-absorption they have ever seen - lucky me. I will spare the details and misery. :0) I am gluten-free and DF. It's been hard but I haven't wavered. I'm doing a lot better and it has taken a long time. I used to eat tremendous amounts of food - I guess the mal-absorption was great for NOT gaining weight. Now that I'm healing I'm gaining more and more weight. I'm careful with my eating habits but this is out of control! Does this get better? I still don't have a lot of energy for exercise (three kids). I've grown out of my fat pants and I'm not getting more (fatter) pairs. Any suggestions!?!?!?

My hair fell out in my teenage years - I'm guessing celiac issue. I still have paper thin hair. This issue, among the many aesthetic concerns isn't getting better.

I have always bruised easily. My anemia is getting better but I'm covered in bruises. I won't wear shorts (not to mention I don't fit in them anymore) fearing that someone is going to assume domestic violence. I don't even know where most of them come from. They just appear (several at a time) every day. My platelets are ok and my iron is better. I'm at a loss of what else is going wrong. I don't want to spend thousands more dollars on tests. I take about $700 worth of supplements monthly. I have little faith in docs. They seem to prescribe invasive testing without clear results. I think most docs don't even care to address celiac disease b/c there is pharmaceutical treatment.

Anyone!!! Please offer advice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

My first comment is on the cost of your supplements. I cannot imagine spending that much! Are they pharmaceutical grade? If so, I'd suggest forgetting about them, and getting some from your local health store or online. The reason is that pharmaceutical companies can't patent natural vitamins, so they make "equivalent" ones, which are often inadequate, if not useless. For instance, vitamin D3 is the natural, healthy kind, but I've read that the prescription form is vitamin D2.

I'd recommend getting a decent sublingual methylcobalamin B12 supplement, such as Open Original Shared Link. Take at east 3mg per day. It should help with the health of the hair, skin and nails, as well as a myriad other things. Also, a magnesium supplement, B-complex, vitamin D3, zinc, vitamin A, vitamin E, and essential fatty acids. Coconut oil is a great source of healthy fatty acids, and has been shown to actually assist in weight loss goals. Flax seeds are also healthy, as are chia seeds. Never cook with these seeds, but rather sprinkle them onto your food after the cooking is done, or even on individual servings. Freshly grinding these seeds is the best way to have them, and I suppose a pepper grinder would work well for that.

Also be sure to get adequate fiber in your diet. This will assist in weight loss too. Grains like amaranth and teff are loaded with fiber as well as many nutrients.

I'm sure others will have great suggestions for you. Hope you feel better soon!

CarolAnne Apprentice

Perhaps you could check here Open Original Shared Link for a Naturopathic Doctor in your area who could help you.

Hair loss, weight gain, bruising, low energy, joint & muscle pain, sleeplessness, exhaustion...it took a Naturopathic ARNP to finally tell me that I was suffering Adrenal Exhaustion probably do to the stress that my Celiac Disease was causing on my body. Standard physicians don't generally treat Adrenal Exhaustion until it becomes Adrenal Failure...then they can give you prescription meds to live on for the rest of your life.

Adrenal Exhaustion can be treated with natural prescription strength supplements. It takes a 16hr saliva test to be tested properly...not the usual 24hr urine that most standard physicians want to use. You can find out more about the test here Open Original Shared Link

Good luck!! I hope things work out well for you.

sickchick Community Regular

I take 5000 mcg biotin a day for my hair (and nails) works. B)

good luck Sweetie

ShayFL Enthusiast

How is your Thyroid? TSH less than 2? Or ideally less than 1 (for most people)?

AliB Enthusiast

Before I discovered I was Celiac my hair was falling out all over the place. I took Milk Thistle capsules for a few weeks as they help to restore the liver. Hair loss is often a sign of a sluggish liver (if you do take some make sure they are gluten-free - mine weren't, as I discovered when I took some recently!).

I have always bruised easily - that may also be linked to poor liver function, but low Vitamin C can also contribute.

Along with the Milk Thistle I was taking a good Multivit and mineral, Vit C, Cod Liver Oil, and Calcium and Magnesium. Within a few weeks my hair stopped falling out and has been fine since.

Joni63 Collaborator

Hi AshleyRay,

I've read that a vitamin K deficiency can cause bruising. There are a number of things that can contribute and since you were severely malnutritioned you might want to get your vitamin A, E, K, all B's, D and your iron including serum ferritin, as well as calcium, magnesium, and folate checked if you haven't already had those done.

Here is some good information about bruises and it's causes:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AshleyRay Newbie

Thank you so much for the reply. I will look into your recommendations. I have been very diligent with regard to charting my progress. It all gets so overwhelming. My hair became really thin when I was in my teens. I think that was when the celiac "triggered." In the past years I have had some severely stressful events that (I believe) heightened my health issues. I feel like I have so little time to focus on my health - three kids. I guess it was meant to happen to re-direct some attention to my own health - important.

Thanks again!

ShayFL Enthusiast

I have been studying hairloss lately. Mine has thinned, but my sister's looks really sparse. I have read some interesting research that when Ferritin gets above 40 hair will start to grow back. I am at 19 and am shooting for 50. Taking iron supplements right now. I dont want to go above 50 because lots of research says this can contribute to cardiovascular disease and diabetes. Diabetes runs in my family. So shooting for between 40 and 50 on the Ferritin.

Has yours been checked? I keep copies of all of my labwork in a file for reference.

purple Community Regular

You gotta check this out if you pay that much for supplements!!! swansonvitamins.com Call for a catalog 1- 800- 437-4148 You won't believe how cheap they are. Dr. Mercola recently joined them. 5 bucks shipping on any size order and it comes in 4-5 business days, sometimes its free. Faster for an extra dollar or 2. The health food store is 2 to 3 times the price on some of the same products. They have a bigger catalog than the first one you might get. They sell name brands too and alot cheaper. Natures way, Enzymatic Therapy, Jarrow, Country Life, Natrol, Kyolic, Schiff. 100 percent money back guarantee. In business for 40 years. Example: I buy Kyolic garlic for about $12 and our co-op sells the same product for almost $25!

  • 1 year later...
twe0708 Community Regular

I take 5000 mcg biotin a day for my hair (and nails) works. B)

good luck Sweetie

Just wondering if you still take this much biotin a day and if it's still helping?

Reba32 Rookie

check your thyroid. All of your symptoms can be atributed to thyroid disease. Hashimoto's and Grave's disease are both autoimmune thyroid diseases that can both go hand in hand with Celiac.

burdee Enthusiast

I also bruised very easily before I got my good bacteria levels high enough to produce vitamin K. Deficiency of that vitamin often manifests in frequent bruising. I also eat lots of foods that contain vitamin K. However, taking lots of high dose probiotics for a long time (especially after treatment for gut bacteria, parasites or candida) helped decrease my bruising.

SUE

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    2. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

    5. - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748

    Dakota4
    Newest Member
    Dakota4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.