Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Only When I Over Indulge?


Krystens mummy

Recommended Posts

Krystens mummy Enthusiast

Ok so heres the thing. I have celiac disease in the family and have started displaying symptoms.

I have noticed that I only get these symptoms when I over indulge in gluten foods eg eat 2 pieces of bread at breakfast, pasts for lunch and a couple of beers etc in one day. Can I still have celiac or just intollerance to too much. My daughter is very gluten sensitive at 17 months and cant tollerate any at all. I had neg blood tests when symptoms first started but I did them fro my daughters benefit than mine cos I didn't think that my probs were related then.

When I do get sick I get sick for 3 to 5 days and this is usually every couple of weeks. I get better cos I stop eating. I get all the normal gastro symptoms minus diarrhoea plus constipation but also back pain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, from what I've read, about 30% of celiacs display no outward symptoms at all. Since there seems to be a "trigger" to Celiac, after which the damage and symptoms begin to manifest, I have little doubt that you will eventually test positive, but by then there'll be quite a bit more damage than there is now.

Tim-n-VA Contributor

The caveat first: we are all different and celiac varies greatly from individual to individual.

I was diagnosed as part of an investigation of possible causes of varying liver function tests. In retrospect, there were times over the years where I'd have stomach problems. These seem to match up with lots of gluten, breakfast with pancakes, drinking two or more wheat-beers (I was in Germany at the time), etc.

The bad part was that I didn't have enough symptoms to make me stop eating wheat (or even suspect it) but I now have cirrhosis. Despite my citing beer above, I rarely drank any alcohol more frequently than once a month and most of the time it was oinly one beer (not two or more) so my liver damage is not likely alcohol related.

ShayFL Enthusiast

Hopefully your GI appt. will go well and you can learn more. It sounds like the light bulbs are already going off.

Kaycee Collaborator

The heading to your thread caught my eye. When you mentioned over-indulging, I thought you meant the practise of eating way too much, something which I can do with such ease. But you were only referring to only eating excess in the amount of gluten.

Well I didn't really have what I considered symptoms. Okay I had a bit of diarhoea, that didn't really impact in my life, as it only happened in the mornings and that was that for the day. But I did notice over the last few years before going gluten free, that everytime I overate, as in enjoyed morning tea at work, went out for a good hearty meal, or just eating more than I usually ate. I would be sick that night with chronic diahrroea. I'm pretty sure those days I ate more gluten, but I was just thinking I had overloaded my system with too much food and it couldn't cope. It was that symptom that made me stop and think, something is not right, and maybe the diarrhoea is not normal. So I went looking for answers. no one in my immediate family had coeliac, but I'd come to the conclusion I had an intolerance to gluten, or to some other food I'd been eating everyday.

When I went gluten free after being diagnosed with coeliac those horrible days of over over indulging dissappeared, and so did the diarrhoea. I can still over-indulge in food, but I don't get the stomach issues now.

Like the previous poster said, we are all different and have different symptons.

Cathy

tom Contributor
I have noticed that I only get these symptoms when I over indulge in gluten foods ...

I may be taking this wrong, but it hints to me at the thought that having only smaller amounts will be ok.

That is false, for a celiac.

I was under this impression for a few years - that there was some amount which I could have, remain asymptomatic and not create problems.

It ended up ruining 7-8 yrs of my life & I'm still recovering from the complications.

If you have celiac, be 100% gluten-free or HIGHLY regret it later.

Good luck. :)

mftnchn Explorer

I agree, since you have strong family history. Otherwise you could check whether you have a wheat allergy instead of celiac. You are reporting ten days of symptoms a month, seems time to address it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast
I agree, since you have strong family history. Otherwise you could check whether you have a wheat allergy instead of celiac. You are reporting ten days of symptoms a month, seems time to address it.

I would agree with that. My symptoms would always worsen at my grandma's house. She worked in a bakery and when we were there, we always "overindulged". At that point I was clueless to Celiac, and I was eating lasagne, cereal, sandwiches and all the desert bites in between and after every meal. (cause we were at grandma's!) By Saturday afternoon, and we always arrived Friday night, I was down with a throbbing headache and nausea. And I do mean throbbing. It was because I was eating WAAAAYYY more gluten than I was used to, and my body simply couldn't cope with all the extra, it was barely handling the little bits that I normally ate. But I only see that looking back... so, it's good that you see that now. Definitely get checked out before you really get sick.

Fiddle-Faddle Community Regular

I don't think it matters whether you have celiac or "just" gluten intolerance.

Either way, your immune system is likely being triggered to attack your intestines, Even if you only have "small amounts of gluten," you risk further damage in the form of rheumatoid arthritis, fibromyalgia, lupus, MS, and even lymphoma.

If eating gluten is so near and dear to your heart that you think it's worth risking all that (not to mention seeing your daughter grow up), then I guess it's up to you.

Remember, it only takes 1/16th of a piece of bread to cause MEASURABLE damage to the villi, even in the absence of symptoms.

Krystens mummy Enthusiast

Thanks for your advice! I am going to see the GI on wednesday hopefully he/she can help I have decided that I want to go gluten free anyway even if the tests are negative. We do it for my daughter anyway so Im used to it.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.