Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions Questions


Vickie Bedford

Recommended Posts

Vickie Bedford Rookie

Thanks to all of you who replied to my original blog.

My family doctor doesn't seem to know anything about this disease and the Gastro doctor that diagnosed me gave me a pamplet and said read this get on the web and change your diet. Now he had a list of the other meds I take and never said anything about changing those. I take Lipitor and it is the only thing that has ever worked for my cholesterol. According to the web it has gluten in it. No one seems to really know if I should stop taking this - and I don't want to. Also, why should I change my make-up and lotions, etc. if I am not having any skin problems. I am a cook so I can deal with the diet end of it but the rest of this seems a little too much!!! Is a total change really necessary?

V Bedford


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
Thanks to all of you who replied to my original blog.

My family doctor doesn't seem to know anything about this disease and the Gastro doctor that diagnosed me gave me a pamplet and said read this get on the web and change your diet. Now he had a list of the other meds I take and never said anything about changing those. I take Lipitor and it is the only thing that has ever worked for my cholesterol. According to the web it has gluten in it. No one seems to really know if I should stop taking this - and I don't want to. Also, why should I change my make-up and lotions, etc. if I am not having any skin problems. I am a cook so I can deal with the diet end of it but the rest of this seems a little too much!!! Is a total change really necessary?

V Bedford

Hi, Vickie

I had the same thoughts about lotions, shampoo, etc. when I first started. You do need to make sure they are gluten free because you touch them with your hands and then if you touch food or your mouth, you transfer the gluten into your system. It isn't just when you apply lotion after your shower - any time you touch your skin that has gluteny lotion on it, you have recontaminated your hands. Shampoo always has the possibility of getting into your mouth.

As far as Lipitor goes, you may find that you don't need it once you are completely gluten free and your body has adjusted. In the meantime, you may be able to have it specially formulated for you. But as long as you take it in it's gluten-containing format, you have not eliminated gluten from your diet or system.

It may seem like all of this is a bit too much, but it really is necessary.

Spend time reading in this forum. You will learn a lot! :)

GlutenGalAZ Enthusiast

My mom and mother in law both take cholesterol medicine (they are not celiac). My mom takes the one you are on and my MIL take a generic. There are a lot of generics out there for what you are taking you might be able to find one that you can switch over to.

In regards to make-up and lotions. That is up to you on changing. Some of us have noticed differences with having everything gluten free. Some people have skin irritations or DH so they make sure all is gluten free. I used an acne wash that I believe had gluten in it and my face broke out and got red and irritated so I went back to one that I knew was safe. You also have to think am I touching my face and then eating or resting my hand on my face that has make-up on it and then eating or running my fingers through my hair (say it is windy or you are pulling your hair up) and then eating or touching your mouth area. Some people have had incidents and some haven't but it is up to you on the make-up topic. Some make-ups/lotions are hard to wash off so the residue can stay on your hands.

Since you like to cook you should look at all of your kitchen equipments (pots/pans, toasters, storage containers, wooden spoons etc). Dish soap, laundry detergent, tooth paste etc. It is up to you on the degree you will go with getting things gluten free.

As time goes on you may decide that yes I am noticing that things are not clearing up completely and decide to change your make-up or other things that you haven't yet.

GOOD LUCK

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,521
    • Most Online (within 30 mins)
      7,748

    Angela12598
    Newest Member
    Angela12598
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.