Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You All Survive?


glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast

OK so after I read all your great ideas from earlier post I headed off to health food store with my head high and a deep breath and put a smile back on my face with this beautiful day and thought OK I can do this,,,

So in I walked and hunted dow n my items and then...I asked the sales ladie about the new gluten-free oats and well here we go!!! :o

She first asked me if I am Celiac and I said yes then she askes me well did you actually get tested?? like what does that matter I thought to myself... so ok I say yes and then she say and your telling me it came back positive?? Uhhh yeh!!! then she looks at my kiddies and says them too?? yes!!! I am now getting a little irrated at this point then she kind of frounds and said to me so you are telling me that you are all celiac?? with a really rude tone and I said yes... still a little confused at this point I was like why? and she just shooker head ..no and siad Oh I am just surprised is all... really really rude... like no I am just making it up to complicated my life for no reason!!! are people kidding me...is this what I have to deal with in the future ....

oh my goodness I would never pry into some ones business like that was I being too sensitive or was she really rude??

SO I left with my goodies bought a trashy magazine ...made up with my DH made some tastey choc chip muffins took another deep breath.he he had a muffin, read my trash and watched Y&R and now I feel great yet once again!!!! boy we sure are stonger than we think


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacAlli Apprentice

It's not you, some people are rude but It'll get better as you become more comforable with celiac. I don't have much time to talk with you but send me a message or email me at allisonnn04@aim.com or softballstarallie@yahoo.com and I will talk to you. I message moms all the time..I'm realllllllyyy good at listening! Anyways gtg...byeee. You go for it girl!!!

=]

gfmolly Contributor

That's pretty ridiculous. Can you shop somewhere else? My health food store has been awesome to celiacs/gluten intolerance! They have found lots of new products to bring into the store and have samples sometimes. You probably don't have a choice of where to shop, but you certainly can be prepared with a snub the next time around! Keep your head up high!!

Phyllis28 Apprentice

That sales clerk was very rude. If you can, shop somewhere else write the owner as to why they now longer have your business. The sales clerk is paid to help customers find what the want NOT pry into your life.

glutenfreegirl Enthusiast
It's not you, some people are rude but It'll get better as you become more comforable with celiac. I don't have much time to talk with you but send me a message or email me at allisonnn04@aim.com or softballstarallie@yahoo.com and I will talk to you. I message moms all the time..I'm realllllllyyy good at listening! Anyways gtg...byeee. You go for it girl!!!

=]

Thank you so much Alli I will be in touch,,, enjoy your night

glutenfreegirl Enthusiast
That sales clerk was very rude. If you can, shop somewhere else write the owner as to why they now longer have your business. The sales clerk is paid to help customers find what the want NOT pry into your life.

OK good to know... I thought after the day I had I was just too sensitive and to top it off I am 4 days late with aunt flow;;;; no not pregnat just been weird through this whole gluten-free thing..which I have heard is normal so I am ok with it...but again so glad to know it was not just me that thought she was rather rude and nosy(sp?)

again thank you girls I would never survive this new life challenge without you all I am so thank ful to have found this group

Big hugs to you all

hawaiimama Apprentice

wow I would have pointedly asked her why she was asking... you never know what she might have said.

My husband is chinese and I am not. We had this new neighoubr move in and she saw my kids and said "oh your kids are chinese" I was HUGELY offended. I week or so later, I saw her kids who were also chinese. What I took as completley rude wasn't at all. I wonder if there is more to this story than you realise.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mysecretcurse Contributor

Some people are so stupid. Why the hell would this lady even want to say that to you????

gfp Enthusiast
wow I would have pointedly asked her why she was asking... you never know what she might have said.

My husband is chinese and I am not. We had this new neighoubr move in and she saw my kids and said "oh your kids are chinese" I was HUGELY offended. I week or so later, I saw her kids who were also chinese. What I took as completley rude wasn't at all. I wonder if there is more to this story than you realise.

LOL

But good point,

The sales assistant might be wondering if she has celiac disease or perhaps her sister got diagnosed and she's wondering about the genetics or .....

You never know she could turn out to be a celiac buddy ?

Mango04 Enthusiast

I also think she was rude and that would have bothered me too. But, maybe she just wanted more information about celiac disease and didn't go about asking in a very polite way?

samcarter Contributor

That was incredibly rude. I've shopped at numerous health food stores and never gotten any queries about "why are you looking for dairy free foods" or the like. I wonder what that clerk does if somebody comes in asking for colon cleanse stuff. "So you're saying you're constipated? Are ALL of your family members constipated? Do you have a parasite?" Geesh.

I wouldn't not shop there, if it's your favorite store, though. If that clerk gets nosy again, I'd just be polite and say, "Yes, we have celiac disease. It runs in families. Can I speak to your manager if you're not going to help me find the items I need, please?" ;)

glutenfreegirl Enthusiast

You all have mne in laughter mode after reading these replies....I too did think that later too that maybe she was inquiring for her own self but like you said there is a better way to go about that...

but thanks for the supportive responses and the good laugh this AM...

Hugs to you all

home-based-mom Contributor

I agree with those who are reading between the lines and suspect there was more to the questioning than being rude. I too suspect she had reasons for asking other than being nosy. Too bad neither of you followed up with "why."

I suggest shopping there again and making a point of going through her line. :)

VioletBlue Contributor

Oh gosh. I'm so sorry you had to put up with that! That was just so rude. What are these people thinking? Even if there was a some reason for her to ask, her questions were intrusive and rude.

Next time someone tries to give you the third degree, just say "It's really none of your business" with a big smile on your face, because it really is none of their business why you are there and shopping in their store and putting money in their pockets! Please don't let her attitude turn you off on trying other stores. Apparently not all organic stores are created equal.

Is there another organic store in town somewhere? The ladies at the one and only organic store in my town have always been so helpful.

OK so after I read all your great ideas from earlier post I headed off to health food store with my head high and a deep breath and put a smile back on my face with this beautiful day and thought OK I can do this,,,

So in I walked and hunted dow n my items and then...I asked the sales ladie about the new gluten-free oats and well here we go!!! :o

She first asked me if I am Celiac and I said yes then she askes me well did you actually get tested?? like what does that matter I thought to myself... so ok I say yes and then she say and your telling me it came back positive?? Uhhh yeh!!! then she looks at my kiddies and says them too?? yes!!! I am now getting a little irrated at this point then she kind of frounds and said to me so you are telling me that you are all celiac?? with a really rude tone and I said yes... still a little confused at this point I was like why? and she just shooker head ..no and siad Oh I am just surprised is all... really really rude... like no I am just making it up to complicated my life for no reason!!! are people kidding me...is this what I have to deal with in the future ....

oh my goodness I would never pry into some ones business like that was I being too sensitive or was she really rude??

SO I left with my goodies bought a trashy magazine ...made up with my DH made some tastey choc chip muffins took another deep breath.he he had a muffin, read my trash and watched Y&R and now I feel great yet once again!!!! boy we sure are stonger than we think

sickchick Community Regular

Hang in there Toots, I am lucky the lady who runs my heath food store has a hub & son who both have celiac disease :)

lovelove

purple Community Regular

This is a motto I taught my day care kids years ago.

(Using finger motions)

"Let it go in your ear and out the other ear, if you let it go in your ear and out your mouth, then a fight starts"

It helps with a lot of problems a person can have through out the day ;)

Someone told me once, maybe the persons mother just died, so be careful how you hear.

If you can remember these things it will help one to shake it off, we have enough problems without adding another one. Hope this helps for the next time.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.