Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Females....only.

CeliacAlli

By CeliacAlli
in Coping with Celiac Disease

Recommended Posts

CeliacAlli Apprentice
CeliacAlli
Posted

Has anyone who is a celiac or has a kid that went through puberty and had these issues with not having menstruation start at the expected age...by the looks of things I def. should have started by now? My doc is like avoiding it totally and mom isn't really sure about anything...don't think she really knows what to think. What to do?

btw..I am nearly 14 mom started 10 ish aunt started at 8

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Menstruation has a lot to do with body fat. Are you underweight due to the Celiac?

8 is way too young. The average age is 12 which means anywhere from 10 to 14 would be considered normal by US standards. So I would not worry into your 14th birthday.

Are you developing otherwise? Breast buds? Body hair? If you are then it may just take a little patience.

You say you are Celiac so I hope you are on a 100% gluten-free diet. This is what your body needs to develop properly.

CeliacAlli Apprentice
CeliacAlli
Posted
  • Author
Menstruation has a lot to do with body fat. Are you underweight due to the Celiac?

8 is way too young. The average age is 12 which means anywhere from 10 to 14 would be considered normal by US standards. So I would not worry into your 14th birthday.

Are you developing otherwise? Breast buds? Body hair? If you are then it may just take a little patience.

You say you are Celiac so I hope you are on a 100% gluten-free diet. This is what your body needs to develop properly.

I am not underweight...I am considered a healthy weight and yes I have developed otherwise but have been for about two years...

Green Eyes Rookie
Green Eyes
Posted

Hey CeliacAlli,

I do not have personal experience with celiac and puberty, but I have experienced both at different times. My best advise is to enjoy what life you have before you start your period. Every girl is different, you may follow the norm for the females in your family, but you may also be the exception to that rule. With being a female - all rules were meant to be broken.

If you are healthy with no other problems, just sit back, relax and it will happen in its own time!!!

Best Wishes,

Jennifer

finally diagnosed Apprentice
finally diagnosed
Posted
Has anyone who is a celiac or has a kid that went through puberty and had these issues with not having menstruation start at the expected age...by the looks of things I def. should have started by now? My doc is like avoiding it totally and mom isn't really sure about anything...don't think she really knows what to think. What to do?

btw..I am nearly 14 mom started 10 ish aunt started at 8

Give it time it will happen. Everyone starts thier period at different ages. If you are very athletic sometimes this prolongs it. But as long as you are healthy and things are starting to develop let nature take it's course. But as a precaution I would put something in my backpack for when school starts just in case it happens then. Good Luck.

samcarter Contributor
samcarter
Posted

Alli,

My mom didn't start until age 16, I started at age 14. From her medical history and mine, I suspect both she and I had asymptomatic celiac disease. It will happen, all other things being equal. :)

Even though I started "late", I went on to have kids and everything has been fine in that regard. My mom had two kids with very little trouble, too.

celiac-mommy Collaborator
celiac-mommy
Posted

I started at 12 and my sister started at 16, it varies so much from girl to girl. Take advantage of this flow-free time ;) If it hasn't happened by 16, then revisit the situation...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CeliacMom2008 Enthusiast
CeliacMom2008
Posted

I don't have Celiac and started late. Then I went through years of annual periods instead of monthly. I too went on to have a child and very normal "regular" life. Really don't sweat this yet. 14 isn't that old. A close friend of our family is a pediatrician and she said there is a lot of research on kids going through puberty much earlier these days and many suspect it to be caused by the increase of hormones in our food. As a Celiac you may be eating healthier food that has less hormones added. I'm not a doctor, but it is yet another possible explanation. But the biggest explanation is that everyone is different. Averages are just averages. There will always be extremes on one end or the other. Your aunt was 8. You need to be 16 to average out your family! :D

sickchick Community Regular
sickchick
Posted

I got mine @ 10. Think of it as a cramp-free blessing! lol :lol:;)

lovelove

YoloGx Rookie
YoloGx
Posted

I have had celiac since I was four months old--and started puberty at age 15 1/2. Yes, it varies. It may or may not have to do with having celiac. Mine went untreated after I was four years old so it could have something to do with the delay. I always looked way younger than my age. Of course now that is a good thing...

Bea

ShayFL Enthusiast
ShayFL
Posted

And some really GOOD NEWS is the later you start your period, the less chance you have of getting breast cancer later on.

Enjoy it!!

CeliacAlli Apprentice
CeliacAlli
Posted
  • Author
And some really GOOD NEWS is the later you start your period, the less chance you have of getting breast cancer later on.

Enjoy it!!

That is REALLY good new!! Thanks everyone!

Calicoe Rookie
Calicoe
Posted

Hey Celiac Alli:

I started mine at 14 too. I've also heard that the later you start, the later you start menopause as well later on in life. So, consider it a blessing all around and don't worry.

HAK1031 Enthusiast
HAK1031
Posted

I started a month before my 14th birthday, and all hell broke loose from there. My periods were 3-5 months apart, and I got debilitating cramps and a heavy flow. I went on birth control when I was 15 and this helped a lot, although it took a LOT of experimenting to find the right pill. But I do think a lot of these issues could have been celiac-related. I was 5'8" and a C-cup before I started, so I guess you never know!

elonwy Enthusiast
elonwy
Posted

Mine was a few months after I turned 14. I think its definitely all around better to get it at an older age. Enjoy the hassle free time :)

samcarter Contributor
samcarter
Posted
Mine was a few months after I turned 14. I think its definitely all around better to get it at an older age. Enjoy the hassle free time :)

Funny thing, I thought I would start at 12, because all the other girls were starting, but when I didn't, I felt like "Ha! I got away with something!" I was happy not to have to deal with it. When I did start at 14, I was not happy, but my mom was ecstatic, because she started at 16 and thought something was wrong until she did. She was all "Yay! You don't have to wait like I did!" I was all, "Maaaan, I thought i wasn't going to have to deal with this!" :lol:

JNBunnie1 Community Regular
JNBunnie1
Posted
Funny thing, I thought I would start at 12, because all the other girls were starting, but when I didn't, I felt like "Ha! I got away with something!" I was happy not to have to deal with it. When I did start at 14, I was not happy, but my mom was ecstatic, because she started at 16 and thought something was wrong until she did. She was all "Yay! You don't have to wait like I did!" I was all, "Maaaan, I thought i wasn't going to have to deal with this!" :lol:

That was exactly my reaction! I was hoping it wouldn't happen til I was 16, got it at 13. It's totally normal for your period to show up either way after everything else changes, or even before sometimes. Your body knows what it's doing, enjoy not having to deal with it while you can!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,138
    • Most Online (within 30 mins)
      7,748
    Jamy
    Newest Member
    Jamy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.