Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleep Issues...normal?


CeliacAlli

Recommended Posts

CeliacAlli Apprentice

I have issues with sleep. Sometimes I can't fall asleep til' 3 am. and sometimes I go to bed at 7 pm. But even I feel like I got the same amount of sleep and that amount is far from enough. I never want to get up because my mind is so sleepy, and I am constantly exhausted from doing nothing! I am a teenager too and it's normal to sleep alot but people my age feel rested after sleeping...Suggestions...Why?...and has it happened to you?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Have you told your doctor about this? Have you done a sleep study? It seems more and more people are suffering from sleep apnea.

I didn't realize I had a "real" sleep problem. Then my neuro diagnosed me with sleep apnea, I did a sleep study, and now I know I do have it.

A few weeks ago, in another forum, my friend Al bumped an old thread up and in it they asked what had changed for us physically since going gluten free. This thread was 4 yrs ago, and I said many things had improved, but I still was having sleep problems. I do not even remember saying that, yet it's obvious that I had sleep apnea even then.

If you haven't yet, talk to your doctor about this and see what he/she says.

ohsotired Enthusiast

Alli - I can totally relate. I can sleep for 6 hours or 16 (and the 16 seems to be more and more often) and still feel like I haven't slept for a week when I wake up. It's recently come to my attention by my dear sweet husband, that sometimes when I'm sleeping - I stop breathing.

I found this out when he physically shook me awake at 4am one day last week. I'll be seeking a sleep study ASAP.

GFinDC Veteran

Hi Alli,

I've had sleep problems for years. I got much better though after going gluten-free and was able to sleep kind of normally. I think to some extent not sleeping can be caused by the general disruption of the body due to fighting off gluten or other food intolerances. In my case I do have a specific reaction to gluten related to sleep due to my thyroid acting up. I get glutened and I can't sleep. The thyroid goes into overdrive and that's it for any sleep. I have a reaction to either sulfites or yeast now too, although I am not sure which. Anyway, if you are sure you are gluten-free, then I suggest you think about other foods that might be affecting your sleep. It could be you have another food issue that is causing problems.

mirabella Apprentice

Hey there,

My dr. just told me that celiac and thyroidism are common together because of not being able to absorb nutrients.

Mine came back hyperthyroidism, which is due to not enough iodine. Falling asleep takes forever. I also get up and down several times a nite because I am starving. Thank goodness for fresh vegies and fruit.

Its exhausting sometimes.

lsmall05 Newbie

Definitely consult your doc!

Sometimes its hard for your doctor to know what to do for Celiac, but ask if he can order bloodwork. We ALL hate bloodwork, but you sleep and/or lack of energy problems could easily be a vitamin or mineral deficiency. Anyone that has absorption issues should be on some vitamin supplements! Your doctor should be able to take a look at bloodwork of your B's C's and K to see if you are running low.

I drink more Gatorade since I have low Potassium! easy fix!

  • 1 month later...
missy'smom Collaborator

You should ask about your adrenal gland function. My sister had the problem that you described and her adrenal gland wasn't functioning correctly, which is common with Celiac, and once she started treatment, which in her case was some special supplements, her sleep started falling back into normal patterns. From what I understand the adrenal gland releases hormones that tell your body when it's time to sleep and wake up.

I don't eat after dinner now and find that I sleep better. If I eat an evening snack, I think my body is digesting all night and that keeps me from getting better sleep.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heiko.d.26 Newbie

Sleep is really important and therefore sleeping issues shouldn't be taken lightly but you should definitely consult a doctor.

A good friend of mine also suffering from celiac disease had also big trouble with sleeping and basically he would wander around the house all night. At first he didn't want to get himself any help, but I could persuade him to go and see a doctor who could really help him in the end.

Fortunately I don't have sleeping problems!

Josh Parker Newbie
I have issues with sleep. Sometimes I can't fall asleep til' 3 am. and sometimes I go to bed at 7 pm. But even I feel like I got the same amount of sleep and that amount is far from enough. I never want to get up because my mind is so sleepy, and I am constantly exhausted from doing nothing! I am a teenager too and it's normal to sleep alot but people my age feel rested after sleeping...Suggestions...Why?...and has it happened to you?

Insomnia is normal with celiac. I usually get on the internet and eat something in front of my computer. The worst thing that you can do is lay there frustrated, staring at the ceiling. Sometimes the DH that is associated with celiac will keep me awake. In extreme cases, I will get up and go to Waffle House or the grocery store. When I come back, I usually go right back to sleep. Reading in bed is a good way to confront the frustration with insomnia, and get back to sleep if you don't want your roommates to think that you are crazy for going to the grocery store at 3am.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,078
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.