Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shouldn't Celiac3270 Be Back On Line By Now?


Canadian Karen

Recommended Posts

Canadian Karen Community Regular

I thought for sure celiac3270 would have visited here to give us an update. I am kinda worried now.

I am sending more prayers his way that everything is okay.....

Hugs,

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I think he said wednesday or thursday. I wish I had some kind of update. I hope everything went well. Hopefully he'll be back here soon :D

mela14 Enthusiast

I was thinking the same thing too..........hope all went well.

Guest barbara3675

Was on vacation for a week, what's up with celiac3270--what type of surgery is he experiencing? I sure will keep him in my good thoughts and look forward to his return.

Barbara

stef-the-kicking-cuty Enthusiast

Hey, I was gone for a few days, too. And I was wondering, if he's already back. Hm, it might have taken a little longer than everybody expected. I hope, he's fine.

Stef

flagbabyds Collaborator

he said that he would be in the hospital for like a week so he should be back sometime soon

celiac3270 Collaborator

I'm back! I can't give a complete update, but I just wanted to inform you :). In the next hour I hope to get back here and I'll give you the full story.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mela14 Enthusiast

welcome back,

let us know how you are just as soon as you can.

hope you are on the road to wellness now!

celiac3270 Collaborator

Monday -- Surgery Day -- The doctor told me I was very lucky to have gone 14 years without a serious problem. Any one of the hundreds of times I've been sick, my intestines could have coiled around a vein cutting off the blood supply and essentially killing an organ. I had to sit around in the waiting room all day until about 4:00 in the afternoon (since they were squeezing me in on an "emergency basis." In the procedure, they made three incisions--one in the bellybutton, one about halfway between my belly button and the left-most part of my abdominal area, one on the right. The incisions were small--maybe three centimeters each. They stretched out my intestines (side to side) as much as possible in the "LADS Procedure". They also took out my appendix since it's in the wrong spot as a result of all this and as a result of this, if I ever got appendicitis they would never find it--too dangerous so they took it out since it doesn't do much for me anyway. When I woke up I had a tube that went from my stomach through my throat and up into my nose and out into a container. They had suction on it so it was removing a greenish liquid from my stomach. The doctors said that since they had to touch the bowels and intestines so much, they sort of froze up. My throat and nostril got really sore from the tube over the next few days. I also had an IV of course, and some oxygen since I wasn't breathing as deeply as they wanted. The oxygen tube was removed a day later. I was in a room with a little child and I couldn't sleep much because to ladies on the other side of the curtain had loud childs music playing all night and were talking in Spanish extraordinarily loud--the way I might yell, or at least raise my voice--plus the child cried a lot. I got moved to a private room the next day by the nurses who felt sorry for me :):lol: .

Tuesday, Wednesday -- Recovery -- They took the oxygen tube out, but the other tube hurt so much. I still wasn't allowed to eat or drink anything. The cuts weren't as bad as the throat pain...I had morphine to control any pain I had, but I stopped using it when I was told it could slow up bowel progress--I didn't want to sit there for days waiting. They moved the tube about an inch higher since it was a little low in my stomach--really painful. I sat in a chair for a half hour Tuesday, but it made me nauseous and dizzy. Oh, and I started walking Wednesday since that would also help me to recover and get things moving--with a stand of all the drips and pain meds.

Thursday -- I walked a tremendous amount (for post-operation)--49 laps around the floor, which consisted of four long hallways--with my stand of meds again :). Still the tubes down my throat, but they were, to my relief, removed late in the day--due mostly to my walking-- and they let me eat a lemon ice (gluten-free) and a little chicken broth--hot water with an unopened package of "Herb Ox" powdery stuff to put in it--also gluten-free, of course.

Friday -- The doctors told me that I could start eating solid foods without any restriction--though I made sure to eat slowly and walk after eating to keep things moving so I wouldn't aggravate anything and need the tube put down again. 1st BM....lol....I'm not sparing any details. I did a lot more sitting in the chair--actually, Thursday I spent most of the day walking, second most in a chair, then the least time in my bed and Friday I was a little tired, but I sat in a chair again for most of the day. They disconnected the drip from the IV in my hand and reconnected it later to give me something else. I was extremely surprised when the doctors came in around 5:30 and said I could go home if I wanted to, since on Wed./Thurs. had been predicting Saturday--maybe late afternoon--and only that soon because I was so diligent about walking and sitting up and trying to recover.

Carriefaith Enthusiast

That tube thingy sounds painful :(

I'm really glad that you are home and doing well though :D

I wish you a great recovery and hopefully you will be symptom free forever B)

Best wishes

angel-jd1 Community Regular

Welcome back kiddo!! Now get off the computer and GO REST!!!! You just had surgery silly. Take care of yourself.

-Jessica :rolleyes:

stargirl Apprentice

Feel better quickly celiac3270!

mela14 Enthusiast

glad you're back! You will get better and stronger each day. Just give it time and rest a lot. Your body need it. You've been through a lot!

I've had 7 surgeries for abdominal adhesions and it takes evrything out of you but you WILL recover.

Hang in there and keep us posted!

celiac3270 Collaborator

Thank you ;)

P.S. What was really cool was that one of the nurses--she added the medications to my drip and stuff on--Wednesday, I think--was celiac herself! Had never heard of celiac.com, checked for celiac sites on the internet, or known that there were gluten-free restaurants in NYC. She asked if I could e-mail later, which I will--and visited the message board while I was in the hospital

stef-the-kicking-cuty Enthusiast

Wow, good to see you back and on the way to recovery :D . Interesting story, that with the tube indeed does sound very painful :( . That with the nurse, that she had celiac, that's just one proof, that there are more and more patients with celiac out there :lol: . I don't wish it to them, but our world gets much better through that though. I'm glad to hear, everything went well at the end. Keep us posted about your recovery :D .

Hugs, Stef

MySuicidalTurtle Enthusiast

Hello, celiac3270!

mommida Enthusiast

Glad to hear everything went well.

My family wishes you a speedy recovery.

Laura

Canadian Karen Community Regular

Well, Mister Readingracer!!!!

I sure is a relief to hear from you!!!!

I am glad you are home safely and it sounds like it's wasn't exactly a walk in the park, eh? Oh well, it will all be worth it once you start feeling so much better than you have in years!! God was watching out for you in regards to the doctors telling you that you were very lucky that some much more serious didn't happen.

Now make sure you get some rest and recoup your strength....

Hugs,

Karen

celiac3270 Collaborator

I was back at the hospital a little sooner than expected: about 2:30 (Eastern time). This morning I had some swelling....I'm pretty open about things, but I won't go into a tremendous amount of detail here--just the scrotum becoming very enlarged and they told me to come in. It's some sort of infection with the epidydimus (sp?) ...antibiotics for 10 days....released around 6:30, though and hoping I won't be leaving home again for a little while.

Maggie1956 Rookie

So glad you're on the mend celiac3270. :D It sounds like you've been through quite an ordeal, so take it easy for a while, ok?

Please keep us posted. We're looking forward to hearing about your progress toward total good health. ;)

lbsteenwyk Explorer

Welcome back, celiac3270. I'm so glad your surgery went well. You've been in my thoughts these past few days. As someone else said, it does take time to recover from surgery, so take it easy!

cdford Contributor

Been praying for you. Glad you are better and home again. Those tubes are awful. What was even worse for me was not being able to communicate well. Maybe that is the last time you will ever have to experience it.

Twister2 Contributor

Hi celiac3270! Glad to hear you are recovering well, what an ordeal! I hope you feel better soon and hope the surgery works well for you in the long run.

Keep us posted!!

Hugs,

Twister

plantime Contributor

{{{Hugs}}}!! Rest and recover. Give yourself time. Take care of yourself! I'm glad you were able to reach out to that nurse, maybe now she doesn't feel so alone with celiac.

mela14 Enthusiast

boy...it's always something. don't get discouraged. take the antibiotics and rest. you'll be be on your feet soon enough. don't foget to take probiotics with the anitbiotics!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748

    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.