Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Before You Felt Better?


anerissara

How long did it take on the diet until you felt better most of the time?  

17 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

anerissara Enthusiast

HI! Ok, I have no idea if I did that poll right, guess I'll see when I post it!

Just wondering how long it takes before you feel like yourself again. It doesn't have to be 100% better, just better most of the time. I felt so good the first 3 weeks I was sure I'd be totally better by now, but it's been 2 months and I still go up and down and although most of the other symptoms are better I'm still getting D and still have one spot of rash that hasn't quite cleared up. Thanks!

Oh, oops! I guess if you're on the gluten-free diet and don't feel better, you could just respond to the post and write in how long it's been and that you're still not better.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator
;) the poll worked----and i think you will get answers all over the place----some people feel so much better after just a few days--i do feel that it has a lot to do with your frame of mind--some people see the glass as half full and some as half empty---the half empty thinkers take longer to convince----when i went gluten-free and little minute change was terrific to me----i wanted my life back--i wanted to go wherever i wanted whenever i wanted and celiacs had taken that right away from me---i found it very difficult somedays and even impossible at times to drive 25 miles to work---25 miles seemed like the other end of the state to me and could set panic in that youwould not believe---now--i live 800 miles away from that job and i love to travel--i still have rough days sometimes, but they are few and far apart----gluten free gave me back life and its so good------ :lol: deb
celiac3270 Collaborator

I put 9-12 months, but if this is for research or something, don't use my number :). I just took much longer cause I had another problem which gave me terrible, but celiac-like symptoms. So for all I know, I could have lost my celiac symptoms in two weeks and then my malrotation caused the problem for the remaining months. I know that in reality, it should have been under six months for me, because I had an endoscopy about six months in and it said that my villi had grown back 100%--and some people feel better before their villi have grown back--people shouldn't still feel sick once they're completely healed--which is why I started getting tested for other problems.

flagbabyds Collaborator

SORRY I don't remember because I was so little but I think it will be interesting

plantime Contributor

It took a few weeks for all of the junk to clear my system, and I am still healing, but I felt SO MUCH BETTER!!! within a month of starting the diet! My sister felt better two weeks after starting the diet, but she doesn't want to give up bread and pasta, so she goes back on gluten, and has to start all over again. As for me, one crumb of bread is not worth all that pain and misery.

Carriefaith Enthusiast

I can't vote because I still don't feel better

rmmadden Contributor

Great question! I will be interested to see the results as everyone is different.

I didn't vote because I am still healing. I have been gluten-free for the past 3-months and have noticed that I am feeling a bit better (everytime I say that something happens to set me back :angry: ) these past 3-weeks or so. Anyways, all anyone can do is to take each day as it comes and hope that eventually you will be feeling consistently better somewhere down the road.

Best Of Luck To Everyone.

Cleveland Bob :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I got better in about 3 months. I still experienced some symptoms but in 3 months I was feeling a lot better. Of course even now whenever I accidentally have gluten I feel bad for about 2 weeks. It took me longer then that to really get back to 100% though. That was a long process.

lshaffer1 Newbie

I feel better after only 2 weeks. Better is relative. I only have diarrhea 1x every few days...when I used to have hourly BMs. I feel like nutrition is actually getting back into my body.

anerissara Enthusiast
Better is relative. I only have diarrhea 1x every few days...when I used to have hourly BMs. I feel like nutrition is actually getting back into my body.

Yes...This is my experience too. I feel so much better, but after 2 months gluten-free I am having D once a day (usually) instead of several times. I have also had 4 pretty normal bms! That's 4 more than I'd had in the last year, so I guess that's good!

However I do notice now that if I get some wheat in accidentally....wow! I'm *really* sick. Much worse than before!

Maggie1956 Rookie

I've put 1-3 months. I started on the gluten-free diet last December and in a lot of ways I am feeling a bit better. Still have a long way to go though.

It's a good Poll. :)

Guest gillian502

I've been gluten-free for about 18 months now, and have come to accept that with a life-threatening auto-immune disease, sadly, a person isn't ever really going to be 100%. At least that's been my experience. I am much better, but still unable to work or really get on with life as I previously knew it. I have a few other health probs, too, though, so that factors in as well. As far as the celiac disease, I'd say I'm about 75% better, and have stopped waiting for that "100%" day.

lotusgem Rookie

I started to feel better almost immediately, as far as the bloating, gas and cramps. After two weeks, though, major changes were coming about; things that I never dreamed were related to Celiac disease. Such as: my skin...I had always lamented that it wasn't very healthy looking or feeling. But after just two weeks on the diet it became soft and smooth. Also, I had been going through agony every morning, having to drag myself out of bed because I had widespread muscular back pain that stayed with me all day long. One day, I realized that the pain had TOTALLY vanished, and it has not come back! Also, no more constipation. I'm even starting to gain a little weight. I feel very sorry for the people that have been on the diet but still feel sick. It doesn't seem fair.

I wish for them wellness and happiness!

anerissara Enthusiast

That's exactly how I felt! Within a week or so, no more bloating or gas. The first thing I noticed after that was mood...I wasn't anxious, which had been bad enough to wake me up at night. I hadn't realized how moody I had been until I felt better! Then, my skin cleared up! People keep saying I look healthier. I would never have connected celiac disease and back pain, and didn't notice that the pain was gone at first (I had lower back pain, too)...but boy when I got glutened and it came back I sure noticed! It's good to know that someone else had that experience.

lotusgem Rookie

Dear Anerissara,

thank you so much for your post, because now, I too know that someone else had this experience. Also, during the 7 months that I have been gluten-free, I've had 2 accidents, and both times my reaction was, like yours, worse than before. So this is also something I had wondered about; it's interesting to compare notes!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,743
    • Most Online (within 30 mins)
      7,748

    MistyMoon
    Newest Member
    MistyMoon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.