Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Done, Started gluten-free Tonight


sugarsue

Recommended Posts

sugarsue Enthusiast

We got dd's blood test taken and she is now happily eating brown rice pasta with non-dairy butter! I bought the tinkadyada pasta and it looks like it's a hit. That said, she is the type to change her mind a few times so time will tell. She cried and cried when she realized this means no more McDonalds Happy Meals (her favorite thing besides pasta with butter). The lab does not process celiac panel's except on Friday's. If I had known that I would have taken her in last week! Oh well, we shall see what happens in 2 weeks or so. But we are committed to the gluten free diet for the next 3-6 months for sure to see how it will change our lives.

Susan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacMom2008 Enthusiast

Good luck! It's difficult at first, but it can become very doable.

As for those Happy Meals - is it the food or the prize? For my son it was the prize. He asked me this summer if I'd get him a Happy Meal so he could have the Transformer prize he'd seen advertised. He got the apples and prize and I got a disgusting hamburger. I figured it was really no big deal to do. Actually we did it twice this summer. The second time I ate a couple bites of the burger and decided there was no reason to shorten my life over the prize and pitched it! :lol:

Stick around here and ask lots of questions in the coming weeks. We'll all be glad to help you find your way to a great gluten free lifestyle!

sugarsue Enthusiast

Thanks! Great suggestion about the toy. I'm not sure what it is for her but I will ask. So she can have the apples and the dip??

She was really upset tonight that she could not have her favorite pasta. But I made her turkey bacon and she had some pinapple and funyons. Then we made rice crispy treats out of fruity and coco pebbles. It was a junk food evening but we had a really nice time together.

Susan

Gemini Experienced
We got dd's blood test taken and she is now happily eating brown rice pasta with non-dairy butter! I bought the tinkadyada pasta and it looks like it's a hit. That said, she is the type to change her mind a few times so time will tell. She cried and cried when she realized this means no more McDonalds Happy Meals (her favorite thing besides pasta with butter). The lab does not process celiac panel's except on Friday's. If I had known that I would have taken her in last week! Oh well, we shall see what happens in 2 weeks or so. But we are committed to the gluten free diet for the next 3-6 months for sure to see how it will change our lives.

Susan

Could you please elaborate on what non-dairy butter you use? I am having allergy issues with congestion and think I would like to do a trial dairy free diet, on top of the gluten-free one. I have not eliminated dairy up to this point so have no idea what good substitutes are out there.

Good luck with your daughter! I am sure she will find good substitutes for her favorite foods. I did and now it's no big deal. Think how healthy she'll be without McDonald's in her life!

ShayFL Enthusiast

Butter sub doesnt taste like butter - tastes better - much healthier. Mix equal parts high quality coconut oil and olive oil. Refridgerate. Use as a spread on bread or for veggies.

sugarsue Enthusiast
Could you please elaborate on what non-dairy butter you use? I am having allergy issues with congestion and think I would like to do a trial dairy free diet, on top of the gluten-free one. I have not eliminated dairy up to this point so have no idea what good substitutes are out there.

Good luck with your daughter! I am sure she will find good substitutes for her favorite foods. I did and now it's no big deal. Think how healthy she'll be without McDonald's in her life!

Thanks for the encouragement! Our doc recommended Organic Smart Balance for our butter. It's the only non-dairy stuff my kids have liked. I like it too and luckily it says gluten free too!

Susan

Gemini Experienced
Butter sub doesnt taste like butter - tastes better - much healthier. Mix equal parts high quality coconut oil and olive oil. Refridgerate. Use as a spread on bread or for veggies.

Now that's an interesting combination! I admit I love the taste of butter but if I found something that was good, I could easily give the butter up....just like I did with gluten. Would this be usable in baking also? Does the texture come out good in baked goods, using this as a substitute? It's funny but most people have no idea about the uses of coconut oils and flours. From what I have heard, coconut flour works extremely well in baked goods....who knew?

Thanks for the suggestion!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced
Thanks for the encouragement! Our doc recommended Organic Smart Balance for our butter. It's the only non-dairy stuff my kids have liked. I like it too and luckily it says gluten free too!

Susan

Thanks, Susan! These 2 have been written down and I will try both. I thought it might be harder to dump the dairy, and I am not sure if I can tolerate small amounts, but lately, I have been having problems that point to a dairy issue. I know it's allergy season but when you wake up in the middle of the night coughing because of all the junk in your throat, it's time to look at food again. I have heard repeatedly that dairy is a big mucous producer, and that makes sense, but I need to find a few subs for what I feel I don't want to give up right now. Speaking of which....has anyone tried Silk Soy creamer for coffee? I like soy milk latte's but have never tried the creamer in brewed coffee.

I guess we should be grateful there are so many alternatives these days! I certainly give you credit for pulling your kids off of dairy......that has got to be hard for them at first.

sugarsue Enthusiast
Thanks, Susan! These 2 have been written down and I will try both. I thought it might be harder to dump the dairy, and I am not sure if I can tolerate small amounts, but lately, I have been having problems that point to a dairy issue. I know it's allergy season but when you wake up in the middle of the night coughing because of all the junk in your throat, it's time to look at food again. I have heard repeatedly that dairy is a big mucous producer, and that makes sense, but I need to find a few subs for what I feel I don't want to give up right now. Speaking of which....has anyone tried Silk Soy creamer for coffee? I like soy milk latte's but have never tried the creamer in brewed coffee.

I guess we should be grateful there are so many alternatives these days! I certainly give you credit for pulling your kids off of dairy......that has got to be hard for them at first.

I like the soy creamer. I have used that when I've been off dairy in the past. Sounds like a trial run would be good for you!

Gemini Experienced
I like the soy creamer. I have used that when I've been off dairy in the past. Sounds like a trial run would be good for you!

Nice to hear! I hate buying anything without asking first if other's have tried it and what their opinion is because of the expense of these products. Although.....I buy organic milk now and that isn't exactly cheap! :huh:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,913
    • Most Online (within 30 mins)
      7,748

    Jennrhart
    Newest Member
    Jennrhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.