Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Received Celiac Home Test Kit Today

dizzygrinch

Recommended Posts

dizzygrinch Enthusiast
dizzygrinch
Posted

Well, I received the Biocard Home Celiac Test today, so Im going to test myself in a bit. Not sure if anyone here is interested, but Ill post my results. If you want to research what this test is, you can go to celiachometest.com and I found it to be very informational....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

I would really love to know. That's the first time I've ever seen that website, very interesting. There's some unaccounted for variables, but assuming it's sensitive enough to pick up one drop of blood, that's essentially what dr's test for.

Keep us posted!

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author

Well, I did the test tonight, and, I pretty much think I messed it up. First, as we were getting it around, my husband spilled the buffer, a little bit dropped out, then, after we put the test strip in, bumped it a couple of times... so... I did get a control test line showing, waited the alloted time frame, and according to the test strip I would be considered normal. But, Im wondering how accurate it is.. we only spilled a few drops, but, I dont know... so, I think Im just going to gluten free and forget about tests, Im so annoyed!!!! anyhow, thats how that went!! should I re do the test, or just try the diet??

mftnchn Explorer
mftnchn
Posted

That's a bummer. I have read about the test. Does it now include the part that checks for a low total IgA? If not, it will have the same problem as regular blood tests if that is also not checked. I read that the new version of the home test would include that.

I think I would be concerned that you didn't get the correct response on the test. Can you contact the company and ask?

Remember that some people get a positive biopsy with negative blood tests. Some are negative on both tests but respond positively to diet.

Also remember that all testing except Enterolab or gene tests or total IgA have to be done before going gluten free for most people to test positive.

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author

Hello! I dont think it tested for total Iga, because I read on their that some people that might be IGA deficiant, will not get a correct reading. I figure that since we spilled a tiny bit, even though I really dont think it was enough to matter, that Im not going to be too concerned. Im just going to try the gluten free diet, and someday if I can afford it, I will try Enterolabs. I would demand doctors to test, but I am uninsured, and have been for nearly a year, and Im just so sick of being sick. All my syptoms sound like could be related to celiacs, so, how can the diet hurt?? hopefully, Ill just get better :)

Guhlia Rising Star
Guhlia
Posted

Dizzy, the diet won't hurt you and it will most likely give you some answers, either way. I hope you've found your answer because Celiac is so easy to control once you master the diet. Also, remember that the diet takes 100% compliance and it may take months for you to feel a difference (though some do feel better after hours, days, or weeks). For me it was instantaneous, that doesn't mean it will be for you though. There are many on here who took months to start feeling better. Good luck and don't forget that we're always here for support!

  • 4 weeks later...
dixonpete Community Regular
dixonpete
Posted

I just took the test and it showed negative. I put that up the effect of a gluten-free diet for the last 4 months. I certainly do have Celiac Disease since I get terrifically sick with diarrhea whenever I run into gluten in any form.

Just let this be a warning. Do not take the test unless you are on a gluten diet. I knew this but didn't observe it because of just how sick I get. Three years of diarrhea stopped the day after I stopped eating gluten. Good enough for me. I was just hoping that the test would put the medical stamp of approval on my illness.

Well, I received the Biocard Home Celiac Test today, so Im going to test myself in a bit. Not sure if anyone here is interested, but Ill post my results. If you want to research what this test is, you can go to celiachometest.com and I found it to be very informational....
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LuvMoosic4life Collaborator
LuvMoosic4life
Posted

If I were you I would go to the doc and get tested if you are still on gluten. even if they are negative the gluten-free diet wouldnt hurt (after the testing of course!) Its just good to know if you have celiac or not!

I wish I had the opportunity to have a doctor when I found out gluten may be the cause to my probs....now Im gluten-free and cant get tested, and kinda in a bad situation with my doc....no fun

dally099 Contributor
dally099
Posted

hi i have used this test on my kids, i have had to go back on gluten so i havnt done mine yet. i like the idea of using it for a pre screener thouugh, and only 50 bucks is rather nice, if your on gluten still i would go to your doc and get tested.

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author

hi dixonpete, I am back to being gluten free, may I ask, is that how you realized you were gluten intolerant? Im just coming to that conclusion because I get very sick, when I eat foods that contain gluten. And, since I obviousely feel better off of it, what can it hurt? Im at the point where I realize getting a diagnosis from a doctor really isnt that necessesary for me, because after 20+ yrs of being sick, and told only IBS, but never getting any help from the docs, that I just have to do whats best for me. anyway, just interested in how you were "diagnosed" thanks!

TracyB Apprentice
TracyB
Posted
Well, I received the Biocard Home Celiac Test today, so Im going to test myself in a bit. Not sure if anyone here is interested, but Ill post my results. If you want to research what this test is, you can go to celiachometest.com and I found it to be very informational....

I posted info. about that test last week -you'll have to let me know how it goes. Are you in Canada? I know that it said that it couldn't be shipped to the U.S. - hopefully that has changed...

TracyB

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author
I posted info. about that test last week -you'll have to let me know how it goes. Are you in Canada? I know that it said that it couldn't be shipped to the U.S. - hopefully that has changed...

TracyB

Hi, actually, did do the test, but it did show up negative. Although, we accidently spilled some of the solution, I think its called buffer? but, I dont know if that messed it up or not, so, I dont know if it was accurate. I am in the U.S., but, I was able to cantact the actual manufacturer, and I was given information about an organics company from Australia, that is where I got it from. It was the exact same test. were you able to do the test yourself?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities. Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement. 130 times the safe upper limit. 130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms...
    2. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    3. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    4. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    5. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,142
    • Most Online (within 30 mins)
      7,748
    Mark Conway
    Newest Member
    Mark Conway
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.