Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Spaced Out And Ate Some Cake


susanm

Recommended Posts

susanm Apprentice

I'm newly gluten-free (2 weeks). I went to my son's cross-country meet. They had some yummy chocolate cake. I totally forgot about my diet. My son came over with a piece of cake, and I went "yummm" and took 2 forkfulls of heavenly...oops! Ah, darn it! My son suggested I spit it out, but it was too late, I swallowed it.

I don't know if this was a real reaction or if it was in my head, but 5 minutes after I swallowed the cake, I started cramping up. When I got home, I pooed out mucousy stuff (sorry). I mean, I've only been gluten-free for 2 weeks! Why should I have such a strong reaction?

Anyway, how long does it take before you always consider everything that you put in your mouth and stop spacing out? It's still so new.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DarkIvy Explorer

You know, I did something really similar once when I first went gluten free. My parents took me out to this pizza restaurant that does gluten-free pizza on request and we're all sitting around eating... it was happy hour, so my parents each ordered some beer. We live in an area that's kind of obsessed with "good" beer, so naturally I wanted to try it. Without even thinking, I picked up my mom's glass and had a swig, just to try it.

It dawned on me the second I set the glass back down that I was at a celiac friendly restaurant ordering gluten-free pizza, and that I had just taken a gigantic drink of BEER.

Oops.

As for your reaction, everyone is different. I know some people who react nearly instantly to gluten, the way you did. Plus, if you've only been gluten-free for two weeks, your body is no doubt still trying to clear out all the gluten you've been eating your entire life. It takes a while for all of it to go away. You probably reacted very strongly because of the combination of new and old gluten... It probably just kicked your body back into it's old default mode.

Don't be too hard on yourself though, trust me, everyone has made some pretty silly mistakes. This is one heck of an easy diet to screw up, that's for sure. I hope you feel better soon though!

sansglutengrl Explorer

Hi Susanm!

Welcome to gluten free life! And don't worry, I'm sure now that you've accidentally glutened yourself and are already feeling the effects it won't happen too often in the future. ;) Keep in mind that this is a major life change you've just embarked on, and it'll take a little while to get used to. We ALL make mistakes in the beginning.

As for your reaction - people are really and truly ALL over the map when it comes to this. Some talk about getting a reaction almost immediately, some say that it always takes 4 hours, etc. etc. The cramping is always how I know - and I've had really fast reactions, and ones that take almost an entire day - but that cramping is unmistakable for me. The longer you are gluten free the more you'll figure out about your body and the way you react.

For the time being, sip some ginger ale and get yourself a heating pad. ;)

Good luck!

MNBeth Explorer

I don't think it will take too many more episodes like this one to put you on your guard! :o

We're all different. I had wondered for a loooong time whether I might be gluten intolerant, and my dad has celiac, so I was well familiar with the drill. But I think it was also just in sync with my nature for me to become sort of food-obsessed. I never forgot - having to be gluten free was all I could think about. A year later it's still always pretty near the forefront. But then, we do need to eat every day...

lizard00 Enthusiast

Somewhere in between my second and third week I did something like that, too. I had done so much research to figure out what to eat/not eat during my elimination diet, and learned all the different ways that wheat can be called... or so I thought.

Then we went out for greek food, and I got tabbouleh thinking that I was all smart... but what does tabouleh have but bulgur, or cracked wheat. Was NOT a pleasant afternoon. Didn't make that mistake again, and I made sure I really knew all the forms of gluten. The beginning is rough, but it gets easier. Don't beat yourself up, we've all been there! ;)

HAK1031 Enthusiast

heh, we've all done it. even after several months gluten-free, I was at a friend's bday party (she also has celiac) and there was a bowl of cooler ranch doritos, which are gluten-free, and nacho cheese ones, that have wheat. after a wonderful night of veggies and dip and glutino pretzels and cake, i reached into the wrong bowl and didn't realize it until the chip was in my mouth :o always pay attention!

DarkIvy Explorer
Somewhere in between my second and third week I did something like that, too. I had done so much research to figure out what to eat/not eat during my elimination diet, and learned all the different ways that wheat can be called... or so I thought.

Then we went out for greek food, and I got tabbouleh thinking that I was all smart... but what does tabouleh have but bulgur, or cracked wheat. Was NOT a pleasant afternoon. Didn't make that mistake again, and I made sure I really knew all the forms of gluten. The beginning is rough, but it gets easier. Don't beat yourself up, we've all been there! ;)

Oh no!

My mom used to make tabouleh a lot as a healthy snack. I loved that stuff, too. When I was about 15 or so, a good five years before I realized I couldn't eat gluten, it made me really sick. I actually threw up, and I am one of those people that rarely, rarely, rarely does that. I never could enjoy it again after that. I really wish we would have put the clues together BACK THEN, it would have saved me a whole world of trouble in the long run.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Quinoa makes delicious tabouleh. :) When I try grains again...if I do...I will make this again. It is really good.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.