Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing Results


holiday16

Recommended Posts

holiday16 Enthusiast

I called and order a gluten flow through test from Open Original Shared Link and they told me that this new product is coming soon. What I ordered is generally not for personal use, but the lady I spoke with said that any day now they will have test strips that you can use for personal use to test for gluten. They said it was in response to celiacs who want to test food themselves. I don't know alot of detail except they would be in packs of 5, 10, 25 and she said they would be affordable. She said they will also have website ordering which at this time they don't have. Should be interesting to see how the product works, sensitivity etc. She said when it's available it will be on the website.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 150
  • Created
  • Last Reply
highrentsmile Rookie

That is so interesting! Hmm, I wonder if it could be used for beauty products and cleaning products too.

holiday16 Enthusiast
That is so interesting! Hmm, I wonder if it could be used for beauty products and cleaning products too.

The way she described them it sounded like you would be able to. I was just thinking today I wish I had them because I had something last night that I'm suspect of and I wish I could test it. These strips would be great for tracking back things to see just what you reacted to. I was also thinking there's this chinese restaurant that I would love to try that says they can do gluten free, but I'm always very cautious so haven't tried it. With these test strips I could get takeout for all of us and test it at home to be sure it's o.k. I can see how this would open up so many more possibilities for us since I now have 4 of us that have to avoid gluten. I'm anxious to see how sensitive they are and how well they will work...

lemon Newbie

I very nearly almost shed a tear of happiness when reading this, haha. I hope they come out soon!!

ravenwoodglass Mentor

I hope these become available soon. It would be a dream come true for us, wonder what will happen when we all start testing stuff, meds in particular, and we start making phone calls. Hmmmmm

Jason8080 Newbie
I called and order a gluten flow through test from Open Original Shared Link and they told me that this new product is coming soon. What I ordered is generally not for personal use, but the lady I spoke with said that any day now they will have test strips that you can use for personal use to test for gluten. They said it was in response to celiacs who want to test food themselves. I don't know alot of detail except they would be in packs of 5, 10, 25 and she said they would be affordable. She said they will also have website ordering which at this time they don't have. Should be interesting to see how the product works, sensitivity etc. She said when it's available it will be on the website.

How much was it? And if it is not for personal use yet what is it for?

What a blessing that would be......

Thx,

Jason

home-based-mom Contributor
I called and order a gluten flow through test from Open Original Shared Link and they told me that this new product is coming soon. What I ordered is generally not for personal use, but the lady I spoke with said that any day now they will have test strips that you can use for personal use to test for gluten. They said it was in response to celiacs who want to test food themselves. I don't know alot of detail except they would be in packs of 5, 10, 25 and she said they would be affordable. She said they will also have website ordering which at this time they don't have. Should be interesting to see how the product works, sensitivity etc. She said when it's available it will be on the website.

I'm not quite clear on how this would work. I can understand swirling the strip around in your Jamba Juice, but how would you check a salad or a bag of chips or a rice cake or . . . . ??? If the gluten protein were on the surface of a rice cake, you could tall if there was cross contamination, but what if it wasn't? What if it was on the inside? How could you touch every surface of every piece of lettuce in a salad? Or every surface of every french fry? Shake the strip up in the bag of chips and let the chips fall where they may? :lol:

You get my point. I wish the darn protein would fluoresce under a black light or do something unique when exposed to a certain energy wave length.

Sigh. Wishful thinking.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast
I'm not quite clear on how this would work. I can understand swirling the strip around in your Jamba Juice, but how would you check a salad or a bag of chips or a rice cake or . . . . ??? If the gluten protein were on the surface of a rice cake, you could tall if there was cross contamination, but what if it wasn't? What if it was on the inside? How could you touch every surface of every piece of lettuce in a salad? Or every surface of every french fry? Shake the strip up in the bag of chips and let the chips fall where they may? :lol:

You get my point. I wish the darn protein would fluoresce under a black light or do something unique when exposed to a certain energy wave length.

Sigh. Wishful thinking.

I, too, am interested. BUT... do I whip out the test strip at a restaurant during a business lunch/dinner? And then send the meal back if it registers positive for gluten?

I would say it won't eliminate cross-contamination and accidents. It would be more useful as a parlor-trip or to check some home-cooking ingredients. So, I'd probably buy it but it's not perfect.

~Laura

Sweetfudge Community Regular
You get my point. I wish the darn protein would fluoresce under a black light or do something unique when exposed to a certain energy wave length.

me too :)

I, too, am interested. BUT... do I whip out the test strip at a restaurant during a business lunch/dinner? And then send the meal back if it registers positive for gluten?

that's something i was wondering myself....

i actually had a coworker mention something like this "oh, wouldn't it be nice for you if they invented something that could detect gluten" and i laughed, cuz i was reading this post last night :)

RiceGuy Collaborator

I'm thinking such a strip could be used to detect a glutening, like to rule out other reactions. In other words, use it like a pregnancy test? Or would gluten only show in the other stuff? :ph34r:

I can't believe I'm even thinking this.

home-based-mom Contributor
I'm thinking such a strip could be used to detect a glutening, like to rule out other reactions. In other words, use it like a pregnancy test? Or would gluten only show in the other stuff? :ph34r:

I can't believe I'm even thinking this.

From the original post, I believe the strips are for testing food before you eat it, not after! :lol::P

RiceGuy Collaborator
From the original post, I believe the strips are for testing food before you eat it, not after! :lol::P

Yeah, I have the same impression, but I like thinking creatively :)

  • 8 months later...
nask Newbie

Apparently there's a few different test strips available online at Open Original Shared Link. Anyone have thoughts on which they might use?

ShayFL Enthusiast

Why not just stick with whole foods? Im not going to whip out a blender in a restaurant and puree my food with water and then test it. You take a chance whenever you eat out or eat questionable foods or foods you didnt make yourself. These tests wont change anything.

I would only find them useful for liquids like rice milk. If I drank rice milk.

If a food makes you sick, do you need to test it? Why not, dont eat that food again?

Just me. Another way for a greedy company to make money off of silk folks......

Mike M Rookie

TIME OUT!!! ShayF I have tested a boat load of different items with this test kit and it has worked flawlessly every time. This is NOT a greedy company. This test kit has been a Godsend to those of us who are extremely gluten sensitive. I don't want ANY gluten in my system if I can avoid it. Besides, I can't even take just a little bit of gluten.....Sick for days......I don't test everything that goes in my mouth or on my body, but I do test new products that I want to use for a baseline of seeing if they are OK. And I like variety, this gluten deal is so limited. If the technology is available to test for gluten (and it does) Why not use it and know for sure? Especially if it is a product that you want to use everyday? I'll give a prime example....I had this mystery glutening occurring and could not for the life of me figure it out. I had (by elimination) narrowed it down to something during my shower. I use a bar of soap to shave with in the shower (My logic is to limit the amount of products/ingredients to as little as possible and hopefully lesson the odds of gluten exposure) when I would get finished, within 20 minutes I would get a gluten reaction. Some soap would get in the corners of my mouth. So I tested my bar of organic soap and sure enough, high positive for gluten. Nothing in the ingredients at all even gave a hint of gluten. This is a product I was using EVERY single day! I was getting glutened off of a particular paper plate for crying out loud. What a sad state of affairs this board has turned into in my opinion. This is America and we do have freedom of speech, but I don't understand flaming a product/company when you don't have a clue? Man oh Man.......Mike

Jenny (AZ via TX) Enthusiast

Mike, as nask mentioned there are a few different test strips. Which kind do you use? Actually, I think the test strips would be great to use. I wouldn't use it all the time. I think they would work well if say you ate five different foods one day, thinking each to be gluten-free. You get sick anyway and don't know which food made you sick. This test may be able to rule it out for you. I've been in that situation before. Instead of doing a challenge and risking being sick, I just won't eat the food again and still don't know what made me sick.

Mike M Rookie
Mike, as nask mentioned there are a few different test strips. Which kind do you use? Actually, I think the test strips would be great to use. I wouldn't use it all the time. I think they would work well if say you ate five different foods one day, thinking each to be gluten-free. You get sick anyway and don't know which food made you sick. This test may be able to rule it out for you. I've been in that situation before. Instead of doing a challenge and risking being sick, I just won't eat the food again and still don't know what made me sick.

Hi Jenny, The link to the company that I use is on the first post of this topic Elisa Technology. I was told the last time I ordered kits, that they soon will have a new dedicated web site just for the test kits and I agree, these work good for testing a new product and then back tracking if you need too (post glutening). It has been shocking for me to say the least at the number of products that test gluten positive but also lots of other favorites that test negative. And I'll say this for the record again....I am not affiliated with this company in any way. Just know a great product when I see it...... All the best, Mike

ShayFL Enthusiast
Just me.

I didnt come in to question their accuracy AT ALL. They ARE another company making money off of sick people whether the product works or not. The gluten-free industry is growing by leaps and bounds and we are price gouged at the check out lane EVERY day!! The gluten-free industry is greedy.....very greedy indeed.

I am happy to see your opinion. Everyone has value even if we dont agree with what they say.

jsb727 Newbie
Apparently there's a few different test strips available online at Open Original Shared Link. Anyone have thoughts on which they might use?

This is so funny, because I've been thinking someone should invent something like this! Looks like they already have! I was picturing something like the lead testing strips they sell at the home improvement stores. Funny. Guess now I can't take credit for thinking it up first. :P

roxnhead Rookie

As the new kid I can't help but agree with Jenny. Having something to test for foods that have "flavorings"or "spices"or ? So many names and definitions- terms for gluten. Anything that would make this sometimes daunting task easier is really appreciated. Also, whole foods are great but we are already limited to what is safe for us to eat why would I want to limit myself even further when there are gluten-free foods that are safe and healthy. Thanks to all that offer these helpful alternatives- shout-out to Mike Yeh Baby!

Lisa Mentor
I was getting glutened off of a particular paper plate for crying out loud. What a sad state of affairs this board has turned into in my opinion. This is America and we do have freedom of speech, but I don't understand flaming a product/company when you don't have a clue? Man oh Man.......Mike

Mike, a paper plate? Can you verify that that paper plate contained gluten? Live by whatever means you need to, but when it comes to product verification on this site, prepare to back it up with fact.

Feel free to voice your opinion, but don't be surprised when other may disagree. Disagreement should not be viewed as a personal insult to a person or a product.

Mike M Rookie

"Mike, a paper plate? Can you verify that that paper plate contained gluten? Live by whatever means you need to, but when it comes to product verification on this site, prepare to back it up with fact."

Paper plate.

Lisa Mentor
"Paper plate.

Yes? Paper plate?

psawyer Proficient

"Paper plate" :blink:

I have been gluten-free for over eight years, and in that time I have never encountered a paper product that contained gluten. Not one. I have also not found any case where the stories about the adhesives holding paper products to the rolls were substantiated.

If you have any hard evidence to support your allegation, please provide it for us.

Lisa Mentor
"Paper plate" :blink:

I have been gluten-free for over eight years, and in that time I have never encountered a paper product that contained gluten. Not one. I have also not found any case where the stories about the adhesives holding paper products to the rolls were substantiated.

If you have any hard evidence to support your allegation, please provide it for us.

Nor have I Peter.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Labs ? Awaiting in person follow up with my GI

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    3. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    4. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Labs ? Awaiting in person follow up with my GI

    5. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Labs ? Awaiting in person follow up with my GI

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,166
    • Most Online (within 30 mins)
      7,748

    AmynDevyn
    Newest Member
    AmynDevyn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.