Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Something New Going On


angieInCA

Recommended Posts

angieInCA Apprentice

Recently I have been experiencing a slightly swollen tongue. Not all the time but every couple of days for a few hours. It seems to get puffy and ruffled along the edges. It does not hurt and is not sensative but does feel slightly numb near the tip on top. I can't seem to figure out what might be causing it. I've been gluten free for 6 weeks with just a few mishaps.

Any suggestions as to what might be causing this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Didn't I read on another thread about a poster who felt her tongue swelling traced to MSG? I would look to your foods again. It sounds like an allergic reaction.

ShayFL Enthusiast

If at some point the swelling seems constant, consider thyroid. Hypothyroid states will cause the tongue to swell. Just another thought.

RiceGuy Collaborator

I think I heard someplace that dehydration can cause the tongue to swell, but I'd hope by that time you'd feel really thirsty.

My guess is also on the allergic reaction.

angieInCA Apprentice

My first thought was dehydration too but I drink pleanty of water and I've been very aware of my intake since this has started. I've avoided MSG but I suppose I could have missed some somewhere.

I'm thinking allergic reaction also but I haven't started consuming anything new, more like I've eleminated alot from my diet.

Hadn't realized a Hypothyroid could cause tongue swelling.

GlutenGuy36 Contributor

Look into a possible Candida Albicans problem. It is yeast and it can go hand in hand with Celiac Disease. My tongue was doing the same thing and my GI doctor scoffed at the thought of Candida. Some times they are unwilling to diagnose it. You can cut out sugar and anything that is easily converts to sugar and see if that helps. I know its hard when your diet is already restricted. I know first hand.

  • 4 months later...
angieInCA Apprentice

I have asked 3 different doctors about my tongue swelling (it is doing it more frequently) and all of them have said to drink more water and to pay attention to a possible food allergy.

Today I saw my endocrinologist and asked her what could possibly cause it. She asked to see my tongue then immediately said "It's a B12 deficiency." I got a B12 shot in the office. She said a deficiency in B12 would cause swelling and ruffling of the edges, a very commin side effect. :huh:

My question is why does it seem Doctors know so little? Three either didn't care to think or really didn't know :blink: I don't ask them to be God's but I wish they would pay a bit more attention. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Wow--at any rate, I'm glad you finally got an answer. Hope this does the trick :)

MomToACeliac Newbie

I hope you found the answer to your condition. Allergy sounded the most obvious and although individuals on a gluten-free diet do in fact eliminate many foods from their diet, do keep in mind you may be introducing new foods and ingredients into your body as well. You can never be sure. My son never ate quinoa pasta or corn pasta prior to being gluten-free. And hardly ate rice. So many natural and organic ingredients are found in gluten-free foods and unless you were an avid healthy and organic consumer to begin with, perhaps some of these foods or ingredients can be the cause for allergic reactions in some individuals. I have had Hypothyroidism for over 2 years now and I have never had swelling of the tongue. But we in fact are all different. Odds are you will know if you have a thyroid condition. Sore joints, muscles, fatigue, loss of hair, weight gain/loss, depression. There are other symptoms as well. Hopefully your doctor checked your labs for low vitamin levels, anemia, diabetes and hypothyroidims since these can be associated with Celiac Disease.

Best of luck to you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,753
    • Most Online (within 30 mins)
      7,748

    Kim Schardan
    Newest Member
    Kim Schardan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
    • Wheatwacked
      Zinc glyconate lozenges (Cold Eeze) helps fight off viral respiratory infections by coating the mucous membrane cells to protect them from virus.  Zinc is an antiviral essential mineral. Choline deficieicy can be the cause of Non Alcoholic Fatty Liver Disease.  It is estimated by some experts that less than 10% eat the minimum RDA of around 450 mg.  It has also been connected to gallbladder disease.  Brain fog and high homosystein blood level is an independant indicator of cardiovascular disease. Eggs and red meat are the primary sources.  Three eggs or 10 cups of cooked brocolli a day.  Low vitamin D is a common denominator of autoimmune disease.  Is it a contributing factor or a result? I think that low vitamin D is maybe the main contributing factor.  Low vitamin D allows the immune system to run amuck. I would like to point out the many diagnosed with Celiac Disease went through several misdiagnoses, like gall bladder disease, and were repeatedly tested negative and then one day tested positive. Regardless of your diagnosis, you should avoid gluten, you mention it in your first post : "When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal". It can take six months to several years to heal completely.  How long I believe is directly related to how quickly you identify deficiencies and correct. Essential to my recovery:  Thiamine, 10,000 IU vitamin D3 a day, maintaining 25(OH)D at 80 ng/dl (200 nmole/L), 600 mcg Liquid Iodine, Phosphatidyl Choline.  And of course: Gluten Free.
    • RMJ
      Not all of King Arthur’s gluten free flours and baking mixes are certified gluten free. This bread flour is not. 
    • knitty kitty
      Bump up your thiamine dose!  You can take more if you don't feel anything after the first one.  Must needs getting to that 500mg. We need more thiamine when we're fighting an infection.  Zinc will help fight infections, too, as well as Vitamin C. They all work together. Hope you feel better!
    • knitty kitty
      Welcome to the forum, @MagsM, I had Meniere's.  Meniere's is caused by deficiencies in Thiamine, Niacin, and Vitamin D.  Celiac Disease causes malabsorption which affects all the essential vitamins and minerals. The B vitamins work in concert together like an orchestra.  Having a Folate deficiency suggests other B vitamin deficiencies as well.  Folate needs Pyridoxine B6 and Thiamine B1 to work properly with Cobalamine B12.  Doctors are not required to take many courses in nutrition, and often don't recognize deficiency symptoms or how to correct them.  Blood tests are not an accurate measurement of vitamin deficiencies inside cells.  Low iron correction requires copper and zinc as well as Thiamine and Riboflavin.    Yes, anemia can affect the production of antibodies and cause false negatives on tests for Celiac.  Diabetes and Thiamine deficiency can also cause false negatives.  An endoscopy with biopsy would be a more accurate method of diagnosis for you.   I studied Nutrition before earning a degree in Microbiology because I wanted to know what the vitamins were doing inside the body.  Vitamins are chemical compounds that the body cannot make, so we must get them from food and supplements.  After a few vertigo episodes and suddenly going deaf for a while, I researched and found that supplementing with  Thiamine in the form TTFD (tetrahydrofurfuryl disulfide), Niacin and Vitamin D resolved the issue.   Please ask your nutritionist for further vitamin deficiency tests.  A B Complex, TTFD, Vitamin D should help you recover quickly.   Keep us posted on your progress!
×
×
  • Create New...