Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Something New Going On


angieInCA

Recommended Posts

angieInCA Apprentice

Recently I have been experiencing a slightly swollen tongue. Not all the time but every couple of days for a few hours. It seems to get puffy and ruffled along the edges. It does not hurt and is not sensative but does feel slightly numb near the tip on top. I can't seem to figure out what might be causing it. I've been gluten free for 6 weeks with just a few mishaps.

Any suggestions as to what might be causing this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Didn't I read on another thread about a poster who felt her tongue swelling traced to MSG? I would look to your foods again. It sounds like an allergic reaction.

ShayFL Enthusiast

If at some point the swelling seems constant, consider thyroid. Hypothyroid states will cause the tongue to swell. Just another thought.

RiceGuy Collaborator

I think I heard someplace that dehydration can cause the tongue to swell, but I'd hope by that time you'd feel really thirsty.

My guess is also on the allergic reaction.

angieInCA Apprentice

My first thought was dehydration too but I drink pleanty of water and I've been very aware of my intake since this has started. I've avoided MSG but I suppose I could have missed some somewhere.

I'm thinking allergic reaction also but I haven't started consuming anything new, more like I've eleminated alot from my diet.

Hadn't realized a Hypothyroid could cause tongue swelling.

GlutenGuy36 Contributor

Look into a possible Candida Albicans problem. It is yeast and it can go hand in hand with Celiac Disease. My tongue was doing the same thing and my GI doctor scoffed at the thought of Candida. Some times they are unwilling to diagnose it. You can cut out sugar and anything that is easily converts to sugar and see if that helps. I know its hard when your diet is already restricted. I know first hand.

  • 4 months later...
angieInCA Apprentice

I have asked 3 different doctors about my tongue swelling (it is doing it more frequently) and all of them have said to drink more water and to pay attention to a possible food allergy.

Today I saw my endocrinologist and asked her what could possibly cause it. She asked to see my tongue then immediately said "It's a B12 deficiency." I got a B12 shot in the office. She said a deficiency in B12 would cause swelling and ruffling of the edges, a very commin side effect. :huh:

My question is why does it seem Doctors know so little? Three either didn't care to think or really didn't know :blink: I don't ask them to be God's but I wish they would pay a bit more attention. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Wow--at any rate, I'm glad you finally got an answer. Hope this does the trick :)

MomToACeliac Newbie

I hope you found the answer to your condition. Allergy sounded the most obvious and although individuals on a gluten-free diet do in fact eliminate many foods from their diet, do keep in mind you may be introducing new foods and ingredients into your body as well. You can never be sure. My son never ate quinoa pasta or corn pasta prior to being gluten-free. And hardly ate rice. So many natural and organic ingredients are found in gluten-free foods and unless you were an avid healthy and organic consumer to begin with, perhaps some of these foods or ingredients can be the cause for allergic reactions in some individuals. I have had Hypothyroidism for over 2 years now and I have never had swelling of the tongue. But we in fact are all different. Odds are you will know if you have a thyroid condition. Sore joints, muscles, fatigue, loss of hair, weight gain/loss, depression. There are other symptoms as well. Hopefully your doctor checked your labs for low vitamin levels, anemia, diabetes and hypothyroidims since these can be associated with Celiac Disease.

Best of luck to you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,027
    • Most Online (within 30 mins)
      7,748

    Rick Yaehne
    Newest Member
    Rick Yaehne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.