Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"Super Sensitive" Celiacs.....

jerseyangel

By jerseyangel
in Super Sensitive People

Recommended Posts

Del Rookie
Del
Posted

Thanks for the reply, Lisa. I'm allergic or super sensitive to all medications so no, I did not take antibiodics. I did cough so badly that my entire insides ached for days.

Del

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 477
  • Created
  • Last Reply
JNBunnie1 Community Regular
JNBunnie1
Posted
Thanks for the reply, Lisa. I'm allergic or super sensitive to all medications so no, I did not take antibiodics. I did cough so badly that my entire insides ached for days.

Del

Probably cramping of some sort inside. Dont you hate when you cough so hard it makes you feel like vomiting?

Oceangirl: Can you have almonds, sunflowers seeds, cashews,or peanuts? You can take the butter of each of these and do this:

1 cup (whatever) butter

1 cup sugar

1 egg

Mix, make baby cookies, for some reason they come out better the smaller they are. I think they bae for 12 minutes at 325, but I'll double check a recipe somewhere and get back to you. I have also read tha tpeople have successfully used 1 cup of honey instead of sugar. These freeze very well, also.

dilettantesteph Collaborator
dilettantesteph
Posted

I tested Arrowhead Mills green lentils for gluten to about 0.5 ppm and got a negative result. They are listed as negative on their website. It looks like they are a trustworthy company. Just in case anyone needs a good lentil source.

Del Rookie
Del
Posted

Probably cramping of some sort inside. Dont you hate when you cough so hard it makes you feel like vomiting?

Thanks for the reply! And, yes, I sure do hate it when you cough really hard!!! I think this is the worst cough I've EVER had!

You're probably right about a cramp....now it's gone!!

Del

oceangirl Collaborator
oceangirl
Posted

JNBunnie,

Yum, yes, I will try that- I do eat nuts.

Glad to hear the cramp is gone. The cough could easily have added to your issues. And, I DO know how to write the English language somewhat correctly. Grr.... I don't like it when I have numerous typos! sigh... Pet peeve in this "texting" age.

Patti,

I also get a little reacty, in a more bearable way, from Glutino mixes and I know I react to tapioca (in lots of them) and DEFINITELY to honey (the fructose, I think) which is also in a lot of them. I use them to bake for my son who is still at home and for company treats but don't partake myself too often. The pure rice flour, though, I've been pretty sure I don't react to. Of course, I spent a full year feeling that way about Frito-lay fritos which you helped me discover have CC issues!

tra la la- the joy of eating.

P.S. On another note, I ALWAYS knew, even at the age of 11, that FOOD was the problem... No one believed me. I just thought of this: At seventeen I stopped eating for nine months other than a boiled egg a day. They call this "anorexia"- I'm wondering if it was a survival technique? I had never been fat, played sports and was a tomboy. I lost enough weight to be 105 pounds (I was 5'9") and almost died. (That's when I woke up and chose to live) Still, it's interesting to me on many levels now that I rejected food...

Good health to all,

lisa

Del Rookie
Del
Posted

If the cough didn't add to my celiac disease issues I'd be greatly surprise but being set back this far, especially the Big D, is very discouraging. Hopefully I'll get back to where I was soon!!!

I did read your entire post and what you wrote about reacting to Honey caused my eyes to pop.....I used honey for my cough.....I wonder if that's what set me back? Hmmmmm

Elaine

Kaycee Collaborator
Kaycee
Posted

Hi Angie.

Well I gave up corn for a couple of weeks and thought, this hasn't made a difference. But I was going to stick with it for a bit longer.

Then I went away overnight with my parents and I had taken a few convenient things to eat, and there was corn/maize in the crackers and I didn't think it would be too bad, as I was a bit sceptical about it being a problem. But then next day after eating them I got the old creaky feeling back, specially in my feet. I had forgotten all about those feet. So maybe corn is that missing link to my problems.

This week, first week back at work for about 8 weeks has been running smoothly, and yes I am corn free. And yes I am more sociable and yes I am not as tired. But I am grumpy.

Cathy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ang1e0251 Contributor
ang1e0251
Posted
If the cough didn't add to my celiac disease issues I'd be greatly surprise but being set back this far, especially the Big D, is very discouraging. Hopefully I'll get back to where I was soon!!!

I did read your entire post and what you wrote about reacting to Honey caused my eyes to pop.....I used honey for my cough.....I wonder if that's what set me back? Hmmmmm

Elaine

Elaine,

Honey although very good for most people, does have a laxative affect. If you are eating too much, that would explain the D. Back off a little.

Del Rookie
Del
Posted

I had never even thought about that....guess I was willing to do ANYTHING to stop coughing my guts out! I haven't had honey for days but I guess I'm still paying for it!!!

oceangirl Collaborator
oceangirl
Posted

Honey is high in fructose. Many people cannot digest this sugar well. Could be the issue as well.

lisa

Del Rookie
Del
Posted

That most likely is the problem....I know I've had problems with fructose! We should come with instruction booklets!!

ang1e0251 Contributor
ang1e0251
Posted

I like peppermint hard candies for sad tummy and coughs!

Del Rookie
Del
Posted
I like peppermint hard candies for sad tummy and coughs!

I never thought about peppermint for coughs!!! I just took a peppermint capsule for my sore tummy!!! How are you feeling today?

Elaine

JNBunnie1 Community Regular
JNBunnie1
Posted
JNBunnie,

Yum, yes, I will try that- I do eat nuts.

Ok, checked the original recipe from gluten-free girl, 350, ten minutes.

oceangirl Collaborator
oceangirl
Posted

Thank you- I'm going to make some this weekend!

Jestgar and Fiddle -Faddle,

That's a very good idea for begging critters; I like that and will give it a try. Besides the new puppy, (Bruce-black lab), I have 2 other dogs, 6 cats (one three-legged one) and a bodacious rabbit that lives with us in the house.

Perhaps gluten made me lose my mind.....

lisa

Sailing Girl Apprentice
Sailing Girl
Posted

Does anyone have a recommendation for a "super-sensitive safe" brand of sugar? I don't normally use sugar (I mostly follow SCD), but I plan to make a flourless chocolate cake for my friend's birthday this weekend. Somehow, the mainstream sugar brands just frighten me -- perhaps I'm being paranoid? Does anyone use a specific brand of sugar regularly and find it to be safe?

Mike M Rookie
Mike M
Posted
Does anyone have a recommendation for a "super-sensitive safe" brand of sugar? I don't normally use sugar (I mostly follow SCD), but I plan to make a flourless chocolate cake for my friend's birthday this weekend. Somehow, the mainstream sugar brands just frighten me -- perhaps I'm being paranoid? Does anyone use a specific brand of sugar regularly and find it to be safe?

Hello Sailing Girl, I don't think you will have a problem with sugars. Have done a lot of testing and have not had a positive yet. Only thing that some may have a problem with would be the corn based sugars (if they have a corn issue). Domino's tested negative (both powdered and granular) Flavorite brand brown sugar tested negative. We use Florida Crystals organic brand and it also tested negative. Hope this helps, Mike

happygirl Collaborator
happygirl
Posted

oceangirl - At least some of these treats/food are wheat free and many are grain free. Saw them at Petco. Open Original Shared Link

oceangirl Collaborator
oceangirl
Posted

Happygirl,

Thank you!

lisa

EileenB Newbie
EileenB
Posted

I cannot tolerate rice. Anyone else have that problem?

Eileen

Thanks for recreating the thread Patti :D

From what I remember of my post in the first thread: I know that as time as gone by, I've gotten more sensitive. When I first went gluten-free, I was so thankful that I wasn't like so many here who are sensitive and have other intolerances...

HAHAHA the jokes on me! <_<

I think I finally had to accept it, too, that I was waaayy more sensitive than I thought I was. But for awhile I couldn't figure out why I would have "the burn" when I was soo sure that I hadn't had gluten. But I am realizing now that it was trace amounts. I think I wanted to believe that I could use the shortcuts like others, but I'm pretty much making everything from scratch these days.

On the lastest saga... I know I can't have dairy, but I have also eliminated soy and corn. How many of you are sensitive to these things, (dairy, soy and corn) or a combination of these things? I've known for a while that I can't handle soy because every time I cook with earth balance, it made me feel gross. I also have found that I can tolerate limited amounts of grains at one time.

This really is frustrating. I used to be able to eat anything, and now I am so reactive to foods. I feel like I live in my kitchen.

Sailing Girl Apprentice
Sailing Girl
Posted
Hello Sailing Girl, I don't think you will have a problem with sugars. Have done a lot of testing and have not had a positive yet. Only thing that some may have a problem with would be the corn based sugars (if they have a corn issue). Domino's tested negative (both powdered and granular) Flavorite brand brown sugar tested negative. We use Florida Crystals organic brand and it also tested negative. Hope this helps, Mike

Mike, thank you so much -- that's great to know!

  • 2 weeks later...
MarsupialMama Apprentice
MarsupialMama
Posted
Truly mind-boggling. Blows my mind.

And what's even more mind-boggling is the people who think it's really not that serious.

Well I would have been one of those people who would think "There's no way it can be that serious" if I hadn't gone through it with my daughter. It is INSANELY ridiculous. And to find out where she has got glutened is really hard since we are so careful It's like....there is some invisible boogey-man out there that attacks and we never know it - how, when, or where ......all we see are the symptoms and think "OH NO!!! NOT AGAIN!!!"

HOW DO YOU LIVE IN THIS WORLD? I'm getting more and more nuts over this, realizing she is more sensitive than I ever dreamed, and like, NOTHING is safe! Forget grains.....NOTHING is safe.

Sorry. just venting. In this by myself.

jerseyangel Proficient
jerseyangel
Posted
  • Author
Sorry. just venting. In this by myself.

<sigh> I know it can be so hard sometimes, but you're not alone. Let us know what we can do to help :)

Or just vent, if that's what you need to do right now ;)

lizard00 Enthusiast
lizard00
Posted
Well I would have been one of those people who would think "There's no way it can be that serious" if I hadn't gone through it with my daughter. It is INSANELY ridiculous. And to find out where she has got glutened is really hard since we are so careful It's like....there is some invisible boogey-man out there that attacks and we never know it - how, when, or where ......all we see are the symptoms and think "OH NO!!! NOT AGAIN!!!"

HOW DO YOU LIVE IN THIS WORLD? I'm getting more and more nuts over this, realizing she is more sensitive than I ever dreamed, and like, NOTHING is safe! Forget grains.....NOTHING is safe.

Sorry. just venting. In this by myself.

The GLUTEN BOOGEY MAN!!!! I LOVE IT!! :lol::lol:

That's how we live in this world, we use twisted humor. LOL

Seriously, it can be totally frustrating. I can't imagine if I had to deal with it with my child, especially if I didn't have celiac. So, you get a big pat on the back from me! :wub:

My system is really sensitive, and I can eat grains in small amounts, but only with protein or after I've eaten something else. Definitely not on an empty stomach. You learn what makes you feel bad and what works.

But yes, you can't assume anything is safe because it should be. You have to check and double check, and sometimes you still miss it. Like Patti said, if there's anything we can do to help, just let us know.

oceangirl Collaborator
oceangirl
Posted

Eileen,

I could not tolerate any grains for 2 years including rice. I still cannot eat plain rice, however, can eat Tinkyada pasta- go figure.

I don't do any substitutions other than the Tinky and that seems fine- but not every day!

Tra la la.....

Be well,

lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.