Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Am I Supposed To Get Better?


jasonD2

Recommended Posts

jasonD2 Experienced

Ok the gluten has been addressed and eliminated from my diet, as well as dairy soy and eggs. Now I am supposed to focus on healing my gut and getting my system back on track. the problem is that all of the supplements I am supposed to take for my recovery exacerbate my IBS.

I have IBS with constipation and a lazy bowel and have been struggling for years to find something to get me regular again. Im working closely with an integrative medical specialist and he really wants to get my thyroid numbers up as well as correct my flora and other GI imbalances. every single supplement he has given me only makes my constipation worse. he tried 2 different thyroid meds and they gave me severe constipation, various GI support formulas and probiotics...all made my constipation worse.

SO...how the hell am I supposed to recover if all these things make me feel lousy? I just dont know what to do. I can load up on laxatives so that i can at least take the supplements, but thats not good either.

any of u have similar issues? I hear about people with constipation all the time...family members, friends, etc...and they are all able to manage it with conventional treatments...however I am the freak and seem to have the worst kind of all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Jason,

Maybe this link to info about gastroparesis will help. Seems there is a link between gastroparesis and thyroid levels. I saw in one of your other threads that your doc thinks your thyroid levels are low The link talks about the vagus nerve and stomach emptying and gut motility.

Open Original Shared Link

rinne Apprentice

Hi. :)

I sympathize. I have had issues with C for my entire life, unfortunately because it was the norm for me it really never occurred to me that I had a problem until I was thirty or so when taking laxatives occasionally became part of my life because it was becoming problematic.

When I became ill my digestion collapsed, I recall one week where nothing moved, it felt like a dead zone between my sternum and hips and this was when I was taking 4 or 5 laxatives a night.

Because of my symptoms and a history of Celiac in my family I went on a gluten and dairy free diet and that seemed to help some but I was still suffering from C. I had reached the point where I was beginning to accept that I was just going to have this problem for the rest of my life and then I discovered a diet that my body is happy with and suddenly I no longer have C.

Our digestive system is not just some food/fuel tube that we fill up at one end and if it doesn't come out the other then the answer is to put something else in to push it through. Constipation is not normal so how come so many people are?

Perhaps the answer is not adding something to your diet but taking away something that you are having difficulty digesting, what is your diet like?

Gfresh404 Enthusiast
Ok the gluten has been addressed and eliminated from my diet, as well as dairy soy and eggs. Now I am supposed to focus on healing my gut and getting my system back on track. the problem is that all of the supplements I am supposed to take for my recovery exacerbate my IBS.

I have IBS with constipation and a lazy bowel and have been struggling for years to find something to get me regular again. Im working closely with an integrative medical specialist and he really wants to get my thyroid numbers up as well as correct my flora and other GI imbalances. every single supplement he has given me only makes my constipation worse. he tried 2 different thyroid meds and they gave me severe constipation, various GI support formulas and probiotics...all made my constipation worse.

SO...how the hell am I supposed to recover if all these things make me feel lousy? I just dont know what to do. I can load up on laxatives so that i can at least take the supplements, but thats not good either.

any of u have similar issues? I hear about people with constipation all the time...family members, friends, etc...and they are all able to manage it with conventional treatments...however I am the freak and seem to have the worst kind of all.

There must be some other food that is causing your constipation. I was constipated my entire life (only 19 years) but like other people did not realize since I always thought it was just the way I am. But ever since removing dairy and gluten from my diet I have not had a single problem.

Too many probiotics can also cause constipation and excess bloating.

I'm also curious as to what your diet is like. Fats and sugar help to stimulate the bowels. So I'd recommend some fruit and nuts. Nuts especially. Also, try some low fiber vegetables like lettuce. Avoid grains as much as possible as I have found these to be the most constipating. Also try to drink more fluids if you aren't already.

Good luck

Fiddle-Faddle Community Regular

And don't forget exercise!! Yeah, I know it's hard to exercise when you feel lousy, but if YOU don't move, neither do your bowels.

Walk, swim, or (if you're up to it) run for 30 minutes a day. If you're walking, outside is best--being out in the sunlight (even if it's cloudy) will help you to synthesize vitamin D.

jasonD2 Experienced

Ive been taking herbal supplements (to help me go) on and off for a while and am concerned that I may have damaged my colon. I actually took whole leaf aloe for a year but discontinued after i found out it contained stimulants. i take CleanseMore on occasion as well but just found out that it contains stimulants. can lazy bowel syndrome be reversed?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,569
    • Most Online (within 30 mins)
      7,748

    lizz Z
    Newest Member
    lizz Z
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.