Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iud Options


melmak5

Recommended Posts

melmak5 Contributor

I am 28 years old. I have been gluten free for 1.5 years (woo hooo) and am at the stage where I need to reconsider my birth control options.

1. I was previously on hormone therapy "the pill" because I did not get my period for over 6 months. I was doing fine on it, but did not have a sexual partner and decided to stop taking it after 1+ years.

2. Last year I was on the Nuva Ring - before they figured out I had Celiac Disease they thought I had ovarian cysts. This product was not the one for me. (My body kept pushing it out and it became very uncomfortable)

3. I am very comfortable using latex condoms. But as of late, my period has gone wack-a-do. 30-51 days between cycles causing some level of concern (I just became an aunt because of 1 "oops" and whenever I am late I start to have nightmares about being pregnant)

So.........

I had a nice sit down chat with my lady bits doctor and we discussed IUDs: Mirena (5 year, plastic, hormonal) and ParaGuard (10 year, copper, non-hormonal)

First off, she took some blood and is re-checking that my thyroid is a-ok.

We also discussed going back on the pill, but I expressed my concern for 2 reasons:

a) If I am glutened my body goes nut-so and I am concerned about absorption and efficacy (I know what the studies say about villi damage occurring only after prolonged exposure to gluten - but if I am dealing with 8-11 bathroom trips a day while glutened, I am pretty sure my body isn't absorbing all it should.)

B) I have also had 2 friends, non-smokers who suffered from blood clots, attributed to their long-term use of birth control pills.

I was pretty against the Mirena, for the hormone reason, but she informed me that its only Progesterone (not estrogen - the hormone linked with blood clots) and that its a very low dose.

So I am now rethinking my stance. That if my blood work comes back and my thyroid is fine and my body is either not ovulating regularly or just likes to make up its own schedule, that perhaps the Mirena might be a solid choice.

GOOD, BAD, UGLY EXPERIENCES WITH IUDS?

Please share!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



melmak5 Contributor

*That weird smiley was not intended. Oh sneaky key strokes... you foil me yet again!

Rondar2001 Apprentice

I have one (although the non-hormonal one) and have been very happy with it. The first couple of periods were pretty crampy, but after that not so bad. After years of taking the pill and deproprevera (sp?), I have been quite satisfied with it.

lizard00 Enthusiast

I believe that Mirena is for use after you've a baby, not before. You need to recheck that with your doctor. I was considering it last year, but decided not to do, although I think it would have been my choice.

From their website:

Open Original Shared Link

Jestgar Rising Star

I used Mirena for about a year for period control. Loved it. It stopped 80% of my cramping.

Jestgar Rising Star
I believe that Mirena is for use after you've a baby, not before.

This is the same statement made for all iuds

melmak5 Contributor

The statement about IUDs being "good" or "appropriate" for women only after they have had at least one child has nothing to do with the product itself.

Some of the reasons include...

-Easier Insertion

since the IUD is inserted through the cervix, it is easier to insert an IUD in a woman who has already given birth, since the cervix has already opened

(there are tablet suppositories as well as on-site injections that can make insertion easier - having a baby is not a prerequisite)

-Possible increased risk of STD/STI

The idea is that since the IUD sits both in the vagina and in the uterus, there is an increased risk of certain STD/STIs and thought that women in "stable, committed, monogamous, heterosexual relationships are at a lower risk - since hypothetically the woman and her partner are sexually monogamous.

(I think its important to be aware of this risk, but not ok to deny a woman the right to access a form of contraception because of some mythical ideal that persons with a kid and who are in monogamous relationships remain so.)

-Possible damage and/or scarring

If an IUD is place incorrectly there is the possibility for scarring or an infection to occur.

I think it is really really important to speak with someone who is very familiar with insertion (both plastic and copper) so that s/he knows what s/he is doing.

I think informed consent is very important and denying people access to birth control stinks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast
I was pretty against the Mirena, for the hormone reason, but she informed me that its only Progesterone (not estrogen - the hormone linked with blood clots) and that its a very low dose.

I'm using the Mirena (after giving birth twice). I was nervous about any kind of hormonal birth control because there's a history of breast cancer in my dad's family. My understanding is that the Mirena gives you a very small dose of progesterone and it's concentrated in your uterus... unlike BC pills, which affect hormones levels throughout your body. Insertion was a piece of cake. I had some problems with abdominal cramps (ugh), but that was before I knew about celiac disease! I wrongly assumed the IUD was the problem.

I have read a few stories about young women having problems with the IUD getting embedded in their uterus... otherwise, I agree with what you said about the politics of birth control.

lizard00 Enthusiast
This is the same statement made for all iuds

Gotcha ;)

The first time I ever looked in IUC/IUD was last year when my son was almost 3 and I didn't want to be on the pill because of the hormones. I read about it, but would have no reason to know otherwise.

I'll put that in the "file". :)

I hate gluten Apprentice

I love my IUD. I could never take birth control in the past due to major migraines no matter how low the dose, but my IUD has been great. All politics aside, it is your decision and good luck.

Bell Apprentice

It's not necessarily true that IUDs are only for those who have given birth. I chose to have the paraguard even though I've no children. It wasn't PARTICULARLY uncomfortable to have put in - though obviously not much fun either. However I did then get Bacterial Vaginosis, which i think happens fairly commonly after the procedure.

My periods have always been irregular, but after the iud they got less, and seemed to have completely stopped now. I had to have the iud checked a few months ago and the pain was Absolutely Flipping Excrutiating. I don't know whether my insides are seizing up because of lack of menstruation or what, but I would advise you to look very carefully into your choice - it's not always easy to know how your body will react.

Jestgar Rising Star

I would also ask your doctor what drugs she plans to use to insert it. Mine, in her words, "numbed the heck out of my cervix". Made it a pretty unmemorable event. I had read other's experiences where they were told to take 4 advil before coming in. This also might be sufficient, so think about what your feelings are towards drugs, and ask.

  • 3 weeks later...
HiDee Rookie

I chose the paraguard because I didn't want the hormones but I've never had irregular cycles so you may need the hormones to help regulate that. I like the paraguard because my husband and I don't like condoms and as soon as I had it removed I got pregnant, no waiting for your body to adjust like sometimes with the pill. It does create a little extra mucousy discharge but nothing a new pantyliner everyday can't handle.

munkee41182 Explorer

I haven't had children or been pregnant and I have the Mirena...I love it! My periods are regular (although longer than when I was on BC....they're about every 35 days now instead of every 25).....and my periods are barely anything. Wear a liner for 2 days and you're as good as new! I will say, the first period I had after I had it inserted I thought I was pregnant. My body was gettnig use to not being on all the hormones and my breasts became really swollen (like 1 cup extra swollen).

  • 2 weeks later...
melmak5 Contributor

I am going with the Mirena and have an appt. this afternoon.

I am a little nervous (I often get panic attacks in doctor's offices) but I think I will be ok.

I was prescribed a suppository to soften my cervix, which I took last night.

I have advil in my system (cramps were so bad they woke me up a few times last night with bad pain) and a meal prepared for when I get home and snacks at the ready. Someone mentioned a heating pad would be a really welcomed addition to some sofa time, so I am going to pick one of those up before I had over.

I am really excited about the idea of a somewhat more regular period and making my womb an inhospitable place!

melmak5 Contributor

I did it!

It was more painful than I expected and I did get a little dizzy, but I am feeling fine now.

I am pretty excited for the cramping to subside and to see how I feel.

Jestgar Rising Star

Glad you made it through. Did they tell you that it could be three months or so before your body completely settles in?

emcmaster Collaborator

I have the Mirena.

I would say I'm really happy with it because it is painless, has given me zero periods since insertion, is affordable, and is worry-free.

But I developed bad cystic acne from it and am annoyed enough that I will most likely not be getting another put in when it is time to take this one out (in 3 years).

Instead, my husband will be getting snipped. :D

melmak5 Contributor

Jestar - no, that was not something that was explained, but I have a follow-up apt. in a month to check on it and me.

My body has been completely wacky lately in terms of my period, so while this isn't going to regulate it, I am excited about not worrying every month about being late.

emcmaster - I am sorry to hear about your acne, is there a correlation with your IUD?

Overall, I am pretty happy with this decision, even though I am experiencing some strong cramping still today, its tolerable.

The insertion process was more painful than I expected and I nearly passed out at one point. (got dizzy, sweaty and cold feeling) In the middle of it I said: "What ever you are doing, could you please stop it right now" through gritted teeth." She explained that she could not stop, that she was in the middle of inserting it and that it was almost done. I grabbed onto the side of the table and tried my best to breath. It was only a few seconds of really sharp pain, followed with cramping that began to ease up.

She informed me that the insertion was easy.

I glared at her for a second and she calmly replied: "It was easy in the sense that it went in quickly and there was no problem."

My RNP was fantastic and talked me through it and explained that the cramping and pain/pressure around the cervix was "sort of like what a labor pain is like" and I looked at her and said:

"Oh hell no! I don't know how anyone ever has babies. They are so scary and expensive and they are going to hurt at least that much. No, no."

She laughed a bit and said "everyone has their time. Its different for different people."

I said, "Yeah well, I guess the are cute for a reason. Or else people would never have them!"

munkee41182 Explorer

I developed more acne after I went off the pill and had an IUD put in - I'm chalking it up to decrease in hormones that was helping with the acne. I feel like i'm 14 again!

I also felt dizzy after, the doc said that I didn't need a ride home, I'm glas my H was with me when i had it in. I went upstairs, took 4 advil (per doc order) and crashed into bed for about 2 hours, got up, ate and my head felt a whole lot better!

melmak5 Contributor

I had a similar problem with acne post-going off the pill.

(I was put on it when I was 20 because I went 6 months without a period and everything else "checked out ok" and so the solution was hormones)

I stopped taking it a few years later and got recurring pimples on my face and butt (ahhh, sharing is caring).

It took about 6 months for it to stop happening. I still get a few zits around my chin about a week before I get my period, but its a lot better now.

Hormones are crazy and amazing things.

Jestgar Rising Star
The insertion process was more painful than I expected and I nearly passed out at one point. (got dizzy, sweaty and cold feeling) In the middle of it I said: "What ever you are doing, could you please stop it right now" through gritted teeth." She explained that she could not stop, that she was in the middle of inserting it and that it was almost done. I grabbed onto the side of the table and tried my best to breath. It was only a few seconds of really sharp pain, followed with cramping that began to ease up.

When I had mine done I asked if it would hurt. She said "no, because I'm gonna numb the heck out of cervix" She did, and it was great. :P

melmak5 Contributor

Yeah, that is my only regret - not asking for the numbing agent!

I was not feeling great this morning, but I am fine now.

I am actually pretty excited!

  • 1 month later...
3groovygirls Contributor

Oh geez, you already got it. I'm not even sure I should share my experience. I HATE IUD's and will NEVER EVER get one again.

Let me just say, be very, very aware of your body when you use it. If you ever get ONE even slightly positive pregnancy test with it get it out.

I had an IUD and I was a few days late once, I took a HPT, it was very lightly positive, so light I thought it was a false positive. Before I could get another I'd get my periosd. I mentioned it to my OB she did an ultrasound to make sure it was in correctly. She said it was just a fluke.

No. It wasn't.

About a year later I got pregnant with my IUD in. It was HORRIBLE. HORRIBLE! They couldn't remove the IUD b/c when my body relized it was pg the string got sucked up into my uterus. let me tell you how much that hurts having them look for it. Then I had to have ultrasounds every week to check the pregnancy b/c the rate of miscarriage is VERY high when you have an IUD in. It's a 50/50 shot the ENTIRE pregnancy. Talk about stressful.

Finally I got to 8 weeks, a heartbeat everything looks good the IUD had moved away from the baby we thought we were good. 11 weeks I find out the IUD had done in the baby and I'd miscarried. Of course just once I got comfortable and used to being pregnant. So then I had a D&C to get it removed.

Of course miscarriages happen to "everyone" and in the big scheme of things it isn't that bad.. BUT I can't imagine if I had lost the baby at 16 or 20 weeks. 11 weeks was bad enough. It just caused such a tear in my uterus. The horrid thing is, everyone assumed I was HAPPY I miscarried b/c of course I had an IUD b/c I didn't want to get pregnant. Um, yeah, but it's a bit different than that, you get used to it, start to get excited and by 11 weeks think you're ok, etc.

Anyway, I know youhave it in, I'd just say be very aware of what's going on. Apparently I'm a statistical freak!!!

Linda

emcmaster Collaborator

3groovygirls, sorry to hear about your experience. What a nightmare! What brand of IUD did you have?

I rescind my earlier statement about not having another Mirena put back in. I think the acne (which has been more under-control lately) is worth not having a period. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,359
    • Most Online (within 30 mins)
      7,748

    Atlanta GF
    Newest Member
    Atlanta GF
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.