Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iud Options


melmak5

Recommended Posts

melmak5 Contributor

I am 28 years old. I have been gluten free for 1.5 years (woo hooo) and am at the stage where I need to reconsider my birth control options.

1. I was previously on hormone therapy "the pill" because I did not get my period for over 6 months. I was doing fine on it, but did not have a sexual partner and decided to stop taking it after 1+ years.

2. Last year I was on the Nuva Ring - before they figured out I had Celiac Disease they thought I had ovarian cysts. This product was not the one for me. (My body kept pushing it out and it became very uncomfortable)

3. I am very comfortable using latex condoms. But as of late, my period has gone wack-a-do. 30-51 days between cycles causing some level of concern (I just became an aunt because of 1 "oops" and whenever I am late I start to have nightmares about being pregnant)

So.........

I had a nice sit down chat with my lady bits doctor and we discussed IUDs: Mirena (5 year, plastic, hormonal) and ParaGuard (10 year, copper, non-hormonal)

First off, she took some blood and is re-checking that my thyroid is a-ok.

We also discussed going back on the pill, but I expressed my concern for 2 reasons:

a) If I am glutened my body goes nut-so and I am concerned about absorption and efficacy (I know what the studies say about villi damage occurring only after prolonged exposure to gluten - but if I am dealing with 8-11 bathroom trips a day while glutened, I am pretty sure my body isn't absorbing all it should.)

B) I have also had 2 friends, non-smokers who suffered from blood clots, attributed to their long-term use of birth control pills.

I was pretty against the Mirena, for the hormone reason, but she informed me that its only Progesterone (not estrogen - the hormone linked with blood clots) and that its a very low dose.

So I am now rethinking my stance. That if my blood work comes back and my thyroid is fine and my body is either not ovulating regularly or just likes to make up its own schedule, that perhaps the Mirena might be a solid choice.

GOOD, BAD, UGLY EXPERIENCES WITH IUDS?

Please share!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



melmak5 Contributor

*That weird smiley was not intended. Oh sneaky key strokes... you foil me yet again!

Rondar2001 Apprentice

I have one (although the non-hormonal one) and have been very happy with it. The first couple of periods were pretty crampy, but after that not so bad. After years of taking the pill and deproprevera (sp?), I have been quite satisfied with it.

lizard00 Enthusiast

I believe that Mirena is for use after you've a baby, not before. You need to recheck that with your doctor. I was considering it last year, but decided not to do, although I think it would have been my choice.

From their website:

Open Original Shared Link

Jestgar Rising Star

I used Mirena for about a year for period control. Loved it. It stopped 80% of my cramping.

Jestgar Rising Star
I believe that Mirena is for use after you've a baby, not before.

This is the same statement made for all iuds

melmak5 Contributor

The statement about IUDs being "good" or "appropriate" for women only after they have had at least one child has nothing to do with the product itself.

Some of the reasons include...

-Easier Insertion

since the IUD is inserted through the cervix, it is easier to insert an IUD in a woman who has already given birth, since the cervix has already opened

(there are tablet suppositories as well as on-site injections that can make insertion easier - having a baby is not a prerequisite)

-Possible increased risk of STD/STI

The idea is that since the IUD sits both in the vagina and in the uterus, there is an increased risk of certain STD/STIs and thought that women in "stable, committed, monogamous, heterosexual relationships are at a lower risk - since hypothetically the woman and her partner are sexually monogamous.

(I think its important to be aware of this risk, but not ok to deny a woman the right to access a form of contraception because of some mythical ideal that persons with a kid and who are in monogamous relationships remain so.)

-Possible damage and/or scarring

If an IUD is place incorrectly there is the possibility for scarring or an infection to occur.

I think it is really really important to speak with someone who is very familiar with insertion (both plastic and copper) so that s/he knows what s/he is doing.

I think informed consent is very important and denying people access to birth control stinks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast
I was pretty against the Mirena, for the hormone reason, but she informed me that its only Progesterone (not estrogen - the hormone linked with blood clots) and that its a very low dose.

I'm using the Mirena (after giving birth twice). I was nervous about any kind of hormonal birth control because there's a history of breast cancer in my dad's family. My understanding is that the Mirena gives you a very small dose of progesterone and it's concentrated in your uterus... unlike BC pills, which affect hormones levels throughout your body. Insertion was a piece of cake. I had some problems with abdominal cramps (ugh), but that was before I knew about celiac disease! I wrongly assumed the IUD was the problem.

I have read a few stories about young women having problems with the IUD getting embedded in their uterus... otherwise, I agree with what you said about the politics of birth control.

lizard00 Enthusiast
This is the same statement made for all iuds

Gotcha ;)

The first time I ever looked in IUC/IUD was last year when my son was almost 3 and I didn't want to be on the pill because of the hormones. I read about it, but would have no reason to know otherwise.

I'll put that in the "file". :)

I hate gluten Apprentice

I love my IUD. I could never take birth control in the past due to major migraines no matter how low the dose, but my IUD has been great. All politics aside, it is your decision and good luck.

Bell Apprentice

It's not necessarily true that IUDs are only for those who have given birth. I chose to have the paraguard even though I've no children. It wasn't PARTICULARLY uncomfortable to have put in - though obviously not much fun either. However I did then get Bacterial Vaginosis, which i think happens fairly commonly after the procedure.

My periods have always been irregular, but after the iud they got less, and seemed to have completely stopped now. I had to have the iud checked a few months ago and the pain was Absolutely Flipping Excrutiating. I don't know whether my insides are seizing up because of lack of menstruation or what, but I would advise you to look very carefully into your choice - it's not always easy to know how your body will react.

Jestgar Rising Star

I would also ask your doctor what drugs she plans to use to insert it. Mine, in her words, "numbed the heck out of my cervix". Made it a pretty unmemorable event. I had read other's experiences where they were told to take 4 advil before coming in. This also might be sufficient, so think about what your feelings are towards drugs, and ask.

  • 3 weeks later...
HiDee Rookie

I chose the paraguard because I didn't want the hormones but I've never had irregular cycles so you may need the hormones to help regulate that. I like the paraguard because my husband and I don't like condoms and as soon as I had it removed I got pregnant, no waiting for your body to adjust like sometimes with the pill. It does create a little extra mucousy discharge but nothing a new pantyliner everyday can't handle.

munkee41182 Explorer

I haven't had children or been pregnant and I have the Mirena...I love it! My periods are regular (although longer than when I was on BC....they're about every 35 days now instead of every 25).....and my periods are barely anything. Wear a liner for 2 days and you're as good as new! I will say, the first period I had after I had it inserted I thought I was pregnant. My body was gettnig use to not being on all the hormones and my breasts became really swollen (like 1 cup extra swollen).

  • 2 weeks later...
melmak5 Contributor

I am going with the Mirena and have an appt. this afternoon.

I am a little nervous (I often get panic attacks in doctor's offices) but I think I will be ok.

I was prescribed a suppository to soften my cervix, which I took last night.

I have advil in my system (cramps were so bad they woke me up a few times last night with bad pain) and a meal prepared for when I get home and snacks at the ready. Someone mentioned a heating pad would be a really welcomed addition to some sofa time, so I am going to pick one of those up before I had over.

I am really excited about the idea of a somewhat more regular period and making my womb an inhospitable place!

melmak5 Contributor

I did it!

It was more painful than I expected and I did get a little dizzy, but I am feeling fine now.

I am pretty excited for the cramping to subside and to see how I feel.

Jestgar Rising Star

Glad you made it through. Did they tell you that it could be three months or so before your body completely settles in?

emcmaster Collaborator

I have the Mirena.

I would say I'm really happy with it because it is painless, has given me zero periods since insertion, is affordable, and is worry-free.

But I developed bad cystic acne from it and am annoyed enough that I will most likely not be getting another put in when it is time to take this one out (in 3 years).

Instead, my husband will be getting snipped. :D

melmak5 Contributor

Jestar - no, that was not something that was explained, but I have a follow-up apt. in a month to check on it and me.

My body has been completely wacky lately in terms of my period, so while this isn't going to regulate it, I am excited about not worrying every month about being late.

emcmaster - I am sorry to hear about your acne, is there a correlation with your IUD?

Overall, I am pretty happy with this decision, even though I am experiencing some strong cramping still today, its tolerable.

The insertion process was more painful than I expected and I nearly passed out at one point. (got dizzy, sweaty and cold feeling) In the middle of it I said: "What ever you are doing, could you please stop it right now" through gritted teeth." She explained that she could not stop, that she was in the middle of inserting it and that it was almost done. I grabbed onto the side of the table and tried my best to breath. It was only a few seconds of really sharp pain, followed with cramping that began to ease up.

She informed me that the insertion was easy.

I glared at her for a second and she calmly replied: "It was easy in the sense that it went in quickly and there was no problem."

My RNP was fantastic and talked me through it and explained that the cramping and pain/pressure around the cervix was "sort of like what a labor pain is like" and I looked at her and said:

"Oh hell no! I don't know how anyone ever has babies. They are so scary and expensive and they are going to hurt at least that much. No, no."

She laughed a bit and said "everyone has their time. Its different for different people."

I said, "Yeah well, I guess the are cute for a reason. Or else people would never have them!"

munkee41182 Explorer

I developed more acne after I went off the pill and had an IUD put in - I'm chalking it up to decrease in hormones that was helping with the acne. I feel like i'm 14 again!

I also felt dizzy after, the doc said that I didn't need a ride home, I'm glas my H was with me when i had it in. I went upstairs, took 4 advil (per doc order) and crashed into bed for about 2 hours, got up, ate and my head felt a whole lot better!

melmak5 Contributor

I had a similar problem with acne post-going off the pill.

(I was put on it when I was 20 because I went 6 months without a period and everything else "checked out ok" and so the solution was hormones)

I stopped taking it a few years later and got recurring pimples on my face and butt (ahhh, sharing is caring).

It took about 6 months for it to stop happening. I still get a few zits around my chin about a week before I get my period, but its a lot better now.

Hormones are crazy and amazing things.

Jestgar Rising Star
The insertion process was more painful than I expected and I nearly passed out at one point. (got dizzy, sweaty and cold feeling) In the middle of it I said: "What ever you are doing, could you please stop it right now" through gritted teeth." She explained that she could not stop, that she was in the middle of inserting it and that it was almost done. I grabbed onto the side of the table and tried my best to breath. It was only a few seconds of really sharp pain, followed with cramping that began to ease up.

When I had mine done I asked if it would hurt. She said "no, because I'm gonna numb the heck out of cervix" She did, and it was great. :P

melmak5 Contributor

Yeah, that is my only regret - not asking for the numbing agent!

I was not feeling great this morning, but I am fine now.

I am actually pretty excited!

  • 1 month later...
3groovygirls Contributor

Oh geez, you already got it. I'm not even sure I should share my experience. I HATE IUD's and will NEVER EVER get one again.

Let me just say, be very, very aware of your body when you use it. If you ever get ONE even slightly positive pregnancy test with it get it out.

I had an IUD and I was a few days late once, I took a HPT, it was very lightly positive, so light I thought it was a false positive. Before I could get another I'd get my periosd. I mentioned it to my OB she did an ultrasound to make sure it was in correctly. She said it was just a fluke.

No. It wasn't.

About a year later I got pregnant with my IUD in. It was HORRIBLE. HORRIBLE! They couldn't remove the IUD b/c when my body relized it was pg the string got sucked up into my uterus. let me tell you how much that hurts having them look for it. Then I had to have ultrasounds every week to check the pregnancy b/c the rate of miscarriage is VERY high when you have an IUD in. It's a 50/50 shot the ENTIRE pregnancy. Talk about stressful.

Finally I got to 8 weeks, a heartbeat everything looks good the IUD had moved away from the baby we thought we were good. 11 weeks I find out the IUD had done in the baby and I'd miscarried. Of course just once I got comfortable and used to being pregnant. So then I had a D&C to get it removed.

Of course miscarriages happen to "everyone" and in the big scheme of things it isn't that bad.. BUT I can't imagine if I had lost the baby at 16 or 20 weeks. 11 weeks was bad enough. It just caused such a tear in my uterus. The horrid thing is, everyone assumed I was HAPPY I miscarried b/c of course I had an IUD b/c I didn't want to get pregnant. Um, yeah, but it's a bit different than that, you get used to it, start to get excited and by 11 weeks think you're ok, etc.

Anyway, I know youhave it in, I'd just say be very aware of what's going on. Apparently I'm a statistical freak!!!

Linda

emcmaster Collaborator

3groovygirls, sorry to hear about your experience. What a nightmare! What brand of IUD did you have?

I rescind my earlier statement about not having another Mirena put back in. I think the acne (which has been more under-control lately) is worth not having a period. ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748

    TGreen
    Newest Member
    TGreen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.