Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Urban Gluten Legends

thleensd

Recommended Posts

thleensd Enthusiast
thleensd
Posted

So, you know when you type "________ gluten free" into google and a list of what other people commonly search for pops up? It's good to know that three are 11,200 hits for: rice chex gluten free.

That being said, I've so often run across a really dumb response to a good question. We need a gluten snopes for the little myths or unknowns wandering around that pop up. Is there gluten in _____? I was glutened by __________!

I know it's not that simple. But google search: envelope glue gluten ....and look at the fun array of answers that pop up on the first page of hits!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

It would be good to have a place where you can distinguish urban myth from reality regarding gluten. It is certainly not as easy to use as snopes, but I like to believe that this site is close as you can get.

Because of the large number of members, and the number of post that they have made, most of the gluten myths have been discussed here at one time or another. You ultimately have to decide for yourself what to believe, or not believe, but the discussions here can help you make an informed decision.

Many of the myths are based upon theoretical conjecture that xxxx could possibly contain gluten. Yeah, anything could, but that doesn't mean that it actually happens. Envelope paste is one of my favorites. We all hear about it, but I have NEVER seen a verifiable instance where it actually did. :angry:

Lisa Mentor
Lisa
Posted

Hum....my favorite is toilet paper. :o I do believe we had a thread of over 23 pages discussing the subject. Boy was that fun! :rolleyes:

Tim-n-VA Contributor
Tim-n-VA
Posted

Gluten in toothpaste and other dental products is my favorite potential legend. Each time I see that topic I try to ask for a specific brand that has gluten. I get lots of responses about brands that say they DON'T have gluten and responses about brands that issue a CYA legal statement. I've never seen a dental product that has gluten. I'd like to because that would make a good starting point to a discussion with the dental staff.

MaryJones2 Enthusiast
MaryJones2
Posted
Gluten in toothpaste and other dental products is my favorite potential legend. Each time I see that topic I try to ask for a specific brand that has gluten. I get lots of responses about brands that say they DON'T have gluten and responses about brands that issue a CYA legal statement. I've never seen a dental product that has gluten. I'd like to because that would make a good starting point to a discussion with the dental staff.

Funny you should mention that Tim. That is one that bothers me too. I spent 1/2 the day at the dentist today having all kinds of fun stuff done and I couldn't find one single product that contained gluten. The only thing my dentist has ever excluded was the baking soda pressure wash used for cleanings - not because it contained gluten but because it was made in Europe and they couldn't verify it.

elye Community Regular
elye
Posted
Hum....my favorite is toilet paper. :o I do believe we had a thread of over 23 pages discussing the subject. Boy was that fun! :rolleyes:

My favorite is Altoids. Also a multiple-paged thread. You wanna talk fun?! :lol:

Lisa Mentor
Lisa
Posted
My favorite is Altoids. Also a multiple-paged thread. You wanna talk fun?! :lol:

:lol::lol::lol: Some legends just never die! (but I think the chocolate does contain gluten)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Juliebove Rising Star
Juliebove
Posted

Caramel coloring is the one that gets me. Don't know who started that one. Or flour being used to coat shredded cheese. Yuck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      4

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Thankyou I did reach out to a dietitian from this website and since popular there's a bit of a wait at first, My appointment I believe is in June on zoom.Going in to see pcp about medication im having a reaction from, told neurologist and she said its a common affect so need to ck and see if thsts through case this afternoon. This nightmare could easily been...
    2. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is it gluten?

      Thanks for the reply.
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Product Labeling Regulations
      2

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      You’re raising a very real and very well-documented problem, and you’re absolutely right to be frustrated. Medication labeling is a major blind spot for people with celiac disease, because unlike food, drug manufacturers are not required to clearly disclose the source of binders, fillers, or excipients—even when they may be derived from wheat. That puts ...
    4. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      nothing has changed

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies c...
    5. Scott Adams
      - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is it gluten?

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,350
    • Most Online (within 30 mins)
      7,748
    Bea71
    Newest Member
    Bea71
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.