Ttg Levels At Dx And After Recovery

[gregsgirl63]

hello,

i am new to celiac. was diagnosed on a fluke per se this fall. went to the rheumatologist thinking he was going to tell me i had MS or lupus. was happy to hear i had celiac (even to type this it sounds strange, but much better than MS or lupus i would say).

my tTG came back at 257. i have not seen anyone else with such a high number. which is scary. actually i know one person who was higher. the day i was diagnosed, my rheumotologist, who is friends with my sister, told her she had the disease (merely b/c she fit the bill in every way shape and form-PCOD, hypothryoid, headaches, abdominal pain and problems) and she had a tTG of 327!. that was 9/1/2008. on 4/10/2009 my tTG was down to 26, but my 2nd f/u endoscopy still showed persistant villi damage.

are these numbers crazy or in line with others history?

my symptoms over the past year, that i can now look back and blame on the celiac include, hair loss, bloating, IBS like symptoms, fatigue, poor immune response, (i was ill with lots of colds etc.) cystitis. i became really sick last summer with mono and within a 4 weeks dropped 12 pounds (i was eating like a pig, with weight loss too.) that is when i was diagnosed. since going gluten free i have gained back the 12 pounds plus another 12, my hair is not falling out anymore (i use gluten free shampoo). i have no more bloating, my periods are not painful anymore, i do not crave food like i used to. it is really amazing. so much more to share and not enough time to go into it all.

how long did it take for your metabolism to get back on track? ii still feel like my body is finding a hard time getting back into a normal groove. i have had recent problems with back-ne (mild) and at times, really crave food. went from absorbing no nutrition to absorbing alot and i think my system is still having a hard time getting back on track, finding its way. i am interested to hear about others in this way. thanks for your time.

[MySuicidalTurtle]

It is great to hear how well you are doing! It takes a good while for your body, mentally and physically, to get it's game together. You have to recover form years of damage. Personally, I feel like I have to watch my body much more carefully than I did before my diagnosis. It is worth it, though, to be feeling better.

Welcome to the forum!

[nutralady2001]

My tTG was 300 (0-15) when diagnosed .