Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Undiagnosed Newbie


tinyshinythings

Recommended Posts

tinyshinythings Newbie

Hi folks, I would much appreciate your opinion about my symptoms. I am scheduled for proper test but am stll in the scray, not knowing time. Here goes. Worsening indigestion and nausea for about 7 weeks. Feel a bit better if I leave out the gluten (know I mustn't before test). Crazy, inappropriate hunger and bad nause both at the same time. Imrpoves when I eat. Burning and tingling in toes. Feeling of food sitting in esophogus. Might be h pylori infection? Might be coeliacs? Also muscle/joint pain not resolving over last year. Osteoparosis because of coelacis? Thanks everyone. It's comforting to read of your experiences and I would value your opinions of my situation.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Coulds be, yes it coulds be non-tropical sprue, or celiac. If it is that's not so bad news really. Celiac is certainly something you can adjust to living with, although it may take some time. I hope you get a sold test results either way. Unfortunately, some of the blood tests are not 100% on the negative results. Positive results are more a sure thing.

tinyshinythings Newbie

Thanks for that. Went gluten-free anyway after home celiac test was negative and feel remarkably much better.

ravenwoodglass Mentor

Sometimes our bodies can really tell us the answer. If you are comfortable with being self diagnosed then just keep going. If you want a doctors diagnosis you MUST continue on gluten until all testing is done. The tingling may be from failure of your body to be able to utilize the B12 from food or supplements that you swallow. You may want to try taking sublingual B12 tablets and see if it helps. Many of us do have the issues you describe and you could well be one of the family.

I hope you continue to improve and you have found a good place for info and support. Welcome.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,746
    • Most Online (within 30 mins)
      7,748

    BabyC
    Newest Member
    BabyC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @AllyJR, older studies placed the likelihood of the first degree relatives of those with celiac disease also developing celiac disease at about 10%. Two more recent and large sample studies place it at almost 50%. There are likely multiple epigenetic factors involved in the development of active celiac disease, one of which may be the consumption of modern cultivars of wheat which, through genetic manipulation, contain multiple times the gluten content of ancient wheat. You will have to decide whether or not it is prudent and necessary to require your children who have not yet developed active celiac disease (and who may not ever develop it) to eat gluten free. There certainly will be a social cost for them if you do. If you do decide to go that direction, it would certainly make it easier for you to be consistent in avoiding gluten in the home and so, to keep yourself safe.  
    • Marky0320
      Thanks you for this info! I will definitely do more research on it!
    • lizzie42
      Her poop is totally normal since going gluten free. Once or twice per day.  She eats a lot of fruits and veggies. No juice. She said the squeezing is in the spot where her food goes in her belly. Definitely not dehydrated. She drinks tons of water. 
    • MagsM
      I am a 58yo female and I have recently been diagnosed with Ménière’s and I know I have some inflammation. Having researched Menier’s from a functional medicine perspective there are a number of clinicians who see a strong link with celiac/gluten sensitivity. I am looking to eliminate triggers as regular vertigo attacks are completely debilitating and brain fog is severe. There is a family history of celiac. I had my bloods done to check but my TtIGA is less than .02 so possible IgA deficiency? My folate is low and am now on folic acid supplement. My Ferris is also on the low side and blood total protein is low indicating inflammation and malabsorption.  I will see my GP again next week and am wondering what I should request as next step diagnosis? Endoscopy? I live in Ireland where celiac is prevalent so I’m hoping no issue requesting additional diagnostics. 
    • knitty kitty
      Hurrah for an official diagnosis!   You may want to put the whole family on gluten free, as a preventative measure for the ones not testing positive right now.  Remember, exposure to gluten triggers the Celiac genes your kids have inherited from you.  Keeping them gluten free now, even though they don't test positive right now, can delay triggering Celiac Disease development in them. 
×
×
  • Create New...