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Undiagnosed Newbie

tinyshinythings

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tinyshinythings Newbie
tinyshinythings
Posted

Hi folks, I would much appreciate your opinion about my symptoms. I am scheduled for proper test but am stll in the scray, not knowing time. Here goes. Worsening indigestion and nausea for about 7 weeks. Feel a bit better if I leave out the gluten (know I mustn't before test). Crazy, inappropriate hunger and bad nause both at the same time. Imrpoves when I eat. Burning and tingling in toes. Feeling of food sitting in esophogus. Might be h pylori infection? Might be coeliacs? Also muscle/joint pain not resolving over last year. Osteoparosis because of coelacis? Thanks everyone. It's comforting to read of your experiences and I would value your opinions of my situation.

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GFinDC Veteran
GFinDC
Posted

Coulds be, yes it coulds be non-tropical sprue, or celiac. If it is that's not so bad news really. Celiac is certainly something you can adjust to living with, although it may take some time. I hope you get a sold test results either way. Unfortunately, some of the blood tests are not 100% on the negative results. Positive results are more a sure thing.

tinyshinythings Newbie
tinyshinythings
Posted
  • Author

Thanks for that. Went gluten-free anyway after home celiac test was negative and feel remarkably much better.

ravenwoodglass Mentor
ravenwoodglass
Posted

Sometimes our bodies can really tell us the answer. If you are comfortable with being self diagnosed then just keep going. If you want a doctors diagnosis you MUST continue on gluten until all testing is done. The tingling may be from failure of your body to be able to utilize the B12 from food or supplements that you swallow. You may want to try taking sublingual B12 tablets and see if it helps. Many of us do have the issues you describe and you could well be one of the family.

I hope you continue to improve and you have found a good place for info and support. Welcome.

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