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I Was So Hungry And Afraid I Am Really Sad Right Now


Cinnamon7778

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Cinnamon7778 Rookie

I am feeling really sad right now. I have never experienced hunger like today. I took my 10 year old daughter to a dr appt. this morning about 8:30 am. However, I decided to eat some rice chex with rice milk before leaving 8:am. I actually ate 2 bowls to ensure that I would be alright. I am SO GLAD THAT I DID!!!!!!! Around 11:30, we were racing down the subway stairs (15 steps) and all of a sudden I felt exhausted. I started shaking and trembling all over and felt extremely hungry. A hunger like no other. The train came and we reached our stop. I was out of breath, walking very slowly up the stairs and by the time I reached the top I had to lean on my daughter for support. She was concerned and so was I!! I felt as if I was going to fall out. I have not been diagnosed by a dr but I know that I do have celiac disease. And I am not sure that I would want to consume foods that are harmful just to be diagnosed. I am a vegan for 3 years because of food allergies and now somethings else.....DAMN IT!!!! I was afraid and I am now. I know deep down inside that I am going to be ok!! But OMG, the need to deal with this is unbelievable. I ate some veggies and brown rice last night and experienced shortness of breath, intense itching, abdominal pain and discomfort blah blah blah. Anyway, I am grateful that there is somewhere like this site that I can vent, get the info and encouragement i need to move towards healing and wholeness

Thank you


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Mother of Jibril Enthusiast

Sorry you felt so bad this morning :(

The first thing that struck me about your story is that "Rice Chex with rice milk" is not very filling... even if you eat two bowls. It converts to sugar VERY quickly in your body, so you get a surge of energy and then a crash. If you want longer-lasting energy, try combining that with some kind of protein. Are you able to eat things like nuts, seeds, beans, chickpeas (hummus), etc...? What kind of allergies do you have? If you're committed to being a vegan, then IMO you should be very careful about keeping other sources of protein in your diet unless you know 100% for certain that you can't eat them (for example, a peanut allergy). Healthy fats can help too. Coconut milk is awesome :P

tarnalberry Community Regular

Yup, I would have been starving about two to three hours after eating something like that. HUGE blood sugar crash in the making if you're in the least bit sensitive to these things.

Try making sure that EACH meal you have - and you may need to eat multiple, small meals - is balanced for protein, fiber, fat, and complex carbs. (That means that something like rice chex is now a treat, not a staple. Think of it king of like candy, because it'll have a similar effect on your blood sugar.) Honestly, I have not been able to eat vegetarian, let alone vegan, for anything more than a day or two with both hypoglycemia, gluten intolerance, and casein intolerance. (Though, after five years off dairy, I seem to be able to handle some now; I think. I'm still exploring that.) That doesn't mean it's impossible, but it means that it can be very hard to get that much protein. You have to engineer your meals. But it is well worth it in how you will feel.

missy'smom Collaborator

I'll just echo what everyone has said about blood sugar and protein! Very important to get protein with each meal. I have always wanted to be a vegetarian and never cared much for meat most of my life but my body demands that I be a carnivore. Beans have protein but when it comes to blood sugar, count more as a carb-a slow digesting one and therefore a better choice but some people still need a separate protein source. Everyone's different, but you may find that you do better with animal protein, if not meat, then eggs. I've read alot and seen it on my glucose meter, that brown rice can affect blood sugar as much as white rice. Quinoa seems to be a better choice.

The Fluffy Assassin Enthusiast
get the info and encouragement i need to move towards healing and wholeness

This is just going to be the encouragement part; no doubt reinforcements will show up momentarily with the info. Hang in there, it gets better. I was starving hungry all the time for the first six months or so on the gluten-free diet. Nobody diagnosed me, either, but like you I'm pretty convinced that I'm celiac. I am concerned about the itching; you mean all over your body? You may have some allergy, but I don't know about anything allergenic in either brown rice or vegetables. Maybe there was some kind of cross contamination. Have you been tested for allergies?

Other point to make is that persons with celiac disease are often anemic, as are women, as are vegans, so you get the triple threat. Anemia could explain your extreme weakness. If you haven't given up meat for ethical reasons, you may want to reintroduce it to your diet for the nutrition. Or at least take a multivitamin and maybe an iron supplement. You might want to look into Omega 3 supplementation, too; very hard to get enough as a vegan.

Again, good luck, hope you're feeling better soon, and I hope a gluten-free lifestyle works out for you, and you attain the healing and wholeness that you seek.

OptimisticMom42 Apprentice

Same answer. I'm celiac and hypoglycemic. Honestly, if cereal and rice milk were my only options I would just go hungry. The carbs would raise my sugar only to let it drop two hours latter making me hungry and sick. Repeating this process every two hours all day would make me fat and tired. Been there.

The smart thing to do is to eat a good protein source every 6 to 8 hours. Currently I'm eating two eggs at breakfast, peanut butter at lunch, meat with supper and coconut milk before bed. Slowly loosing those extra pounds and feeling pretty good.

Hope you are feeling better and that everything was A OK at your d's dr. appt.

Cinnamon7778 Rookie

Thanks for the reply. I am actually allergic to coconut milk and and peanuts. I usually put bananas in my cereal however, just recently, I've been expereincing acid reflux after eating them. Hummus upsets my stomach. And I'm afraid to eat pumpkin or anything else because of what happened last night. This is like my firts week on a gluten, wheat, coconut and soyfree diet and its strange. I also just purchased several cookbooks and "first year living with celiac disease and gluten free by Jules E. Dowler Shepard and I can't wait until they get here!!

Sorry you felt so bad this morning :(

The first thing that struck me about your story is that "Rice Chex with rice milk" is not very filling... even if you eat two bowls. It converts to sugar VERY quickly in your body, so you get a surge of energy and then a crash. If you want longer-lasting energy, try combining that with some kind of protein. Are you able to eat things like nuts, seeds, beans, chickpeas (hummus), etc...? What kind of allergies do you have? If you're committed to being a vegan, then IMO you should be very careful about keeping other sources of protein in your diet unless you know 100% for certain that you can't eat them (for example, a peanut allergy). Healthy fats can help too. Coconut milk is awesome :P


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Takala Enthusiast

My dear, you have to eat something.

Or you won't be able to function, period. Especially on rice and sugar.

You can't starve yourself out of this. You need protein, fruit, vegetables, and fat at every meal if you are going to pull this off.

Otherwise, if you have allergies to the mainstay foods used in vegetarianism, and can't tolerate dairy for cheese and yogurt, you are going to have to add in something like meat, fish, or eggs.

Jestgar Rising Star
I have always wanted to be a vegetarian and never cared much for meat most of my life but my body demands that I be a carnivore.

me too. Still don't like meat, but I can't really function without it. I eat mostly fish and chicken. I actively dislike beef, although I do eat it, and pork is kinda gross, so I eat very little of that. Lots and lots of eggs though....

ravenwoodglass Mentor

In addition to the great advice you have already gotten, how long have you been gluten free and do others in your home still eat gluten? With your symptoms the night before and the reaction you had this morning I am wondering if gluten could have snuck in someplace.

Also what rice milk do you use? Rice Dream is not gluten free so if you are using that brand you may want to switch to perhaps Pacific brand. Rice Dream uses barley enzymes but don't list them on the label and although the company that produces it considers it gluten free many, many of us have had reactions.

Nancym Enthusiast

Yeah, sounds like blood sugar to me too. I don't have those issues when I eat a meal with plenty of fat and protein and limited carbs. There's a reason our ancestors ate bacon and eggs for breakfast.

missy'smom Collaborator

Not sure why you are avoiding pumpkin unless I missed something. Pumpkin is suprisingly a very good carb choice. Has less impact on the blood sugar. I am on a lowcarb diet specifically designed for diabetes and it is one of the few carbs allowed. I have often have some as my breakfast carb choice. Mix it with some spices and butter, spread or cream, a bit of sweetener/or alternative if your body allows and warm it up. Earthbalance just came out with a new spread that is soy-free and may work for you.

Mother of Jibril Enthusiast

I know how scary it is to explore the other seeds and nuts when you're allergic to peanuts :( The best advice I've read recently is to buy nuts in the shell... very little chance of cross contamination. Some people with peanut allergies are also allergic to one or more of the tree nuts (like almonds, walnuts, pistachios, etc...), but it's not automatic. Worth a try. Nuts are very satisfying and they would give you both protein and fat. Walnuts in particular have lots of omega 3 fatty acids :)

YoloGx Rookie

Good comments so far, particularly the hypoglycemia angle and need for protein. You might also try going off rice for a while too--it might be an allergen for you--possibly severe. Some of us have to go off all grains at least for a while in order to heal. Try squash and roots as alternative carbs for a while.

Do consider eating meat, seeds and/or nuts. If your body requires meat to be healthy, you should listen to it rather than what your head says you "ought to do." We are all different. Some thrive on vegetarian fare and others do not. Do you know what blood type you are? If type O the chance you need meat is even higher.

Do also eat lots and lots of vegetables. Many vegetarians I know are actually what I call "pastafarians" and eat far too few green leafy veggies. Vegetables help with the blood sugar balance amongst other things.

As far as the possible candida overgrowth angle--that too should be looked into and is highly suspect given your response...If so, also try avoiding all sugar and fruit for a while...Its not that uncommon. Use powdered stevia as a sweetner instead. Its made from the stevia plant and is not harmful--it just tastes sweet but adds no sugar.

Another angle is soy--some really cannot tolerate it.

Hope some of the advice given here by us all helps...

A test by a doctor sometime if any of this continues in such a severe fashion despite all efforts might be in order. It wouldn't hurt to get tested for celiac either... as well as for your blood sugar etc.

However I think it might be wise to give a non gluten, non quick carb and non sugar, anti candida diet a couple of weeks first to see what happens. Often the first 5 days are the worst with all kinds of strange symptoms, crankiness and desires for carbs, light headedness and fuzzy thinking etc., so bear with it. If you are bloated, fart a lot, have a white coated tongue in the morning, and just have to have sweets or carbs and perhaps have some fungus etc. somewhere or other this could be you. But in case its just hypoglycemia, be sure to eat several small meals a day. A snack of sunflower seeds for instance might be good if you start to feel faint... Chew well!

Bea

ang1e0251 Contributor

I know someone mentioned anemia and that's a possibility but what you described would be a typical hypoglycemic crash for me. Add to that shakiness and breaking out in a dripping sweat and there you go.

Every has given you great advice and I'm just going along with it. I cannot function without more protein than most people. I've also been more careful about adding extra dietary fats lately to cotrol blood sugar and lose weight. I feel much better this way too. It does entail planning though. I eat 3 meals and small snacks throughout the day to avoid crashing.

I have 3 scrambled eggs at breakfast with onion and tomato and now I'm eating cheese and grapes for a snack. I need to eat something almost every hour. If I can get in that extra fat, I can go longer. Like the others have said I rely heavily on meats, eggs and nuts. I would try to never go out like you did on all carbs plus I try to have something in my purse to fall back on, a Lara bar or nuts.

I know you said you cannot tolerate some of the foods I eat but I'm showing you my diet so you can get and idea of how much protein you need to look for. You must have that balance or you will continue to have those crashes. Also if you are very hungry, indulge it with safe food. Your body is telling you it needs more nutrients right now. Later that constant hunger may pass but for now, listen to your body and give it what it needs.

samcarter Contributor

You stated that you were a vegan due to food allergies...are you allergic to eggs? if not, I would really recommend adding eggs to a morning meal. If you are allergic to eggs, are you allergic to all meats? It's rare to be allergic to all meats. Some people are allergic to pork or beef, but rarely are people allergic to chicken.

I completely understand *wanting* to be a vegetarian. I was vegetarian from age 14 till 25, and then I went vegan. Unfortunately, by the time I had my third child, I was suffering a severe carnitine deficiency (a chemical mostly available in red meats and other animal products). Because I was, as another poster put it, a "pastatarian", I ate a lot of wheat which probably wasn't good.

I now eat a gluten free, dairy free, soy free diet that incorporates veggies and meat and the fruits I'm not allergic to, and feel much better.

Cinnamon7778 Rookie

Thank you

Last night I actually ate something that was fulfiiling. I made the Lime mint quinoa (Karina receipe) with yam cinnamon, walnuts, raisins, agave and I baked it in olive oil. It was delicious. For breakfast I am going to have hot quinoa cereal with blueberries and walnuts etc. So I'm getting there. My question however is what can I substitue beside meat for the fat intake? Its beyond the animal rights thing. My body does not function well when I eat meat or flesh it just doesn't.

My dear, you have to eat something.

Or you won't be able to function, period. Especially on rice and sugar.

You can't starve yourself out of this. You need protein, fruit, vegetables, and fat at every meal if you are going to pull this off.

Otherwise, if you have allergies to the mainstay foods used in vegetarianism, and can't tolerate dairy for cheese and yogurt, you are going to have to add in something like meat, fish, or eggs.

Cinnamon7778 Rookie

I am not allergic to meat I just lethargic and heavy when I eat meat. The frequency of my bowel movement change and so I become clogged and I experience mood swings. It may sound crazy but this is what I've noticed. I really don't like those feelings or symptoms coupled with the ones I am experiencing now. OMG So, I am not sure what I should do!!! :blink:

You stated that you were a vegan due to food allergies...are you allergic to eggs? if not, I would really recommend adding eggs to a morning meal. If you are allergic to eggs, are you allergic to all meats? It's rare to be allergic to all meats. Some people are allergic to pork or beef, but rarely are people allergic to chicken.

I completely understand *wanting* to be a vegetarian. I was vegetarian from age 14 till 25, and then I went vegan. Unfortunately, by the time I had my third child, I was suffering a severe carnitine deficiency (a chemical mostly available in red meats and other animal products). Because I was, as another poster put it, a "pastatarian", I ate a lot of wheat which probably wasn't good.

I now eat a gluten free, dairy free, soy free diet that incorporates veggies and meat and the fruits I'm not allergic to, and feel much better.

samcarter Contributor
I am not allergic to meat I just lethargic and heavy when I eat meat. The frequency of my bowel movement change and so I become clogged and I experience mood swings. It may sound crazy but this is what I've noticed. I really don't like those feelings or symptoms coupled with the ones I am experiencing now. OMG So, I am not sure what I should do!!! :blink:

Then I would recommend adding eggs. If you have quinoa in the morning, one thing I love with quinoa is a gently poached egg (more digestible than hardboiled or scrambled). Or perhaps you could have a smoothie with some protein powder.

Bottom line is, you need more protein in your diet. It will keep your blood sugar levels on an even keel. If you can digest any beans at all (I can't, they go right through me) try experimenting with different types of beans. Lentils can be very digestible. You mentioned not tolerating nuts, can you tolerate sunflower seeds? Sunflower "butter" (a substitute for peanut butter) is very tasty and high in protein.

I don't notice problems with meat, but I try to eat veggies when I eat meat. More veggies, drink lots of water--if you're not hydrated you'll get clogged for sure!, and fruit. Eating fresh pineapple with meat can help digest the meat, if you lack the enzymes.

Cinnamon7778 Rookie

Oh my goodnees, I use rice dreams and was unaware of the barley mix. Also, should I purchase separate cooking utensils from those I use for family so as not to cross contaminate? :blink:

In addition to the great advice you have already gotten, how long have you been gluten free and do others in your home still eat gluten? With your symptoms the night before and the reaction you had this morning I am wondering if gluten could have snuck in someplace.

Also what rice milk do you use? Rice Dream is not gluten free so if you are using that brand you may want to switch to perhaps Pacific brand. Rice Dream uses barley enzymes but don't list them on the label and although the company that produces it considers it gluten free many, many of us have had reactions.

Cinnamon7778 Rookie

I can have pumpkin and I did not think to mix it withspices and butter. I was trying to find a brand of butter for vegans thats soyfree. Thank you for this post. I will definitely look for the brand you named. :lol:

Not sure why you are avoiding pumpkin unless I missed something. Pumpkin is suprisingly a very good carb choice. Has less impact on the blood sugar. I am on a lowcarb diet specifically designed for diabetes and it is one of the few carbs allowed. I have often have some as my breakfast carb choice. Mix it with some spices and butter, spread or cream, a bit of sweetener/or alternative if your body allows and warm it up. Earthbalance just came out with a new spread that is soy-free and may work for you.
Cinnamon7778 Rookie

TYhanks for this post. I am actually afraid to try other nuts because of the symptoms I experience after eating them i.e. peanuts, pistachios, cashews, brazil nut (feel like rocks in my stomach) etc. So far I've been abble to eat walnuts and almonds. WHEW! But who knows only time will tell if it will last. I also purchased some pumkin seeds of which I am afraid to try but will do so today as a snack :o. Smile Sometimes all i can do is smile or laugh because this celiac disease is no jjoke but comically when I look at what I have to do to maintain. Thank you Jibril for this post. Especially in regards to getting the fats and protein I need as a vegan and etc. ;)

I know how scary it is to explore the other seeds and nuts when you're allergic to peanuts :( The best advice I've read recently is to buy nuts in the shell... very little chance of cross contamination. Some people with peanut allergies are also allergic to one or more of the tree nuts (like almonds, walnuts, pistachios, etc...), but it's not automatic. Worth a try. Nuts are very satisfying and they would give you both protein and fat. Walnuts in particular have lots of omega 3 fatty acids :)
Cinnamon7778 Rookie

My blood type is O positive. I also believe that I have a candida isuue as well. How do I address this on top of the gluten free diet? Oh my goodness, I am really going to starve. No fruit, rice, agave and stuff. I'm open for advice if you have more information. What will eat while trying to address the above? :blink:

'

Good comments so far, particularly the hypoglycemia angle and need for protein. You might also try going off rice for a while too--it might be an allergen for you--possibly severe. Some of us have to go off all grains at least for a while in order to heal. Try squash and roots as alternative carbs for a while.

Do consider eating meat, seeds and/or nuts. If your body requires meat to be healthy, you should listen to it rather than what your head says you "ought to do." We are all different. Some thrive on vegetarian fare and others do not. Do you know what blood type you are? If type O the chance you need meat is even higher.

Do also eat lots and lots of vegetables. Many vegetarians I know are actually what I call "pastafarians" and eat far too few green leafy veggies. Vegetables help with the blood sugar balance amongst other things.

As far as the possible candida overgrowth angle--that too should be looked into and is highly suspect given your response...If so, also try avoiding all sugar and fruit for a while...Its not that uncommon. Use powdered stevia as a sweetner instead. Its made from the stevia plant and is not harmful--it just tastes sweet but adds no sugar.

Another angle is soy--some really cannot tolerate it.

Hope some of the advice given here by us all helps...

A test by a doctor sometime if any of this continues in such a severe fashion despite all efforts might be in order. It wouldn't hurt to get tested for celiac either... as well as for your blood sugar etc.

However I think it might be wise to give a non gluten, non quick carb and non sugar, anti candida diet a couple of weeks first to see what happens. Often the first 5 days are the worst with all kinds of strange symptoms, crankiness and desires for carbs, light headedness and fuzzy thinking etc., so bear with it. If you are bloated, fart a lot, have a white coated tongue in the morning, and just have to have sweets or carbs and perhaps have some fungus etc. somewhere or other this could be you. But in case its just hypoglycemia, be sure to eat several small meals a day. A snack of sunflower seeds for instance might be good if you start to feel faint... Chew well!

Bea

Cinnamon7778 Rookie

Do you have a particular kind of protein powder that you could suggest. I am afraid to eat meat. :unsure: Just thinking about it scares me. I can't eat sunflower seeds but I do eat alot of veggies. I was not aware of the rice chex thing. Aslo, someone just informed me that Rice Dreams (milk) has barley enzymes and of course this is the brand I've been using!! I eat wanust and almonds and so far no problems. I ordered cooks books Susan O Brian Wheat free, gluten free cookbook for vegan and Donna Klein cookbook so hopeful I'll find receipes that are not only nutritious but delicious. ;)

Then I would recommend adding eggs. If you have quinoa in the morning, one thing I love with quinoa is a gently poached egg (more digestible than hardboiled or scrambled). Or perhaps you could have a smoothie with some protein powder.

Bottom line is, you need more protein in your diet. It will keep your blood sugar levels on an even keel. If you can digest any beans at all (I can't, they go right through me) try experimenting with different types of beans. Lentils can be very digestible. You mentioned not tolerating nuts, can you tolerate sunflower seeds? Sunflower "butter" (a substitute for peanut butter) is very tasty and high in protein.

I don't notice problems with meat, but I try to eat veggies when I eat meat. More veggies, drink lots of water--if you're not hydrated you'll get clogged for sure!, and fruit. Eating fresh pineapple with meat can help digest the meat, if you lack the enzymes.

Cinnamon7778 Rookie

Thank you for sharing your experiences. They are very helpful. I was unaware of the results I would experience after eating 2 bowls of rice chex with rice milk (rice dreams which contains barley). I figured if my daughters could eat cereal and make it through so can I. Also, until recently I've always been able to eat one main meal with a sald and some fruits and nuts for years. This drastic change is sudden. I guess it was accumalating and it reached its point. So, this was a shock to me. I tried to do my best to eat healthy; especially after becoming a vegan.

I know someone mentioned anemia and that's a possibility but what you described would be a typical hypoglycemic crash for me. Add to that shakiness and breaking out in a dripping sweat and there you go.

Every has given you great advice and I'm just going along with it. I cannot function without more protein than most people. I've also been more careful about adding extra dietary fats lately to cotrol blood sugar and lose weight. I feel much better this way too. It does entail planning though. I eat 3 meals and small snacks throughout the day to avoid crashing.

I have 3 scrambled eggs at breakfast with onion and tomato and now I'm eating cheese and grapes for a snack. I need to eat something almost every hour. If I can get in that extra fat, I can go longer. Like the others have said I rely heavily on meats, eggs and nuts. I would try to never go out like you did on all carbs plus I try to have something in my purse to fall back on, a Lara bar or nuts.

I know you said you cannot tolerate some of the foods I eat but I'm showing you my diet so you can get and idea of how much protein you need to look for. You must have that balance or you will continue to have those crashes. Also if you are very hungry, indulge it with safe food. Your body is telling you it needs more nutrients right now. Later that constant hunger may pass but for now, listen to your body and give it what it needs.

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      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
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