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Building A Gluten Tolerance


Lawrence

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Lawrence Apprentice

I read this article and although it does not mention gluten I think it can be applied to it:

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Darn210 Enthusiast

Celiac disease is NOT an allergy. It is an autoimmune disease. What may work for an allergy is not going to work for Celiac disease.

I'm going to repeat myself . . .

Celiac disease is NOT an allergy. This type of therapy would be dangerous for someone with Celiac Disease.

Takala Enthusiast
" while it doesn't mention gluten, I think it can be applied to it..."

NO. <_<

Pac Apprentice
... it does not mention gluten I think it can be applied to it:

Of course it can be applied to gluten, if you are ALLERGIC to it, but trying this with a celiac disease is like trying to cure diabetes buy using gradually smaller doses of insulin. It's not gonna work.

From what I've read so far, there are documented cases when diagnosed celiacs, after their symptoms disappeared on gluten-free diet, started to eat gluten again and the symptoms didn't reappear until years, in one case over 30 years, later. But at the same time, the symptoms can be so diverse that the first one you notice may as well be cancer. Is the taste of wheat really worth the risk? (IMHO, lot of gluten-free grains taste much better than wheat ;) )

Amyleigh0007 Enthusiast
Of course it can be applied to gluten, if you are ALLERGIC to it, but trying this with a celiac disease is like trying to cure diabetes buy using gradually smaller doses of insulin. It's not gonna work.

From what I've read so far, there are documented cases when diagnosed celiacs, after their symptoms disappeared on gluten-free diet, started to eat gluten again and the symptoms didn't reappear until years, in one case over 30 years, later. But at the same time, the symptoms can be so diverse that the first one you notice may as well be cancer. Is the taste of wheat really worth the risk? (IMHO, lot of gluten-free grains taste much better than wheat ;) )

That's right. That's why a long time ago doctor's thought you could outgrown Celiac disease. When kids went gluten free they healed, their symptoms went away and the doctors told them they were cured! They could eat gluten again! Only now we know that is not true at all! Once you have Celiac disease you have it forever.

phakephur Apprentice
Only now we know that is not true at all! Once you have Celiac disease you have it forever.

I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.

Switch2GF Rookie
I think it can be applied to it

Celiac disease is NOT an allergy. This type of therapy would be dangerous for someone with Celiac Disease.

:D

Personally, I've seen the opposite of the article. I switched to gluten-free because of non-bathroom related symptoms. After almost a year of being gluten-free, I have more symptoms now than I did before I switched to the gluten-free diet. It is VERY frustrating in the short term, but I know I am better off in the long run.


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Korwyn Explorer
:D

Personally, I've seen the opposite of the article. I switched to gluten-free because of non-bathroom related symptoms. After almost a year of being gluten-free, I have more symptoms now than I did before I switched to the gluten-free diet. It is VERY frustrating in the short term, but I know I am better off in the long run.

I have had similar issues. I had a very rapid improvement when I went gluten-free, then I started to deteriorate again. As I eliminated various things I found that I am sucrose (sugar), soy, and casein (I knew this from my lab work but didn't want to accept it) intolerant. I actually have an almost immediate response to soy that is even worse than my gluten response.

I'm doing much better now, and I'm losing weight for the first time in 20 years.

Nancym Enthusiast

I think when you're immune system isn't constantly bombarded with stuff it finds issue with it can mount a stronger attack when it does find badness. So lets say your immune system is working at 80% trying to deal with what it thinks is a foreign invader, gluten. It doesn't have the resources to deal so much with soy and casein, or whatever else is bugging you. So when it finally calms down from the gluten it might have additional resources to apply to other things it dislikes. That's what I think happens.

And when you finally get everything out that your body dislikes... then when you get accidentally glutened you're going from 0% immune response to 100% and it's a pretty violent shift.

Anyway that's how I think of it. :)

I think allergies operate similarly, I heard some allergy doctors talking about a patient who wasn't allergic to ferrets. His ferret died, he got a new one, and suddenly he was allergic. They suggested he probably was allergic before but his immune system getting a rest from it responded much, much stronger when he got the new ferret.

ang1e0251 Contributor
I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.

I don't have a scientific link to post here for you. All I know is that reading the signatures of members and hearing their stories, I am convinced it is true. I have to keep in mind there's a lot the medical community doesn't know about celiac disease and what they seem to know, they argue about like the different genes linked to it.

I'm not looking for a cure because I don't think I would believe the truth of it anyway. I have been overlooked by dr's for years from their ignorance and I have seen many "great" drugs pulled after they killed people. I have to go with my gut and my gut says I'm off gluten for life.

Pac Apprentice
I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

It's just a theory. Leading and generally accepted theory based on current research. There's nothing like proving a theory right in science. You can prove it wrong or prove the opposing theory wrong to support the original theory. It like you don't get "true" and "false" theories, just "false" and "not-yet-false" ones.

Maybe someone should go through medical records and find out what happened to all those "cured" celiacs, who were diagnosed while CS was believed to be a childhood disease. It would be a good topic for some med student disertation.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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