Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Also Having Problems With Gluten Free Chex


dogle

Recommended Posts

Lisa Mentor

This is information regarding "Certified Gluten Free"...

http://www.celiaccentral.org/gluten-free-certification/

Please note, that "certified gluten free" makes no claim of ZERO gluten, it is an endorsement from celiac organizations, that a particular product is with compliance with the federal standard or 20 ppm or less.

In defense of Chex. I do not have an issue with their gluten free products I'm not sure if they have a separate facility for their gluten free products, nor does that concern me. I've been gluten free since 2005.

If you are only buying 'Certified Gluten Free" Products, you might be getting pretty hungry. And if you're new to the diet, it's best to eat whole foods for a while and stay away from processed food and dairy for a while.

Bet of luck to you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 72
  • Created
  • Last Reply

Top Posters In This Topic

  • kareng

    5

  • Ahorsesoul

    4

  • BeckyP

    4

  • Scott Adams

    3

Top Posters In This Topic

  • kareng

    kareng 5 posts

  • Ahorsesoul

    Ahorsesoul 4 posts

  • BeckyP

    BeckyP 4 posts

  • Scott Adams

    Scott Adams 3 posts

kareng Grand Master

This is information regarding "Certified Gluten Free"...

http://www.celiaccentral.org/gluten-free-certification/

Please note, that "certified gluten free" makes no claim of ZERO gluten, it is an endorsement from celiac organizations, that a particular product is with compliance with the federal standard or 20 ppm or less.

In defense of Chex. I do not have an issue with their gluten free products I'm not sure if they have a separate facility for their gluten free products, nor does that concern me. I've been gluten free since 2005.

If you are only buying 'Certified Gluten Free" Products, you might be getting pretty hungry. And if you're new to the diet, it's best to eat whole foods for a while and stay away from processed food and dairy for a while.

Bet of luck to you.

Good explanation! Thanks.

I think we imagine that there is some person in a lab coat, with a test tube & a microscope, testing each batch and stamping " certified" on the package. Lol

  • 3 years later...
Loveisart237 Newbie

I have a wheat allergy and I'm currently at the point where the last threee times i ate chex. Gluten free chocolate cereal I've been knocked out for hours after and nauseous.  I believe they are cross contaminated and will be contacting chex soon 

  • 1 year later...
laf2005laurie Rookie

I think the mystery has been solved this week in the news: Glyphosate in General Mills Cereal reported by the FDA.  It only took 'em a bit less than a decade.

  • 1 month later...
wannabnormalagain Newbie
On 6/18/2019 at 11:20 PM, laf2005laurie said:

I think the mystery has been solved this week in the news: Glyphosate in General Mills Cereal reported by the FDA.  It only took 'em a bit less than a decade.

Hah! I was FFing to the end of this thread to reply the same.. Glyphosate indeed. Scary stuff.. gonna have to go organic/non-GMO. I just had a bowl of cinnamon Chex and my throat feels weird and I’ve got heart palpitations. 

RosieRosie Newbie
On 8/28/2012 at 8:58 PM, Chalula88 said:

The cinnamon chex make me very, very ill as well. This is the first time I have ever gotten sick from a gluten free food. I am pretty sure it is some kind of gluten CC because I have eaten all of the ingredients in other foods without a problem.

I did some research and the website said something about GMO being a culprit. Could this be making people sick?

 

  • 5 months later...
BeckyP Newbie

I'd like to also broadcast my experience with eating Cinnamon Chex two days ago. 

I hadn't really eaten any cereal in probably a year or more, other than a bite or two.  So, I decided to fix myself a bowl of Cinnamon Chex (2-3 servings) a couple days ago (with no milk, just dry).  Within an hour of finishing the bowl, my stomach started to cramp.  The pain intensity increased as the day went on and forced me into my recliner with a heating pad on my belly.  While I was going through all the pain, I had something pop in the top right side of my head that scared me to death ... I thought it was a stroke!  But, I was ok ... and it seemed to be an instant migraine of some sort.  So ... I suffered for about 7 hours until I went to bed and passed out.  I could not even eat supper that night.  I slept heavy and deep ... I guess from the exhaustion of all the pain.  The next day, I had an enormous bowel movement, tons of bowel noises and a headache.

I now have about 3 weeks of misery ahead until I get back to normal.  I will now go through brain fog, skin rashes, migraines, terrible anxiety, severe constipation, insomnia, irritability, etc.  I've been strictly gluten free for several years ... including no eating out.  I prepare every scrap of food, from-scratch that goes into my mouth.  I only eat meat, veggies, fruit and rice.  I KNOW, now, that Chex is NOT gluten freeThanks Chex for not truly caring about your customers! ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I eat cinnamon and other flavors of Chex cereal regularly with no problems .   I know many Celiacs that also eat them with no issues.  

BeckyP Newbie
2 minutes ago, kareng said:

I eat cinnamon and other flavors of Chex cereal regularly with no problems .   I know many Celiacs that also eat them with no issues.  

I can only conclude after reading about everyone else here that have had problems with Chex that:

1) I got a box that does contain gluten, as did the others here ... and that those who can eat Chex perhaps are getting clean boxes.

or

2) People who can eat Chex are not nearly as sensitive to gluten as the rest of us who have had problems with it.  I've read through the years that some folks are not nearly as sensitive as others to gluten.  I've also read where the people who are not nearly as sensitive often eat gluten without knowing it. 

I can assure you, my body knows when it's eaten gluten and I am in full blown Celiac attack right now because of it.

kareng Grand Master
6 hours ago, BeckyP said:

I can only conclude after reading about everyone else here that have had problems with Chex that:

1) I got a box that does contain gluten, as did the others here ... and that those who can eat Chex perhaps are getting clean boxes.

or

2) People who can eat Chex are not nearly as sensitive to gluten as the rest of us who have had problems with it.  I've read through the years that some folks are not nearly as sensitive as others to gluten.  I've also read where the people who are not nearly as sensitive often eat gluten without knowing it. 

I can assure you, my body knows when it's eaten gluten and I am in full blown Celiac attack right now because of it.

So let’s assume that somehow there is gluten in the cereal.  What they say when you called?  Did they tell you how to send the cereal back for testing?  

BeckyP Newbie
11 minutes ago, kareng said:

So let’s assume that somehow there is gluten in the cereal.  What they say when you called?  Did they tell you how to send the cereal back for testing?  

There's no doubt that there is gluten in the cereal that I ate as I had eaten nothing else but that cereal.  I got online and found this forum where others had the same problem.  Additionally, their cereal is NOT certified gluten free ... do disputing that fact!  General Mills also has the reputation of not caring about what goes into their products.  Two days later, my abdomen is still hurting and in terrible waves of pain and I've been on a heating pad ever since ... plus ... suffering from all my typical glutened symptoms.  In my eyes, it is indisputable that my box of cereal had gluten in it.  No need to call them.  I am positive that since they would label something gluten free that is not, they could care less if their cereal hurt me!  They would be out of business if they admitted any guilt.  ha!  ?

Feel free to keep eating the cereal if you like; I'm merely posting my experience with that poisoned cereal so that others who are very sensitive to gluten will know to either stay away from that brand or will find comfort in my story because they too experienced the same reaction to that cereal.

NNowak Collaborator

As we often say, not everything is attributed to Celiac. Corn is a common sensitivity/allergy for a number of people. It seems Celiacs are just as prone to other food sensitivities as everyone else. Perhaps keep track of what triggers ill feelings and keep a diary. Personally, I don’t eat “mainstream” cereals. I rarely eat gluten-free cereals from the gluten-free aisle either as I cannot tolerate oats and they seem to be everywhere as a cheap filler. 
 

Good luck!!

BeckyP Newbie

Oh yes ... I know as I’ve been a Celiac for years and I know about intolerance to other foods.  I am not intolerant to any ingredient listed on the label of the Chex cereal I ate. I am intolerant to the gluten that was in it. Ha!

  • 3 months later...
jen21 Newbie
On 1/8/2020 at 8:08 PM, BeckyP said:

Oh yes ... I know as I’ve been a Celiac for years and I know about intolerance to other foods.  I am not intolerant to any ingredient listed on the label of the Chex cereal I ate. I am intolerant to the gluten that was in it. Ha!

I have heard many people who do not have celiacs disease also vomit and get sick. It's not just the pestisides but also bht that can make people sick

 

I think they are gluten-free because I never get sick on the gluten-free cheerios only chex. the chex is made with bht

  • 1 year later...
Maxx darko Newbie

Hi there!! You are not alone. I too have been feeling on and off unwell and I had been eating cinnamon Chex for two weeks now. Feeling super drained and tired for no reason no cold no flu nothing everything checks out clear. But no matter why Chex cereal I eat that are gluten free it’s the same outcome. My ears and head feel on fire and foggy. Celiac disease is so hard specially with all these brand claiming gluten free but do they actually test their products in groups of people who have gluten allergies. Do they do actually studies!? I know a lot of brand even if they clean the machines from the other cereals they make it sadly isn’t enough to claim to be gluten free when the tinniest trace of gluten caught in the machines can cause trouble for us :( I sadly have three boxes left so I’ll just have to get rid of them and have more whole food for breakfast as well. 
 

I hope this helps you and know that you are not alone in this fight!

 

-Maxx

Scott Adams Grand Master

Welcome to the forum.

Eating high carb cereals that contain lots of sugar can also cause a variety of gastro issues, so perhaps this is the source of your discomfort?

Chex have been considered to be gluten-free for years, and they've never had a product recall. Anything is possible with regard to having bad luck and getting a box that was somehow contaminated, but in general GM cereals are reliably gluten-free:

https://www.chex.com/products/cinnamon-chex

Quote

INGREDIENTS

Whole Grain Rice, Rice, Sugar, Canola and/or Sunflower Oil, Salt, Rice Fiber, Cinnamon, Molasses, Natural Flavor. Vitamin E (mixed tocopherols) Added to Preserve Freshness.

 

Maxx darko Newbie

Yes that can also be true! I guess my blood sugar levels checked before and there was no high levels on the test. I also don’t eat a lot of sugar either this is basically one high sugar things I eats. But oddly enough it’s about only 5 to 6g of sugars per serving

 

with a few other things that are gluten free like oats I also cannot have either as I’ll feel super I’ll the next few hours to days after consuming any small traces of gluten. But I’m still very new to celiac disease as I was diagnosed last year and have been trying to navigate my way through a lot of food ls now turning to more whole food for better gut health :) Found these forms so helpful!!

Scott Adams Grand Master

So 5-6g of sugar per serving would be misleading. They are made mostly of rice, which is a starch that almost instantly gets converted to sugar when you eat it, so the glycemic impact of this is much greater than just the added sugar. I've heard that eating white rice will spike your blood sugar faster than eating table sugar. I'm not sure if this statement is true or not, but I do know that white rice will spike your blood sugar.

  • 3 months later...
Andre Newbie
On 6/29/2021 at 11:47 AM, Scott Adams said:

Welcome to the forum.

Eating high carb cereals that contain lots of sugar can also cause a variety of gastro issues, so perhaps this is the source of your discomfort?

Chex have been considered to be gluten-free for years, and they've never had a product recall. Anything is possible with regard to having bad luck and getting a box that was somehow contaminated, but in general GM cereals are reliably gluten-free:

https://www.chex.com/products/cinnamon-chex

 

Hi there! This is probably a little late, but I recently bought 7 boxes of Honey Nut Chex because I really like them and they were on sale. Note that although I have been diagnosed with Celiac ( blood tests, endoscopy and biopsy) I do not suffer from any of the usual gastric symptoms. My symptoms are all inflammatory (joints, itchiness) as well as the usual malabsorption of nutrients. The Chex I bought all contained a considerable amount of other cereals (Cheerios, Lucky Charms) both produced by General Mills. The boxes all have the Gluten Free label though not "Certified". That's the first time that I have noticed this contamination. It appears as though they didn't appropriately clean the packaging equipment between runs.

I called customer service and they apologized (like 30 times) and offered to send me coupons to replace the cereal. I told them that I really wasn't all that interested in acquiring more of a product that I no longer had confidence in. I gave them the best before date and batch numbers. They asked for photos of the product and my receipts. Since then, nada. No further response. 

I am saddened as there are not a lot of affordable gluten-free cereal options in Canada. I had stopped eating Cheerios since they removed the gluten-free label. 

Has anyone else had better service from General Mills customer service? Thanks!

trents Grand Master
(edited)

Andre, you might want to look at hot cereals. My favorite has become buckwheat groats. It's the seeds of a plant in the same family as Rhubarb and not related to wheat. Delicious! But it is a long cook cereal, about 10 minutes: https://smile.amazon.com/Organic-Hulled-Buckwheat-Groats-Anthonys/dp/B00QKXVAN2/ref=sxts_rp_s1_0?crid=2RE86Q2DTPK9Z&cv_ct_cx=anthony's+buckwheat+groats&dchild=1&keywords=anthony's+buckwheat+groats&pd_rd_i=B00QKXVAN2&pd_rd_r=563d3452-9ce8-4107-a2f0-b1587260ad6e&pd_rd_w=lTt1X&pd_rd_wg=M2kqO&pf_rd_p=29dcfc78-5030-4047-b3bb-fd095cf7aa8a&pf_rd_r=315QFCYQZJW6PY3EWSNQ&psc=1&qid=1635481007&sprefix=anthony's+buc%2Caps%2C140&sr=1-1-f0029781-b79b-4b60-9cb0-eeda4dea34d6

I put a pad of butter and some sugar in it. Bacon and egss on the side. Yum! Much more nutrition than Chex. 

This alternative will probably save you money. Processed boxed cereals like Chex are not cheap.

Edited by trents
Scott Adams Grand Master

This article may be helpful:

 

  • 5 weeks later...
UncertainTea Newbie

Yeah I ate some Chex the other day and noticed my stomach bloated a bit and throat got itchy.  I'm not sure if it's the rice Chex or not because I eat Starbucks gluten free marshmallow dream bar and have no problems.  I think some of us are more sensitive than others, my sister is also a Celiac and she eats Popeyes fried chicken and biscuits and all she gets is a little gassy and that's it. If I were to do that I would tumble over in pain for days. She also eats regular bread, the oatmeal bread that has wheat and she has no side effects. I'm not sure why my system is so much more sensitive than hers, but she's gone through her fair share of pain also. 

trents Grand Master
1 minute ago, UncertainTea said:

Yeah I ate some Chex the other day and noticed my stomach bloated a bit and throat got itchy.  I'm not sure if it's the rice Chex or not because I eat Starbucks gluten free marshmallow dream bar and have no problems.  I think some of us are more sensitive than others, my sister is also a Celiac and she eats Popeyes fried chicken and biscuits and all she gets is a little gassy and that's it. If I were to do that I would tumble over in pain for days. She also eats regular bread, the oatmeal bread that has wheat and she has no side effects. I'm not sure why my system is so much more sensitive than hers, but she's gone through her fair share of pain also. 

Though your sister's symptoms are minimal when she eats gluten, that doesn't mean she isn't experiencing damage to the villi of her small bowel. Someone needs to point that out to her because she is risking serious health problems down the road.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed


  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.