Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Be Glutened Topically?


TotalKnowledge

Recommended Posts

TotalKnowledge Apprentice

I had a skin prick test done today, or at least part of one. My blood pressure crashed in the middle of the test. I got light headed, dizzy, and nauseated. Although my blood pressure went back up after a short period of time, I felt bad for hours afterward. My scalp was flushed, my hands cold, and I felt shaky and confused.

Has anyone had a similar experience? Could it have been a reaction to the wheat? The allergist is saying its not an allergic reaction.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

With a skin prick test you wouldn't be glutened topically, they would be injecting it under your skin and from there it would go into the bloodstream. That would be different from topical glutening in that usually refers to gluten exposure through putting a lotion or shampoo etc onto intact skin.

Could it be a reaction from having gluten injected, I would say possibly it is but I am not a medical professional. Many of us do get glutened from using topicals with gluten but that is thought to be from accidental injestion of the product or the product coming into contact with a mucous membrane.

If you were very nervous about the testing, and you have a fear of needles it could have also come from that causing an anxiety reaction which would cause an elevation in blood pressure and nausea.

ang1e0251 Contributor

Sounds similar to the reaction I get if my blood sugar gets too low.

angieInCA Apprentice

Sounds like a blood sugar crash to me also. Which can happen in times of extreme anxiety also.

GlutenGuy36 Contributor
I had a skin prick test done today, or at least part of one. My blood pressure crashed in the middle of the test. I got light headed, dizzy, and nauseated. Although my blood pressure went back up after a short period of time, I felt bad for hours afterward. My scalp was flushed, my hands cold, and I felt shaky and confused.

Has anyone had a similar experience? Could it have been a reaction to the wheat? The allergist is saying its not an allergic reaction.

I don't know about the skin prick test causing a reaction but, I do know that if you use topical products containing gluten such as moisturizers and lotions that you can have a reaction from it without it being ingested. I had a link of a doctor talking about it. If I can find it I will post it to you. I'm not just talking about Dermatitis Herpetiformis either. He went on to say how your skin is an organ and you absorb many things through it and some with Celiac Disease will have a gluten reaction if they use topical products with gluten in it on a regular basis without ingesting it.

I avoid it at all costs. Hope you feel better, Ted.

TotalKnowledge Apprentice

Yeah I meant to change the topic, after I posted I decided that wasn't what I meant, but I couldn't figure out how to change it so I didn't.

I had had a banana and a shake before going in so I don't think it was low blood sugar. If anything it would have been higher than normal.

Needles don't bother me though. My tattoos didn't bother me at all. My back is still a little sore, but everything else got better. Who knows.

:huh:

ravenwoodglass Mentor
Yeah I meant to change the topic, after I posted I decided that wasn't what I meant, but I couldn't figure out how to change it so I didn't.

I had had a banana and a shake before going in so I don't think it was low blood sugar. If anything it would have been higher than normal.

Needles don't bother me though. My tattoos didn't bother me at all. My back is still a little sore, but everything else got better. Who knows.

:huh:

Your reactions almost sound like you were going into shock, I hope they aren't going to repeat the test. I wonder if having wheat injected sent it very quickly into the bloodstream and into the brain causing your sympathetic nervous system to basically freak out. Did you find out if any of the skin pricks were positive?

For me tats and other needles seem so different. I have sat for up to 2 hours having a tattoo done but having them stick one of those darn teflon needles in my vein for an IV seems to hurt a lot more. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



larry mac Enthusiast
I had a skin prick test done today, or at least part of one. My blood pressure crashed in the middle of the test. I got light headed, dizzy, and nauseated. Although my blood pressure went back up after a short period of time, I felt bad for hours afterward. My scalp was flushed, my hands cold, and I felt shaky and confused.

Has anyone had a similar experience? Could it have been a reaction to the wheat? The allergist is saying its not an allergic reaction.

TK,

Incomplete picture. Have you been diagnosed with Celiac disease? Did the allergist say he skin pricked you with wheat?

best regards, lm

darlindeb25 Collaborator

Once again, very hot topic. Obviously, for those who do not react to topical gluten, they believe gluten has to be ingested for a reaction...for those of us who do react to topical gluten, we know it only need touch us to cause a reaction. Those who do not react will never believe us, and those who do, will always share their reactions.

I do react, and I'm sorry you have to deal with this too.

Lisa Mentor

https://www.celiac.com/articles/35/1/Can-pr...iacs/Page1.html

Very few celiacs are likely to have any reaction to topical gluten contact. In order for a gut reaction to occur, it is likely that direct contact with the gut lumen is required. Many people with celiac disease have everyday contact with gluten (for instance, bakers with celiac disease who have contact everyday with wheat flour), and do not have any reaction to it. However, there are, on rare occasion, people who have had an anaphylactoid response to gluten, and these people should avoid gluten in all forms. Also, topical gluten breathed into the upper airways may cause symptoms of allergic rhetinitis in rare instances. If there is a simple alternative to a shampoo, cosmetic, etc., you may want to use the non gluten containing product.

TotalKnowledge Apprentice
TK,

Incomplete picture. Have you been diagnosed with Celiac disease? Did the allergist say he skin pricked you with wheat?

best regards, lm

Not by a doctor, but I am pretty certain I have it. If not Celiac's then Gluten Intolerance. The problems that have resolved since going gluten free, and the fact that when I accidentally eat gluten I have a reaction have convinced me to not eat it anymore.

They did prick for wheat, and barley. I did not know this at the time, but went back and checked the ones they had already tested. There were of course other things in there egg, milk...

lovegrov Collaborator
I don't know about the skin prick test causing a reaction but, I do know that if you use topical products containing gluten such as moisturizers and lotions that you can have a reaction from it without it being ingested. I had a link of a doctor talking about it. If I can find it I will post it to you. I'm not just talking about Dermatitis Herpetiformis either. He went on to say how your skin is an organ and you absorb many things through it and some with Celiac Disease will have a gluten reaction if they use topical products with gluten in it on a regular basis without ingesting it.

I avoid it at all costs. Hope you feel better, Ted.

This is wrong. Protein molecules are simply too large to be absorbed through the skin. In fact, moisturizers and lotions are not absorbed into your body at all. They simply moisturize the outer layers of skin but do not break through the skin barrier. There are many, many things -- in fact, most things -- that cannot be absorbed through the skin. Yes, there are some medications (although not all, you'll note) applied through a patch, but even those medications have to be engineered with a special carrier to get through the skin barrier.

Here's part of a recent column by Tricia Thompson

The Gluten-Free Dietitian

Author The Gluten-Free Nutrition Guide

Co-author The Complete Idiot's Guide to Gluten-Free Eating

"The bottom line: There is no scientific evidence that the use of gluten-containing products that are not ingested is harmful to persons with celiac disease. This includes individuals with dermatitis herpetiformis.

According to Dr. Alessio Fasano, Medical Director of the Center for Celiac Research, University of Maryland, "If you have celiac disease, then the application of gluten containing products to the skin should not be a problem, unless you have skin lesions that allow gluten to be absorbed systemically in great quantities.

"The reason why this should not be a problem is that, based on what we know right now, it is the oral ingestion of gluten that activates the immunological cascades leading to the autoimmune process typical of celiac disease."

There aren

Lisa16 Collaborator

TK--

questions of whether or not you can absorb gluten through the skin aside, it is possible to have gluten intolerance and/or celiac AND be allergic to wheat, barley, etc. You can have both conditions.

I don't thrink pricking the skin with it is quite the same as a topical reaction because they are putting it into your bloodstream. If I am wrong, somebody here wil certainly say so.

The celiac community here is divided on the skin absorption issue, and this is not likely to be resolved anytime soon.

My best advice for you is that if you think you may be allergic to it and if you think you have celiac disease and you suspect that you can absorb it through your skin, then avoid it altogether.

You got this far on your intuition, which seems to be pretty dead on.

Good luck!

darlindeb25 Collaborator
"The reason why this should not be a problem is that, based on what we know right now, it is the oral ingestion of gluten that activates the immunological cascades leading to the autoimmune process typical of celiac disease."

This is the key statement in Dr. Fasano's article. BASED ON WHAT WE KNOW RIGHT NOW...this says it all. They aren't sure, they just think they may be correct.

Jestgar Rising Star

My bottom line is "if it makes you feel bad, don't do it". It doesn't really matter what other people say, it's your body, and it's telling you what it doesn't like.

Jonbo Apprentice
This is the key statement in Dr. Fasano's article. BASED ON WHAT WE KNOW RIGHT NOW...this says it all. They aren't sure, they just think they may be correct.

The doc needs to find me then to figure out why smelling it sets it off since I'm not just getting a reaction to ingesting it. As for the topical thing based on what the OP has said, there must have been something else that set it off since it seems weird that you would crash so hard right after it. Probably going to have to do it again with the same situation and see what happens, and if the same thing occurs, then you need to narrow it down.

I've yet to have any topical reactions to touching gluten foods, but obviously if I have to touch something with Gluten, I make sure to rinse off hands or wipe them off very well if not near a sink.

GlutenGuy36 Contributor

I agree with the others that say if it makes you feel bad then try to avoid it all costs. I don't care what doctor said that it SHOULDN"T cause a reaction topically. If you look around you will see there are some that say they don't know for sure so it's best to avoid it.

lovegrov Collaborator

All I know is that I could roll in flour (not something I would do) and it would have no affect on me whatsoever. And I had DH. I guess some people have larger skin pores or no skin barrier at all. I trust the experts and my own tests.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.