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The Gluten Syndrome--a Great Read


darlindeb25

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darlindeb25 Collaborator

This is probably the best read about gluten intolerance/celiac disease I have seen.

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angieInCA Apprentice

Thank you for posting this. I agree it is very informative and through in it's content. I am printing it off and sharing with family members who still don't get what celiac disease is.

Angela

TrillumHunter Enthusiast

That's a good find, Deb. All the newbies and people who suspect should be directed to it.

Good work! :)

ksymonds84 Enthusiast

Awesome read Deb! Interesting how he commented that many people have a problem with the corn gluten. Thanks for posting!

ravenwoodglass Mentor

I agree this is one of the best if not the best article I have read. It is very through. Thank you so much for sharing this with us!

darlindeb25 Collaborator

You are very welcome. When I saw it this morning, I was very impressed. It touched on everything and explains it so well. It's a little book every gluten intolerant/celiac should have. I am going to try to print it at work, or the library, my printer cant handle that many pages.

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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