Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Look Like Dh?

jshelton999

By jshelton999
in Dermatitis Herpetiformis

Recommended Posts

jshelton999 Apprentice
jshelton999
Posted

I'm in the process of getting everything diagnosed/treated. My gluten antibody test from Enterolab was 124 (normal <10). I've had skin rashes for years that were diagnosed as eczema, stasis dermatitis, psoriasis, etc. but were never effectively treated by any of the prescribed creams/ointments. I've been mostly gluten-free the last couple of months but have accidents here and there. I had GI symptoms the other days and the skin rashes flared-up as well.

Does this look like DH? It's an incredibly itchy, burning rash that I get on my ankles, legs, chest, stomach, scalp and they are always bilateral.

IMG_0449.webp

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

Doesn't look like mine did. Mine were blisters with clear fluid.

richard

declan Newbie
declan
Posted

No, does not look like mind did either, but not everyone is the same.

declan

jshelton999 Apprentice
jshelton999
Posted
  • Author

Thanks for the feedback. If not DH, what else might it be? I get these rashes in response to gluten. No gluten - no rash. Can gluten trigger rashes other than DH?

angieInCA Apprentice
angieInCA
Posted

Yes, that could possibly be DH. THe DH rash I get on my shins looks like that. The DH Rash I get on my arms and scalp look different. And the DH rash I get on my hands looks different still, so I get at least 3 different looking rashes that have all been diagnosed as DH. The one thing they have in common is that they all itch and burn like crazy and they all have clear fluid blisters ranging to extremely small to very large. I have some blisters that have been pin-points and I have had some the have measured 2 inches across. My rashes usually show up within 24 hours of gluten exposure and last for several days. If you really need to know get it to a Dermatologist and have a test done.

digmom1014 Enthusiast
digmom1014
Posted

Doesn't look like mine either, mine itches, has fluid filled raised bumps and has a hard red underlying cyst. As it heals-it scabs and bleeds.

However, I did find something that made it go away a little faster-in about a week. I googled some old stuff I had-pre-diagnosis that is no longer sold in the U.S. It actually was simliar to athlete's foot cream!! I got the cheap CVS brand of it-Clotrimozole-$6.99 a tube. I used it to control the itching and I doubled-up on the probiotic I take. It was on my chin and I couldn't get rid of it fast enough!

Doing both of those things really seemed to help. Since I have been gluten-free, 18 months, this has been my 1st break-out. I got into gluten while visiting, so I didn't want to go to a dermatologist.

glutenmommy Rookie
glutenmommy
Posted

Well, it certainly looks like mine! I have not been diagnosed yet, but I am having a skin biopsy done next week. Mine looks exactly like poison ivy and ONLY comes out when I eat gluten. In fact, I was misdiagnosed with poison ivy for years! (Honestly, who has poison ivy that lasts six months?!) My dermatologist is fairly certain that it's DH just by looking at it and based on all my other symptoms, but she is going to biopsy just to be sure.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jshelton999 Apprentice
jshelton999
Posted
  • Author

Thanks for the great feedback! I have had dermatologists in past years look at this but they didn't even mention DH. Guess I need to find a new doc.

My question to a doctor would be "If you don't think it's DH, then what is it? What other skin condition is bilateral and only occurs with gluten-ingestion?"

BooParks Newbie
BooParks
Posted

Mine was diagnosed as poison ivy for years by my physicians including my allergist. In the end though it became huge blisters, the size of a baseball on my knees and quite deep. It took the longest time to clear up on my feet for some reason, even after the three years it took for me to get off of the dapsone. I'll still get them on my feet and in my mouth first whith an accidental ingestion of gluten. I hate to say this and it could be bad advice since it can cause an infection, yet it does help if I pop the itchy blisters. :unsure:

  • 2 weeks later...
momxyz Contributor
momxyz
Posted

glutenmommy and jshelton -

did you ever get a diagnosis?

bacon Newbie
bacon
Posted

mine looks pretty much like that on my lower legs and forearms. i dont get any of the clear pustules, but do get small bumps all over and blisters on my lower back.

seeing dermatologist for 1st time next week.

hoping for a diagnosis of anything definitve as its 01:30 and I cant sleep for itching!

jshelton999 Apprentice
jshelton999
Posted
  • Author

Thanks bacon. I haven't got a diagnosis yet. I still need to find a dermatologist. I'm seeing a Celiac specialist, but not until October.

  • 4 weeks later...
krawhitham Newbie
krawhitham
Posted

Before I went gluten-free, mine looked similarly to yours after I itched them to death :(

This is what my self-dx DH looks like after a little over a month gluten-free, just wanted to share and get comments:

arm.webp

arm1.webp

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748
    Jeanette K.
    Newest Member
    Jeanette K.
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.