Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Celiac Symptoms?


Mirt

Recommended Posts

Mirt Newbie

My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nu-to-no-glu Apprentice
My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

Yes, definitely sounds like it could be celiac, especially with your daughter having the same condition. I have both types of reactions...sometimes instant and sometimes within hours or days. If you search around on here, you'll see that everyone's reactions to gluten are very different and unique, even within families. I hope you find health and answers :)

runningcrazy Contributor
My daughter, age 22, was diagnosed with Dermatitis Herpetiformis :CELIAC CAN RUN IN A FAMILY nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, joint pain is a common symptomas well as stomach pain and "queasiness" after eating wheat products.this as well Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.gas is common

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.diarrhea is very common

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.vitamin deficiencys are very common among celiacs

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

Everyone is different, although im not confirmed celiac, i feel better of wheat and dairy.

My main problem was constipation. I was losing weight, about 20 lbs under weight(i am 13, 5'4.5, and i got down to 80lbs) I was having stomach pains, and low iron and daily headaches

Other people have diarrhea, weight gain, joint pain, some people have no symptoms at al! But you definately fit in with closer to the "standard" symptoms with diarrhea and joint pain. Gas and stomach pain as well. Vitamin D deficiency,is also very common.

redsidekick Apprentice

I think it would be worth it getting the celiac blood work. What you described (stomach issues after eating wheat) were the beginning of the symptoms for me. I didnt think anything of it until things got worse.

JillianLindsay Enthusiast

Everyone has very different symptoms, and you seem to be aware of the genetic component of celiac disease :) My DR recommended family members get tested at the silghtest symptom because celiac disease is highly genetic. Before making any diet changes it certainly doesn't hurt to get the blood test.

If I were to eat a pretzel I would probably have immediate stomach pains and upset stomach, then fatigue and brain fog for 3-4 days following.

Vitamin deficiency is also a symptom and it's worth getting checked out because of the health risks related to vitamin deficiencies.

Good luck,

Jillian

My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.