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I Wish All I Had Was Celiac


jasonD2

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jasonD2 Experienced

Avoiding just gluten for the rest of my life wouldnt be that big of a deal...but I also have to avoid all dairy, eggs and soy as well...not to mention other foods that give me problems. why does it seem like im the only person on the planet that has to be so restricted?

I'm currently focusing on my candida so is there a chance that someday I will be able to introduce some things back into my diet? will it be possible to ever eat dairy again?


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mushroom Proficient

No, Jason, you are not the only one. Just reading some of the signatures here will tell you that. I agree that the gluten hurdle seems comparatively easy compared to some of the other ones. Soy is probably harder than gluten. I am just finding out how hard potato starch and citric acid are because these are certainly not intolerances that are catered to. While you will find things labelled egg, dairy and soy free, you do not find anything labelled citric acid free or potato starch free :P

burdee Enthusiast
Avoiding just gluten for the rest of my life wouldnt be that big of a deal...but I also have to avoid all dairy, eggs and soy as well...not to mention other foods that give me problems. why does it seem like im the only person on the planet that has to be so restricted?

I'm currently focusing on my candida so is there a chance that someday I will be able to introduce some things back into my diet? will it be possible to ever eat dairy again?

I would love to just have gluten, dairy, eggs and soy allergies. However I also have diagnosed (ELISA blood test) allergies to cane sugar, vanilla and nutmeg. Those allergies eliminate all but a few desserts, baked goods or treats I could buy online or in a local gluten-free bakery. So I bake my own goodies at home or just enjoy fresh fruits. I also have sensitivities to alcohol, caffeine, aspartame and any sorbitol like sweeteners. The good news is all those restrictions force me to eat a very healthy diet of fruits, vegies, gluten-free grains, meats, nuts, legumes and healthy oils. I've also learned to find 'freedom from restriction' in other areas of my life, beyond food and eating.

I eliminated candida without following the very restrictive candida diet. Because I had those other restrictions, I chose to treat candida with nystatin and follow that with probiotics.

If you have a diagnosed (blood test, not skin test) dairy allergy, you probably won't ever be able to eat dairy without reactions. However, if you really just have lactose intolerance or reaction to milk sugar, rather than milk protein, you may be able to reintroduce dairy after your intestinal villae heal from gluten damage.

Rather than focus on what you can't eat, explore all the foods, especially in different ethnic cuisines, that you CAN safely eat. I have more than enough variety despite 7 food allergies and several other sensitivities. Also my husband has 9 food allergies. Since we share 5 of those allergies, I need to only prepare foods for 11 different food allergy restrictions.

SUE

jststric Contributor

It certainly is comforting to see others in this forum that are like us!! I am not only gluten-intolerant, but also dairy, eggs, nuts, rice, beans and spices like pepper, chili powder. Rice and bean flours are the usual alternatives to gluten-free foods and rice flour is often on restaurant items like french fries and other things to keep them from sticking in their packaging before being cooked. I've been at this for 3 1/2 yrs and I still throw myself pity parties quite often, lol. I do have a friend that is allergic to citric acid and I will admit that I have learned how many things THAT is in and its certainly not a fun one to deal with either!!! Hang in there. There's MANY of us out here and you are NOT alone!!

darlindeb25 Collaborator
Avoiding just gluten for the rest of my life wouldnt be that big of a deal...but I also have to avoid all dairy, eggs and soy as well...not to mention other foods that give me problems. why does it seem like im the only person on the planet that has to be so restricted?

I wish I could just avoid gluten too, even just dairy and soy would be nice. I can't eat any grains, none, no nightshades, no cruciferous veggies, no dairy, no red meat, no shellfish...no "gluten free" labeled foods because most still contain up to 20ppm of gluten, and 5ppm is too much for me. I get glutened by the tiniest amount of gluten, simple CC makes me sick for weeks.

You are not alone in this, you are joining a huge group. Sometimes when you listen to people who only avoid gluten talk about all the foods they can eat, it's really hard. We do get by though, and often times I feel those of us who do not eat any grains are being much better to our bodies than those who do eat grains.

YoloGx Rookie

Ah--we are led to believe that gluten is the main problem maybe with also a milk allergy. But like you many of us are pretty restricted well beyond that as well. I am having some real success at improving my diet by going on the specific carbohydrate diet (scd). You might want to check it out.

I actually have found that with it I can expand my diet a little since I already figured out grains did not agree with me. Now I can eat home made 24 hour yogurt and make a kind of yogurt cheese--whereas before cheese was completely out. And yes I can also eat some cheddar now from time to time whereas just a month ago it made me feel horrible... Ditto with fruit. I now can eat fruit every day--and can even eat raw tomatoes.

In addition today I tried an egg and it actually was just fine--haven't been able to eat eggs in years without getting a migraine after. No, I am not going to eat eggs every day, however this and the above other items are great signs that my gut is actually healing with this scd.

There is a thread here on scd started by AliB. The paleo diet is also another alternative.

jasonD2 Experienced

Well Im on the candida diet so im pretty much limiting my carbs anyway- what exactly is the SCD? just avoiding starches, breads, pastas, etc? right now its rice cakes, brown rice and quinoa for me in limited amounts with an occasional sweet potatoe. my BIGGEST problem is maintaining my weight...im already underweight and now im loosing even more. so i cant cut out carbs completely


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YoloGx Rookie

It may be that most grains are fine for you, its just for me and some others here who are really sensitive who don't do well with grains. Some of us have found in addition however that by being on this diet its way easier to get rid of the candida or candida like symptoms. The scd doesn't mean no carbs however--just no carbs or sugars that form complex saccharides. You can still eat squash and most (though not all) starchy vegetables. You can also enjoy eating more fat in your diet--including coconut oil, nuts, cheese as well as animal fats and full fat 24 hour yogurt etc. While you are killing off the candida its probably best to stay off the fruit and honey. Check it out online--Breaking the Vicious Cycle by Elaine Gottschall. There is also a scd support thread here on celiac.com.

AliB Enthusiast

Yup, all of the above. I know I've posted on the other thread but just to reiterate about your weight.

Carbohydrates can actually cause weight loss.

It seems that if you are naturally inclined to be a 'carb-burner', then your body burns carbs as its fuel of choice. Any fats you eat with the carbs and any extra carbs you consume over what your body needs will be converted to fat and stored. That causes weight gain.

If you are a 'fat-burner', then your body will convert the carbs that you consume and any fats and you will not store any fat. Hence the weight loss.

The remedy is actually the same. Reduce the carbs and up the fats. A fat-burner will then have enough fats to fuel the cells properly, and will take on more fat storage, the carb-burner, without enough carbs will be forced to become a fat-burner and will then start to burn their stored fats. The skinny ones put weight on and the fat ones lose it. Amazing!

It's a win-win scenario. Plus, the low-carb, higher fats makes the gut extremely uncomfortable for 'the beasties'. No food, and lots of fatty acids to destroy their membranes. Bye bye beasties. Fantastic.

Carbs also drive blood sugar imbalances. Fats don't affect them at all. Protein a bit but much slower. Carbs spike the blood sugar sending the Pancreas into a panic as it shoves out loads of insulin to bring the sugar level back down. Eventually the cells get tired of the constant bombardment of sugar and start shutting the doors. Insulin resistance sets in. All that extra insulin floating around encourages weight gain. Eventually people develop diabetes.

Those pesky carbs are a pain in the neck.

Jason, if you are concerned about losing more weight on low-carb read this.......

Open Original Shared Link

  • 2 weeks later...
Northland Lady Rookie

I completely agree! I have so many food intolerance's that i am still trying to find. I definately have gluten, white rice, potatoes and goodness knows what else, i cant seem to eat ANYTHING without getting problems.

This site is soo great because most of us understand how hard it is!

debmidge Rising Star

Mike has other food intolerances - see in ending message line

missy'smom Collaborator

I'm starting to GAIN on a very low-carb(6 to 12 g per meal), grain-free, starchy vegetable free, fruit-free, mostly dairy, egg and sugar(all forms)free diet by doing what AliB said-upping protein and fats. I was underweight and loosing before I started it, haven't ever gone back to where I was before I started and have slowly gained, which was my goal. I eat 4 smaller meal a day to try to keep calories up because I seem to need alot of calories to keep my weight on and even more to gain. I'm assuming you don't have a challenged pancreas like I do, so I would think that you could see results sooner than I did. Just letting you know, it can be done!

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    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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