Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Wish All I Had Was Celiac


jasonD2

Recommended Posts

jasonD2 Experienced

Avoiding just gluten for the rest of my life wouldnt be that big of a deal...but I also have to avoid all dairy, eggs and soy as well...not to mention other foods that give me problems. why does it seem like im the only person on the planet that has to be so restricted?

I'm currently focusing on my candida so is there a chance that someday I will be able to introduce some things back into my diet? will it be possible to ever eat dairy again?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

No, Jason, you are not the only one. Just reading some of the signatures here will tell you that. I agree that the gluten hurdle seems comparatively easy compared to some of the other ones. Soy is probably harder than gluten. I am just finding out how hard potato starch and citric acid are because these are certainly not intolerances that are catered to. While you will find things labelled egg, dairy and soy free, you do not find anything labelled citric acid free or potato starch free :P

burdee Enthusiast
Avoiding just gluten for the rest of my life wouldnt be that big of a deal...but I also have to avoid all dairy, eggs and soy as well...not to mention other foods that give me problems. why does it seem like im the only person on the planet that has to be so restricted?

I'm currently focusing on my candida so is there a chance that someday I will be able to introduce some things back into my diet? will it be possible to ever eat dairy again?

I would love to just have gluten, dairy, eggs and soy allergies. However I also have diagnosed (ELISA blood test) allergies to cane sugar, vanilla and nutmeg. Those allergies eliminate all but a few desserts, baked goods or treats I could buy online or in a local gluten-free bakery. So I bake my own goodies at home or just enjoy fresh fruits. I also have sensitivities to alcohol, caffeine, aspartame and any sorbitol like sweeteners. The good news is all those restrictions force me to eat a very healthy diet of fruits, vegies, gluten-free grains, meats, nuts, legumes and healthy oils. I've also learned to find 'freedom from restriction' in other areas of my life, beyond food and eating.

I eliminated candida without following the very restrictive candida diet. Because I had those other restrictions, I chose to treat candida with nystatin and follow that with probiotics.

If you have a diagnosed (blood test, not skin test) dairy allergy, you probably won't ever be able to eat dairy without reactions. However, if you really just have lactose intolerance or reaction to milk sugar, rather than milk protein, you may be able to reintroduce dairy after your intestinal villae heal from gluten damage.

Rather than focus on what you can't eat, explore all the foods, especially in different ethnic cuisines, that you CAN safely eat. I have more than enough variety despite 7 food allergies and several other sensitivities. Also my husband has 9 food allergies. Since we share 5 of those allergies, I need to only prepare foods for 11 different food allergy restrictions.

SUE

jststric Contributor

It certainly is comforting to see others in this forum that are like us!! I am not only gluten-intolerant, but also dairy, eggs, nuts, rice, beans and spices like pepper, chili powder. Rice and bean flours are the usual alternatives to gluten-free foods and rice flour is often on restaurant items like french fries and other things to keep them from sticking in their packaging before being cooked. I've been at this for 3 1/2 yrs and I still throw myself pity parties quite often, lol. I do have a friend that is allergic to citric acid and I will admit that I have learned how many things THAT is in and its certainly not a fun one to deal with either!!! Hang in there. There's MANY of us out here and you are NOT alone!!

darlindeb25 Collaborator
Avoiding just gluten for the rest of my life wouldnt be that big of a deal...but I also have to avoid all dairy, eggs and soy as well...not to mention other foods that give me problems. why does it seem like im the only person on the planet that has to be so restricted?

I wish I could just avoid gluten too, even just dairy and soy would be nice. I can't eat any grains, none, no nightshades, no cruciferous veggies, no dairy, no red meat, no shellfish...no "gluten free" labeled foods because most still contain up to 20ppm of gluten, and 5ppm is too much for me. I get glutened by the tiniest amount of gluten, simple CC makes me sick for weeks.

You are not alone in this, you are joining a huge group. Sometimes when you listen to people who only avoid gluten talk about all the foods they can eat, it's really hard. We do get by though, and often times I feel those of us who do not eat any grains are being much better to our bodies than those who do eat grains.

YoloGx Rookie

Ah--we are led to believe that gluten is the main problem maybe with also a milk allergy. But like you many of us are pretty restricted well beyond that as well. I am having some real success at improving my diet by going on the specific carbohydrate diet (scd). You might want to check it out.

I actually have found that with it I can expand my diet a little since I already figured out grains did not agree with me. Now I can eat home made 24 hour yogurt and make a kind of yogurt cheese--whereas before cheese was completely out. And yes I can also eat some cheddar now from time to time whereas just a month ago it made me feel horrible... Ditto with fruit. I now can eat fruit every day--and can even eat raw tomatoes.

In addition today I tried an egg and it actually was just fine--haven't been able to eat eggs in years without getting a migraine after. No, I am not going to eat eggs every day, however this and the above other items are great signs that my gut is actually healing with this scd.

There is a thread here on scd started by AliB. The paleo diet is also another alternative.

jasonD2 Experienced

Well Im on the candida diet so im pretty much limiting my carbs anyway- what exactly is the SCD? just avoiding starches, breads, pastas, etc? right now its rice cakes, brown rice and quinoa for me in limited amounts with an occasional sweet potatoe. my BIGGEST problem is maintaining my weight...im already underweight and now im loosing even more. so i cant cut out carbs completely


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

It may be that most grains are fine for you, its just for me and some others here who are really sensitive who don't do well with grains. Some of us have found in addition however that by being on this diet its way easier to get rid of the candida or candida like symptoms. The scd doesn't mean no carbs however--just no carbs or sugars that form complex saccharides. You can still eat squash and most (though not all) starchy vegetables. You can also enjoy eating more fat in your diet--including coconut oil, nuts, cheese as well as animal fats and full fat 24 hour yogurt etc. While you are killing off the candida its probably best to stay off the fruit and honey. Check it out online--Breaking the Vicious Cycle by Elaine Gottschall. There is also a scd support thread here on celiac.com.

AliB Enthusiast

Yup, all of the above. I know I've posted on the other thread but just to reiterate about your weight.

Carbohydrates can actually cause weight loss.

It seems that if you are naturally inclined to be a 'carb-burner', then your body burns carbs as its fuel of choice. Any fats you eat with the carbs and any extra carbs you consume over what your body needs will be converted to fat and stored. That causes weight gain.

If you are a 'fat-burner', then your body will convert the carbs that you consume and any fats and you will not store any fat. Hence the weight loss.

The remedy is actually the same. Reduce the carbs and up the fats. A fat-burner will then have enough fats to fuel the cells properly, and will take on more fat storage, the carb-burner, without enough carbs will be forced to become a fat-burner and will then start to burn their stored fats. The skinny ones put weight on and the fat ones lose it. Amazing!

It's a win-win scenario. Plus, the low-carb, higher fats makes the gut extremely uncomfortable for 'the beasties'. No food, and lots of fatty acids to destroy their membranes. Bye bye beasties. Fantastic.

Carbs also drive blood sugar imbalances. Fats don't affect them at all. Protein a bit but much slower. Carbs spike the blood sugar sending the Pancreas into a panic as it shoves out loads of insulin to bring the sugar level back down. Eventually the cells get tired of the constant bombardment of sugar and start shutting the doors. Insulin resistance sets in. All that extra insulin floating around encourages weight gain. Eventually people develop diabetes.

Those pesky carbs are a pain in the neck.

Jason, if you are concerned about losing more weight on low-carb read this.......

Open Original Shared Link

  • 2 weeks later...
Northland Lady Rookie

I completely agree! I have so many food intolerance's that i am still trying to find. I definately have gluten, white rice, potatoes and goodness knows what else, i cant seem to eat ANYTHING without getting problems.

This site is soo great because most of us understand how hard it is!

debmidge Rising Star

Mike has other food intolerances - see in ending message line

missy'smom Collaborator

I'm starting to GAIN on a very low-carb(6 to 12 g per meal), grain-free, starchy vegetable free, fruit-free, mostly dairy, egg and sugar(all forms)free diet by doing what AliB said-upping protein and fats. I was underweight and loosing before I started it, haven't ever gone back to where I was before I started and have slowly gained, which was my goal. I eat 4 smaller meal a day to try to keep calories up because I seem to need alot of calories to keep my weight on and even more to gain. I'm assuming you don't have a challenged pancreas like I do, so I would think that you could see results sooner than I did. Just letting you know, it can be done!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.