Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On Turning A Corner At 21 Months


Lisa16

Recommended Posts

Lisa16 Collaborator

I was diagnosed and went gluten free 21 months ago today, and I realized I have turned some kind of corner. So I thought I would write this for the people who ask


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

Glad you are feeling good! I enjoyed reading that, thanks for posting! :)

ang1e0251 Contributor

Well said!

BeckyMN Newbie

Thank you for this wonderful post. I am not known for being overly emotional, but this brought me to tears. What a great outlook you have, and it is so nice to think about focusing on the true pleasures in life. I am only 7 months into this crazy gluten free journey, and while I feel a million times better, I still have some complaints and hope that they will continue to improve. I hope to be able to write a note like yours in another year. Thank you.

ranger Enthusiast

This overwhelmed me. I will reply tomorrow.

Mrs. Smith Explorer

Thank you. That gives me so much hope for the future ans it will others, Im sure!

nasalady Contributor

Thank you for this.

I'm only 8+ months into this lifestyle and still have so much wrong with me physically and so much more to learn....even though I already feel positive and hopeful your post increases the level of my hope for eventual recovery.

And I'm truly happy for you!! :)

JoAnn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elle's mom Contributor

Also, I am not that emotional, and this gave me a lump in my throat.......thanks for the optimism.

Mskedi Newbie

Awesome!

no-more-muffins Apprentice

What an inspiring post. It has been a rough couple of days for me because I got glutened. I have been doing this for almost 3 months and I feel a lot better, but I still have a ways to go. And dealing with the emotional side of this is just as hard if not harder than living with the physical side. I love to come to this site when I feel people don't understand because I know that there are people here who do. Thanks for sharing your thoughts. I think I'll print it out for a friend of mine who has been gluten-free for 2 months and is progressing slowly.

So, thanks for your post today. You touched many people I am sure many of whom didn't leave a comment.

Three Ds Newbie

Thank you so much for this post! I have been trying to eat gluten free for about 6 months. This part touched me especially:

So know that it will be hard and that you will experience accidents, frustrations, tears in the supermarket, anger, denial, grief, acceptance, depression, obsession, feeling overwhelmed and there are even times when you might think about giving up in some way. But you will get better. And there is light and hope and a better life at the end to look forward to.

I get SO frustrated, often to the point of tears at times, when I'm glutened. And for a long time I was in denial that I was as sensitive as I am to gluten, cc, etc. I've only been able to go a couple weeks at a time without being sick, but it is getting better, and I just need to stick to this. And you are right, this is leading me to some healthier eating - I'm getting better about having fruits and vegetables regularly. Fortunately, or unfortunately :D , one of my favorite indulgences - plain potato chips - are generally gluten free, so I tell myself it's not all bad! But you've given me additional hope. Thank you!

ranger Enthusiast

Hope is the operative word here. Thank you for that! I am 9 months gluten free and, while I am much better, I am not back yet. And, it is frustrating. Sometimes I feel like just eating a twinkie and forget about all this nonsence, but then I think about the consequences. Yikes! Your message spurs me on. There will be a day when your words will be my words. Thank you!

ksymonds84 Enthusiast

Very inspiring, thank you!

pilotmom Newbie
I was diagnosed and went gluten free 21 months ago today, and I realized I have turned some kind of corner. So I thought I would write this for the people who ask
pilotmom Newbie

Thank you so much for an awesome post! My 9 year old daughter has been gluten free for 5 weeks and still is experiencing stomach aches and has been asking when they will go away. She has been going through a lot of emotions. I read to her your post so hopefully that has helped her. Thank you!

Northland Lady Rookie
Thank you so much for an awesome post! My 9 year old daughter has been gluten free for 5 weeks and still is experiencing stomach aches and has been asking when they will go away. She has been going through a lot of emotions. I read to her your post so hopefully that has helped her. Thank you!

Hi, i tried to contact you personally but couldnt make it work! could you tell me how you got glutenated by tea bags? You said in anther post they had gluten in them. :-)

Thanks

Northland Lady Rookie
I was diagnosed and went gluten free 21 months ago today, and I realized I have turned some kind of corner. So I thought I would write this for the people who ask

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    2. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    3. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    4. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    5. - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.