Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On Turning A Corner At 21 Months


Lisa16

Recommended Posts

Lisa16 Collaborator

I was diagnosed and went gluten free 21 months ago today, and I realized I have turned some kind of corner. So I thought I would write this for the people who ask


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

Glad you are feeling good! I enjoyed reading that, thanks for posting! :)

ang1e0251 Contributor

Well said!

BeckyMN Newbie

Thank you for this wonderful post. I am not known for being overly emotional, but this brought me to tears. What a great outlook you have, and it is so nice to think about focusing on the true pleasures in life. I am only 7 months into this crazy gluten free journey, and while I feel a million times better, I still have some complaints and hope that they will continue to improve. I hope to be able to write a note like yours in another year. Thank you.

ranger Enthusiast

This overwhelmed me. I will reply tomorrow.

Mrs. Smith Explorer

Thank you. That gives me so much hope for the future ans it will others, Im sure!

nasalady Contributor

Thank you for this.

I'm only 8+ months into this lifestyle and still have so much wrong with me physically and so much more to learn....even though I already feel positive and hopeful your post increases the level of my hope for eventual recovery.

And I'm truly happy for you!! :)

JoAnn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elle's mom Contributor

Also, I am not that emotional, and this gave me a lump in my throat.......thanks for the optimism.

Mskedi Newbie

Awesome!

no-more-muffins Apprentice

What an inspiring post. It has been a rough couple of days for me because I got glutened. I have been doing this for almost 3 months and I feel a lot better, but I still have a ways to go. And dealing with the emotional side of this is just as hard if not harder than living with the physical side. I love to come to this site when I feel people don't understand because I know that there are people here who do. Thanks for sharing your thoughts. I think I'll print it out for a friend of mine who has been gluten-free for 2 months and is progressing slowly.

So, thanks for your post today. You touched many people I am sure many of whom didn't leave a comment.

Three Ds Newbie

Thank you so much for this post! I have been trying to eat gluten free for about 6 months. This part touched me especially:

So know that it will be hard and that you will experience accidents, frustrations, tears in the supermarket, anger, denial, grief, acceptance, depression, obsession, feeling overwhelmed and there are even times when you might think about giving up in some way. But you will get better. And there is light and hope and a better life at the end to look forward to.

I get SO frustrated, often to the point of tears at times, when I'm glutened. And for a long time I was in denial that I was as sensitive as I am to gluten, cc, etc. I've only been able to go a couple weeks at a time without being sick, but it is getting better, and I just need to stick to this. And you are right, this is leading me to some healthier eating - I'm getting better about having fruits and vegetables regularly. Fortunately, or unfortunately :D , one of my favorite indulgences - plain potato chips - are generally gluten free, so I tell myself it's not all bad! But you've given me additional hope. Thank you!

ranger Enthusiast

Hope is the operative word here. Thank you for that! I am 9 months gluten free and, while I am much better, I am not back yet. And, it is frustrating. Sometimes I feel like just eating a twinkie and forget about all this nonsence, but then I think about the consequences. Yikes! Your message spurs me on. There will be a day when your words will be my words. Thank you!

ksymonds84 Enthusiast

Very inspiring, thank you!

pilotmom Newbie
I was diagnosed and went gluten free 21 months ago today, and I realized I have turned some kind of corner. So I thought I would write this for the people who ask
pilotmom Newbie

Thank you so much for an awesome post! My 9 year old daughter has been gluten free for 5 weeks and still is experiencing stomach aches and has been asking when they will go away. She has been going through a lot of emotions. I read to her your post so hopefully that has helped her. Thank you!

Northland Lady Rookie
Thank you so much for an awesome post! My 9 year old daughter has been gluten free for 5 weeks and still is experiencing stomach aches and has been asking when they will go away. She has been going through a lot of emotions. I read to her your post so hopefully that has helped her. Thank you!

Hi, i tried to contact you personally but couldnt make it work! could you tell me how you got glutenated by tea bags? You said in anther post they had gluten in them. :-)

Thanks

Northland Lady Rookie
I was diagnosed and went gluten free 21 months ago today, and I realized I have turned some kind of corner. So I thought I would write this for the people who ask

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.