Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Musings On Compassion And celiac disease


Lisa16

Recommended Posts

Lisa16 Collaborator

A few months back I heard an interview with Tich Nhat Hahn. One question was


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Hear hear to that, Lisa! Beautifully said. I totally agree.

Am just starting to write some memoirs with celiac as the underlying theme. Compassion out of suffering has got to be there...

Bea

darkhorse Apprentice

I agree with this completely. You may feel empathy toward others in bad situations and try your best to help or not make the situation worse, but you wouldn't understand or have compassion without experiencing something similar yourself.

My example of this would be that I am a teacher. One of my kids was diagnosed with diabetes over winter break last year. I tried my best to help her out and make sure she had everything she needed and the other kids didn't say mean things. I also tried to be empathetic when we had parties and things so she wouldn't feel left out. Looking back I know that I truly didn't understand even though I wanted to.

It wasn't until I found out I was gluten/dairy intolerant that I truly understood where she was coming from and what she was going through. It was only then that I saw how frustrating, disappointing, and sad it makes you to have tons of food available that you used to love and not be able to eat any of it. It was only then that I stated going out of my way to find alternatives that she could have as treats or for parties.

I am a strong believer that everything happens for a reason. The idea that we suffer so we can be more human, so we can feel compassion follows that same belief.

ravenwoodglass Mentor
And then I thought about this disease, because people with celiac disease do suffer. Sometimes horribly. Compassion, then, must be another gift of this disease.

Because just as this disease changes how you live your life, it also has the power to change how you see other people. It empowers us to reach out and help, to listen, and it forces us to understand. No horrible story or embarassing moment or desperate act is unknown to us or unimaginable any longer. Each one of those things affirms our own experience and existence.

This disease has made us all more human. And just maybe we can use that to make the world a better place.

I firmly believe this to be true. It doesn't just apply to disease but also to poverty, abuse and all the horrible things that happen to us. It also is a choice though, we can let our experiences make us bitter and resentful or we can choose to let them make us more understanding and kind to all. I think pretty much everyone here fits into the latter catagory. :)

maile Newbie

Word!

Thank you for posting that!

mushroom Proficient

Those who lead a charmed life have no idea how the the rest of the world lives. Nuff said.

chasbari Apprentice

So that's why this is one of the most compassionate and giving sites on the internet.... I knew there was a reason!

CS


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,759
    • Most Online (within 30 mins)
      7,748

    maglife
    Newest Member
    maglife
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The genetic testing results you provided indicate that your child carries two copies of the HLA-DQ2.5 beta chain (DQ Beta 1 *02:01, *02:01), which is a high-risk genetic marker for celiac disease. However, the alpha chain (DQ Alpha 1 *05:01, *05) is only partially present, as HLA-DQ2.5 typically requires the alpha chain *05:01 paired with the beta chain 02:01. Since your child has two copies of the beta chain (02:01) but only one full *05:01 alpha allele (the other appears truncated as *05), this suggests they are heterozygous for HLA-DQ2.5 rather than homozygous. The term "permissive for celiac disease" means your child has genetic susceptibility but not necessarily the highest-risk genotype (homozygous DQ2.5). Since celiac disease development also depends on environmental triggers and other factors, further testing (such as antibody screening or biopsy) may be needed to confirm a diagnosis. Consulting a genetic counselor or gastroenterologist can help clarify these results and next steps.
    • Jenny (AZ via TX)
    • DebJ14
      As my doctor said, you don't have to eat breakfast food for breakfast.  I may have a leftover piece of chicken and left over squash or eggs or I am actually more likely to skip breakfast as I do intermittent fasting.  In that case I eat lunch around 11:30 and have some guacamole and a salad with chicken or tuna.  For dinner I have pork, shrimp, chicken, lamb, or turkey with half a baked sweet potato and some broccoli, green beans, beets, carrots or cauliflower.  I do not eat any grains on the advice of my doctor.  I do not eat commercially processed products, even if they say they are gluten-free.  I make Warrior Bread every few weeks.  It has no yeast and contains almond flour and dried sweet potato.  Very tasty too.  A good book to help in this regard is No Grain, No Pain by Peter Osborne.  Thankfully, I can eat coconut and nuts and use those flours in baking and also use nut milks in cooking.  Since I am allergic to chocolate and vanilla, lemon is my go to flavor for something sweet.  My migraines totally disappeared once I went gluten and casein free.  I can occasionally eat certain high fat cheeses that are low in casein, as well as grass fed butter.  I use lots of Organic Olive and Avocado oil. The problems I thought I had with nightshades went away when I went fully organic.  And, the rest of my issues went away by avoiding the foods I tested positive to as well as avoiding all grains. I will be the first one to say that it is a very expensive way of eating, but thankfully we can afford to eat that way.  The good news is that I take no prescription meds at age 72.  At 54 before diagnosis, I was a mess and on a boatload of pharmaceuticals.  
    • lmemsm
      With that many foods removed from your diet, what do you eat?  I also have histamine issues and migraines so that takes out certain trigger foods and high histamine vegetables.  Have allergies to coconut and issues with nuts so those are out.  I'm beginning to think I may have to remove dairy and some of the grains beyond wheat to get allergies under control.  Just having so many issues figuring out what to make at meal times.  What's a typical breakfast look like for you?  Thanks.
    • knitty kitty
      @Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide).  They are available over the counter.   Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.  
×
×
  • Create New...