Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying Not To Panic


OBXMom

Recommended Posts

OBXMom Explorer

My son, who has chronic constipation despite daily miralax, has had diarrea the past couple of days. This morning he called me to see a worm at least 1 inch long swimming in the toilet after he used the bathroom. It was black, flat, with lots of feetish things and a fabulous swimmer. It didn't occur to him that it came from him, and he went happily off to school, but I am horrified. Is this an emergency? It definitely feels like it to me, but we are going to see his new doctor tomorrow, and it seems silly to go to the doctor today. What would you do?

And I just have to mention that I was worm phobic as a child and I am finding I did not grow out of it as well as I thought I did!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

catch it and take it with you tomorrow

OBXMom Explorer

I know I should have done that, but I was just too horrifed, and flushed . . .

Jestgar Rising Star

well... write down everything you can remember about it.

Not an emergency, people live with parasites all the time.

taweavmo3 Enthusiast

Oh my!!!! I have to admit, just reading your post gave me shivers. I can't imagine seeing one that had come out of my kiddo! On the bright side though, at least now you know he has parasites and with targeted treatment he may finally get some relief. Keep us updated after your appointment tomorrow!

mommida Enthusiast

You will probably be sent home with a stool test. You will have to catch and take stool samples. (If you find any more you are going to have to catch it.)

It is not an emergency and this can be treated.

The things we end up doing when we are parents/caregivers.

Juliebove Rising Star

Yikes! I think I would freak.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.