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I'm Back, And I Have Celiac Disease!

Frances03

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Frances03 Enthusiast
Frances03
Posted

so am I a Gold Star Celiac now?? LOL

I had my colonoscopy and it was FINE FINE FINE

I had my endoscopy and he said he could "see damage consistent with Celiac Disease" just from looking, of course he is sending all my stuff to be biopsied. But, I got so lucky, because he actually KNEW something about Celiac and said his former wife had written a book on the diet! I also have a hiatal hernia, and a lot of damage from heartburn type stuff, acid backing up my esophagus etc. So, I am to go gluten free right away, and get an appt with a dietician, and also he wants to recheck my anitbody levels to make sure I'm doing well on the diet!! I feel FANTASTIC!!! All these years of garbage and I finally have something I can TREAT! I will be HAPPY to eat gluten free the rest of my life!!! Thank you so much for your prayers and kind thoughts today also. I appreciate them all. And thank you for the support on this board. I will be sticking around and trying to educate everyone I know about Celiac Disease. Next, I will be getting my 3 children tested.

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sussarliv Newbie
sussarliv
Posted
so am I a Gold Star Celiac now?? LOL

I had my colonoscopy and it was FINE FINE FINE

I had my endoscopy and he said he could "see damage consistent with Celiac Disease" just from looking, of course he is sending all my stuff to be biopsied. But, I got so lucky, because he actually KNEW something about Celiac and said his former wife had written a book on the diet! I also have a hiatal hernia, and a lot of damage from heartburn type stuff, acid backing up my esophagus etc. So, I am to go gluten free right away, and get an appt with a dietician, and also he wants to recheck my anitbody levels to make sure I'm doing well on the diet!! I feel FANTASTIC!!! All these years of garbage and I finally have something I can TREAT! I will be HAPPY to eat gluten free the rest of my life!!! Thank you so much for your prayers and kind thoughts today also. I appreciate them all. And thank you for the support on this board. I will be sticking around and trying to educate everyone I know about Celiac Disease. Next, I will be getting my 3 children tested.

Glad to hear that you finally have answers!

Susan

happygirl Collaborator
happygirl
Posted

Wonderful that you know now. I hope you stick around...this is a great resource!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

"I feel FANTASTIC!!!"

That sure does say it all! You are now an official member of the gluten free club! It's so nice to finally figure out what's wrong that we do cartwheels to find out we are celiacs. lol

Roda Rising Star
Roda
Posted

Sounds like he turned out to be alright. Now he needs to educate his nurse practitioner. Hope you feel better soon. Also after my confirmed diagnosis I asked my kids ped to screen and explained that I just had gotten a diagnosis. He refused to order the blood tests, saying they were fine. I was so mad! :angry: I had to call their allergist/immunologist in a town 70 miles away to get it orderd and they had no problem doing it. My oldest has been screened twice since all of the tests were not done the first time(lab problem). Good luck and be persistant.

Brooklyn528 Apprentice
Brooklyn528
Posted
so am I a Gold Star Celiac now?? LOL

I had my colonoscopy and it was FINE FINE FINE

I had my endoscopy and he said he could "see damage consistent with Celiac Disease" just from looking, of course he is sending all my stuff to be biopsied. But, I got so lucky, because he actually KNEW something about Celiac and said his former wife had written a book on the diet! I also have a hiatal hernia, and a lot of damage from heartburn type stuff, acid backing up my esophagus etc. So, I am to go gluten free right away, and get an appt with a dietician, and also he wants to recheck my anitbody levels to make sure I'm doing well on the diet!! I feel FANTASTIC!!! All these years of garbage and I finally have something I can TREAT! I will be HAPPY to eat gluten free the rest of my life!!! Thank you so much for your prayers and kind thoughts today also. I appreciate them all. And thank you for the support on this board. I will be sticking around and trying to educate everyone I know about Celiac Disease. Next, I will be getting my 3 children tested.

Just wanted to say that I am very happy to hear of your great doctors. Finding a good one is always a positive. I hope things start going your way. Also, good luck with your children. I just started working on getting things taken care of concerning my children. I can't bear the thought of them having to deal with the things I have had to already. Good luck in all you do! :P

ravenwoodglass Mentor
ravenwoodglass
Posted

I am glad you were able to get a definate answer. Welcome to the family. I hope you are feeling great soon. Make sure you let all your first degree relatives know, brothers, sisters etc as well as doing the testing on your children.

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ang1e0251 Contributor
ang1e0251
Posted

I'm so glad you have the answers! Now for a new life of great health for you and your family. Welcome into the group, hope you get the results for your children that they need.

Nadia2009 Enthusiast
Nadia2009
Posted

I am so happy for you not happy you have celiac but it feels good to have answers. I am just expecting the same diagnostic. I did the celiac blood test for the second time this year and this time, I made sure it is the whole panel. My blood test was done in late September and it seems like I can't have results until late October and I am wondering if that means something.

Nadia

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
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      Unexpected gluten exposure risk from cultivated mushrooms

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      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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