Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dermatitis Herpetiformis In Toddlers...

Sarawatson5665

Recommended Posts

Sarawatson5665 Newbie
Sarawatson5665
Posted

Are there Any Moms that have a toddler with dermatitis herpetiformis, If so please i would like to know more about how u noticed they had it and what tests were done to figure it out.. my daughter i believe she has it but im not so sure and the drs here kinda suck at finding it..

TY In Advance...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nmlove Contributor
nmlove
Posted

Hi there, my two year old has a suspicious rash too. His older brother (4) was recently diagnosed with celiac and now my younger one's bloodwork came back positive. I wouldn't be surprised if the rash is related. I actually thought it was eczema, as did the pediatrician. I knew nothing of dh or celiac disease. Now, I look at it differently. Both my sons had infant eczema. The oldest slowly outgrew it while the youngest did not. And, looking back, I see that it actually changed. But of course I had reasons. It was more scabby on his butt/low back because he was scratching. His diaper area was more blistery because of coming into contact with pee/poop. Sometimes he would cry because the itching was so bad but I knew how that was because I get the same thing on my feet. You could scratch to you're raw and it wouldn't stop itching. I'd dutifully put on lotion and the prescription hydrocortisone cream for it to kind of work but not really (would ease it for the night but would never make it go away). I look for this rash to disappear once he's been gluten free for awhile. At least I hope so!

As for testing, I've heard that you need a skin biopsy - of a section of clear skin next to the rash.

Sarawatson5665 Newbie
Sarawatson5665
Posted
  • Author

Thank you , i was scared it was going to be that, my daughter has the same issue as you desrcibed with your son, the scabbed hers go on the back of her neck her arms her legs, her diaper area is just like your sons, she cant have juice for that reason..

Thank you again so much for the input

  nmlove said:
Hi there, my two year old has a suspicious rash too. His older brother (4) was recently diagnosed with celiac and now my younger one's bloodwork came back positive. I wouldn't be surprised if the rash is related. I actually thought it was eczema, as did the pediatrician. I knew nothing of dh or celiac disease. Now, I look at it differently. Both my sons had infant eczema. The oldest slowly outgrew it while the youngest did not. And, looking back, I see that it actually changed. But of course I had reasons. It was more scabby on his butt/low back because he was scratching. His diaper area was more blistery because of coming into contact with pee/poop. Sometimes he would cry because the itching was so bad but I knew how that was because I get the same thing on my feet. You could scratch to you're raw and it wouldn't stop itching. I'd dutifully put on lotion and the prescription hydrocortisone cream for it to kind of work but not really (would ease it for the night but would never make it go away). I look for this rash to disappear once he's been gluten free for awhile. At least I hope so!

As for testing, I've heard that you need a skin biopsy - of a section of clear skin next to the rash.

  • 1 month later...
TerryK Newbie
TerryK
Posted

I believe my daugher who is now 7 had dermatitis herpetiformis as a toddler. She was diagnosed at 14 months with Celiac but had huge blisters on her bottom all the time which she would then scratch & it turned into a scabby mess. The Drs. told me she didn't have it b/c children do not get it. I believe they are wrong. Now if she does get gluten by accident the first thing she gets is a rash. She now gets the rash on her bottom, back of legs, around the ankles & underarms.

Are there Any Moms that have a toddler with dermatitis herpetiformis, If so please i would like to know more about how u noticed they had it and what tests were done to figure it out.. my daughter i believe she has it but im not so sure and the drs here kinda suck at finding it..

TY In Advance...

strawberrygm Enthusiast
strawberrygm
Posted

i am also interested in hearing the answers to this, as my 2 yr old is getting unexplained diaper rashes and my 4 yr old has been breaking out on his face. their older sister has celiac, but no skin issues thankfully. of course once one child or family member has celiac, its gonna make me think everything they get is related.. =)

we live in podunk as well, so getting diagnosed isnt easy here either.

nmlove Contributor
nmlove
Posted

Hey, just wanted to follow-up from my previous post. My 2 year old's been gluten-free for 2 months and his rash is gone! I still see eczema bumps but the diaper area rash is no more. But the few times he's had gluten accidentally I can see it start to pop out again.

mommaofthreebeans Rookie
mommaofthreebeans
Posted

Hi everyone I feel like I am reading stories about my own baby! lol

He has extreme "eczema" on his legs arms and trunk, buthis diaper area is the only "clear" area.

Is that uncommon?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 months later...
mommaj Newbie
mommaj
Posted

This is the way that both of my babies were (for about 5 years... really severe all over except no diaper rash or eczema on diaper area). I'm still waiting for the blood test to come back on my daughter. If she's positive, of course my son will be tested too.

  On 1/13/2010 at 6:29 PM, mommaofthreebeans said:

Hi everyone I feel like I am reading stories about my own baby! lol

He has extreme "eczema" on his legs arms and trunk, buthis diaper area is the only "clear" area.

Is that uncommon?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,737
    • Most Online (within 30 mins)
      7,748
    Phyliss
    Newest Member
    Phyliss
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lizzie42
      Help figuring out stomach pain

      By lizzie42 · Posted

      Hi, My 3 year old was diagnosed a couple months ago. We went gluten free, very strict, and everything improved. Energy, no more meltdowns, bad rash is mostly gone. She's doing great. Except she complains every day of stomach pain. She describes it as squeezing. Any ideas from anyone?  We cut out oats and it didn't make any difference. She doesn't drink milk, though she has cheese. It doesn't seem to coincide with the cheese. She says it hurts when she wakes and then other random times during the day.  We are SO strict with her food. We don't eat out, out whole house is gluten-free. I make everything from scratch. She eats very healthy. She's not picky and we do tons of fruit...
    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      Ok so I couldn't find the thiamine you suggested but I was able to buy a bottle of 'standard' thiamine (100 mg). Should I just try half a tablet to see if I notice any difference? If it turns out it does have effect I can always buy the more expensive stuff. Or is that not a smart idea?
    • knitty kitty
      Ectopic heartbeats - any relation to digestive issues?

      By knitty kitty · Posted

      @cristiana, Yes, I found high carbohydrate meals would trigger mine as well.  I learned from Dr. Lonsdale that high carbohydrate diets can deplete thiamine.  Heart palpitations are a symptom of thiamine insufficiency.  Diets high in refined simple carbohydrates (empty calories) need additional Thiamine to process the carbs into energy.  The more carbs one eats, the more Thiamine is required to process the additional calories.  500 mg more Thiamine is required for every additional one thousand calories.  This is named "High Calorie Malnutrition."  Sufficient calories are being consumed, but not enough of thiamine to burn the carbs for energy.  Instead to ration out the small supply of...
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      I used to suffer with migraines, but I have rarely had one since I started taking additional Thiamine.  The form called TTFD (tetrahydrofurfuryl disulfide) can improve neurological functions in the brain.  Benfotiamine is another form that improves migraines. Look at the label on your B Complex vitamins.  It should tell you what form of thiamine is in it.  If it says thiamine mononitrate, you're probably not getting sufficient thiamine.  Thiamine Mononitrate is a form used in vitamin supplements and foods because it is shelf stable.  Shelf stable means it won't break down when exposed to heat and light sitting on a shelf waiting to be bought in a store or warehouse.  It also is very difficult for the body to...
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14 The Spectracell Test for Micronutrient Deficiencies tests  intracellular levels of the nutrients INSIDE Leukocytes (white blood cells) which are in the bloodstream.  This still is not reflective of current stored vitamin levels inside organs.   The genetic MTHFR mutation does occur frequently with Celiac Disease.  Taking the methylated (activated) forms of the B vitamins is necessary.   A good multivitamin may not be sufficient to correct deficiencies.  Malabsorption due to the intestinal damage of Celiac Disease may prolong deficiency states.  Vitamin deficiencies need to be corrected quickly to prevent long-term problems.  Taking a B Complex twice a day increases absorption. ...
×
×
  • Create New...