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Is Positive Genetic Test Enough For Some Of You To Go Gluten Free?

Newbyliz

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Newbyliz Rookie
Newbyliz
Posted

I just had my second endoscopy yesterday, Tues. Dec. 1st. The doctor said everything looked okay but that I could certainly try a gluten free diet to see if that helps since all of my testing is over. Part of me wonders if I should wait to see what the biopsies say but the other part of me is really ready to give the gluten free diet a whirl. My genetic testing stated I was positive for HLA-DQ2 and a subset of that gene(sorry I don't have the exact wording of the results-this was given to me by my gastro's nurse) which is the only evidence so far that celiac may be playing a part in how I feel. I have tried just about everything else and really am ready to feel better. Has anyone felt that having the genes alone is enough to make them want to at least try a gluten free lifestyle? I have a follow-up with my gastro in 8 weeks which I feel is a good amount of time to give this diet a try. It is sort of strange to know that I posses 2 copies of the HLA-DQ2 gene and that it is lurking in the background. I have to find some peace that even if the biopsies come back normal it may be the best thing for my body to elimate gluten. Any feedback would be greatly appreciated.

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Swimmr Contributor
Swimmr
Posted
I just had my second endoscopy yesterday, Tues. Dec. 1st. The doctor said everything looked okay but that I could certainly try a gluten free diet to see if that helps since all of my testing is over. Part of me wonders if I should wait to see what the biopsies say but the other part of me is really ready to give the gluten free diet a whirl. My genetic testing stated I was positive for HLA-DQ2 and a subset of that gene(sorry I don't have the exact wording of the results-this was given to me by my gastro's nurse) which is the only evidence so far that celiac may be playing a part in how I feel. I have tried just about everything else and really am ready to feel better. Has anyone felt that having the genes alone is enough to make them want to at least try a gluten free lifestyle? I have a follow-up with my gastro in 8 weeks which I feel is a good amount of time to give this diet a try. It is sort of strange to know that I posses 2 copies of the HLA-DQ2 gene and that it is lurking in the background. I have to find some peace that even if the biopsies come back normal it may be the best thing for my body to elimate gluten. Any feedback would be greatly appreciated.

If you carry the gene, I've read, heard and been told that there is more than a good chance you have it.

I would do the gluten free diet anyways...what do you have to lose? Well, gluten, but that is a good thing anyways because you'll probably feel better even after just a couple weeks. Some people say they feel better within days.

Good luck :)

Nancym Enthusiast
Nancym
Posted

For me the decision was pretty simple. Make a temporary change in my diet to see if long standing issues went away or continue to suffer and put myself at the mercy of current medical practices constantly which weren't doing me a bit of good, and were quite possibly making things worse.

I had my answer very quickly after going gluten free.

Newbyliz Rookie
Newbyliz
Posted
  • Author
For me the decision was pretty simple. Make a temporary change in my diet to see if long standing issues went away or continue to suffer and put myself at the mercy of current medical practices constantly which weren't doing me a bit of good, and were quite possibly making things worse.

I had my answer very quickly after going gluten free.

Thank you for your replies. You're right the diet change is relatively easy as long as you are committed to it and if it helps it will be wonderful. I have to let go of that feeling that I have to have more than just a positive gene test to be validated. I have stocked my pantry with things so that baking this season won't be hard and am really hoping and PRAYING that this helps me regardless of the results I get from the biopsies. I am so glad this site is here for all the support you get.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you for your replies. You're right the diet change is relatively easy as long as you are committed to it and if it helps it will be wonderful. I have to let go of that feeling that I have to have more than just a positive gene test to be validated. I have stocked my pantry with things so that baking this season won't be hard and am really hoping and PRAYING that this helps me regardless of the results I get from the biopsies. I am so glad this site is here for all the support you get.

Start the diet now. You are done with the celiac testing and your body may give you the answer before you even go back for the results. You have nothing to lose.

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    • trents
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    • Dizzyma
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      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
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