Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Vent


A&Z'S MOM

Recommended Posts

A&Z'S MOM Apprentice

its been a long day...managed a good lunch and dinner..then was able to freeze and process other side dishes for the up coming weekend...we r taking the kids to a fair tomorrow...i thought it would be smart to pack some snacks and possibly a light meal...hubby thinks its a bad idea...he thinks by planning every meal like this...i am cornering my kids and robbing them of the true experience..like what is he thinking...the kids have special diets and i don't want them to feel deprived or to contend with if any or limited choices...but he thinks i am all nutty...he gave me an hours worth of "stop controlling everything"... i am so mad...am i being compeletly insane.......i am so hurt...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

It's so hard when you have an idea of how things are going to be on your outing and he has a totally different idea. Maybe he needs to be in charge of their food for the day so he can see how limited the choices would be. Now me, I grew up on the fairgrounds and I know I could find gluten-free food at the fairs here in Indiana. There is always someplace where there are hamburgers, my eat-out staple with no bun. Lots of fairs here serve roasted corn on the cob. And there is always popcorn, cotton candy and butterscotch corn. We also usually serve grilled or pit chicken and pit pork chops here. The meal often comes with side dishes like apple sauce and chips.

Now if I went to the fair in AZ where I used to live, it would be a little more limited but not impossible. If I remember there was a Chinese stand that served grilled meat sticks, don't know if they were marinated. There were still burgers and the dessert options.

I guess I would put him in charge of their food but take some backup in your purse. He can either fail or succeed at the fair. You will still be there to see how things go but if he takes care of the kids' food, he will either be able to show you you can be a little more flexible or you can show him that it's best to be prepared.

Ahorsesoul Enthusiast

Perhaps at the fair you could trade you dh in for a stuffed animal? His support should be with you on their diet in my mind.

At the information booth at our fair I discovered they now have handouts for various speciality diets and who has food for each diet. I only laughingly asked for a gluten free sheet and the guy whipped one out. I almost fell over!!! So ask when you get there.

My friends thought I was crazy not to eat the fair food. There was no way I wanted to be sick for days. Take food.

Unless it is a food fair, the kids can experience the fair in many other ways. Food should be the least important. Family and fun should come first.

cruelshoes Enthusiast
hubby thinks its a bad idea...he thinks by planning every meal like this...i am cornering my kids and robbing them of the true experience

IMO, bringing your own food to the fair is not robbing anyone of anything. Even before my family went gluten-free we did that all the time, just because fair food is so notoriously unhealthy. As another poster mentioned, you might be surprised that there are many gluten-free options to be found - sno cones, cotton candy, roasted ears of corn, Icees, lemondade, etc. Plenty of options to get your snack on! Many times when we go to an event like that, we bring our own food, but buy a drink or something.

Now, if you wanted to keep them home and not go to the fair at all because of the food, your husband might be able to make a case for the kids missing out on things. But as it is, I think you are doing the right thing. Food is only one part of the equation. More important things are going on all the spinny rides until you want to throw up and petting all the cute animals. :lol:

Roda Rising Star

I always pack something for me to eat if I am going to be away from home for awhile. I even pack snacks etc. for my kids also and they are not on any restricted diet. When we travel to my parents (560 miles away) or my inlaws we always pack a cooler so we can eat on the road.

shayesmom Rookie
its been a long day...managed a good lunch and dinner..then was able to freeze and process other side dishes for the up coming weekend...we r taking the kids to a fair tomorrow...i thought it would be smart to pack some snacks and possibly a light meal...hubby thinks its a bad idea...he thinks by planning every meal like this...i am cornering my kids and robbing them of the true experience..like what is he thinking...the kids have special diets and i don't want them to feel deprived or to contend with if any or limited choices...but he thinks i am all nutty...he gave me an hours worth of "stop controlling everything"... i am so mad...am i being compeletly insane.......i am so hurt...

It's interesting that your husband doesn't see the other side of the same argument. By hanging on to his concept of what a "true experience" is....he's depriving his children of the same thing he supposedly values. In reality, the "true experience" is whatever you make of it. I find that a "fly by the seat of your pants" approach actually takes away from the experience by adding stress to the outing.....there's nothing like being hungry and having no guaranteed safe food options available to really put you in a position to make bad decisions and to be really, really sick. Why is it so hard to enjoy a family picnic together while at the fair? If it were me, I'd be looking for some fun new recipes to pack for the event that enhances the festivity of going to the fair. And I think I'd rather focus on the events and atmosphere...and the concept of going out....moreso than hanging onto the mirage that going to this place will unprepared will somehow make the "problem" go away for a few hours.

My husband and I have made it a point to pack a special picnic lunch and snacks (plenty of them) whenever we go out to fairs, the zoo, amusement parks, etc.. If we find gluten-free options, then we partake of them. If not, then we enjoy our lunch together and focus on why we're there....to enjoy whatever the site has to offer. I guess we've found that in reality, this lifestyle can intensify the experience. Probably because instead of focusing on all the crap being peddled and sold....we really focus on what there is to do and see.

This issue isn't about control. It's about perspective. He needs to be made aware of this quickly. Because of his refusal to acknowledge this reality, he will take a piece of his children's happiness away each and every time you go out. What kid wants to go out all day with two parents who are bickering? And how does that add to their "experience"?

I can understand his desire for "normalcy". However, he's projecting his own vision of normalcy onto his family. The kids will develop their own sense of normalcy given the circumstances they grow up in. All anyone can do is do the best they can to make it the best experience possible. And let go of pre-conceived notions of how things "need" to happen.

luvs2eat Collaborator

Like another poster said, I'd hand him the food responsibilities a few times... w/ you watching closely... so he can understand what's really happening. How many friends have said to me, "Can't you just eat a LITTLE??" He wouldn't let the kids poison themselves at a fair in the name of "enjoying the experience," would he??? That would be a disaster.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seezee Explorer
Like another poster said, I'd hand him the food responsibilities a few times... w/ you watching closely... so he can understand what's really happening. How many friends have said to me, "Can't you just eat a LITTLE??" He wouldn't let the kids poison themselves at a fair in the name of "enjoying the experience," would he??? That would be a disaster.

When we are traveling or going to something like that we usually bring an entree and then get drinks, chips, candy, or fruit where we are. I am getting better at seeing the gluten-free options, but it isn't always easy to get the filling meal part. This way my daughter gets the fun part of getting a treat yet still has something that I know is safe and she likes. It can be tricky if your kids are at all picky and need to be gluten-free.

s

A&Z'S MOM Apprentice

i was close to tears when i posted on this forum...reality is that even beofre the diagnosis i have always,and i mean always set out with a plan..whether its a meal or an outing...i would be prepared..whether it was extra t shirts..inhalers..snacks(beofre celiac)....that drives my hubby nuts......my hubby is the spontaneous sort...so i guess he just wanted me to stop planning everything ..

long story short.....i went on strike and made him responsible for all the meals that day(lunch and snacks)he thought i was kidding around...and i wuld like alwys have some back up...well....i took nothing!....not very wise.. i know..actually completely mad of me..

well anyway he panicked and spend the rest of the day..completely stressed and looking out for options...we were lucky.....found indian curries and plain rice.....so we had lunch......thank god..then .....found corn on the cob......and other gluten-free options.....found gluten-free candy(toblerone/aero)..we were lucky and he realised that..it was a gamble...but it paid off.....this time......i don't know what i was thinking but i was tired you know.........sometimes it can be very lonely and hubby realised that ....so very risky but paid off for me....i just wanted the meals to be special and healthy but anyways

you guys were right ..the kids remebered the games and the fun time we managed fooling around..and the funny pics we took and not the food...it ended well for us...i appreciate each and every one who posted here ....thank you guys... :rolleyes:

you are part of the family now...there is no other way to explain it...it is easier to relate to you guys....you understand... :)

Ahorsesoul Enthusiast
well anyway he panicked and spend the rest of the day..completely stressed and looking out for options

You did very well. I know it was hard for you to do. So glad to hear you had a great family time together.

Darn210 Enthusiast
i was close to tears when i posted on this forum...reality is that even beofre the diagnosis i have always,and i mean always set out with a plan..whether its a meal or an outing...i would be prepared..whether it was extra t shirts..inhalers..snacks(beofre celiac)....that drives my hubby nuts......my hubby is the spontaneous sort...so i guess he just wanted me to stop planning everything ..

long story short.....i went on strike and made him responsible for all the meals that day(lunch and snacks)he thought i was kidding around...and i wuld like alwys have some back up...well....i took nothing!....not very wise.. i know..actually completely mad of me..

well anyway he panicked and spend the rest of the day..completely stressed and looking out for options...we were lucky.....found indian curries and plain rice.....so we had lunch......thank god..then .....found corn on the cob......and other gluten-free options.....found gluten-free candy(toblerone/aero)..we were lucky and he realised that..it was a gamble...but it paid off.....this time......i don't know what i was thinking but i was tired you know.........sometimes it can be very lonely and hubby realised that ....so very risky but paid off for me....i just wanted the meals to be special and healthy but anyways

you guys were right ..the kids remebered the games and the fun time we managed fooling around..and the funny pics we took and not the food...it ended well for us...i appreciate each and every one who posted here ....thank you guys... :rolleyes:

you are part of the family now...there is no other way to explain it...it is easier to relate to you guys....you understand... :)

Good for you . . . and sounds like hubby learned something, so good for him, too.

Swimmr Contributor

Good that it helped him realize something :)

;) next time bring back-ups though :) I know you know, and I probably would have not done it either, just to prove my point.

precious831 Contributor
Good that it helped him realize something :)

;) next time bring back-ups though :) I know you know, and I probably would have not done it either, just to prove my point.

Hi, I'm new and I thought I'd chime in. I'm so glad your hubby is coming along. It's hard enough to deal w/ this and even more difficult if the other parent is not supportive. I'm grateful my Dh is understanding although he doesn't really do any food preparing. Once in a blue moon he does. However he's so strict w/ me. I have cheated and had foods I'm not supposed to eat and when he would find out, he would get very upset with me, saying I'm could get sick, get cancer, etc. lol.

Anyway, goodluck w/ everything. I bring food everywhere too. It's hard during holidays when I feel like I have to dissect foods at parties and I sometimes feel I'm offending the hostess but I gotta do what I need to do and I bring food for me and my daughter. For thanksgiving I cheated and took a big bite out of a regular donut(I hid it from DH)! At that moment, it just tasted so good but 30 minutes later all I could think of was the pain! So not worth it.

ang1e0251 Contributor

I'm so glad it worked for you. It was good for both of you to appreciate the other's point of view.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,129
    • Most Online (within 30 mins)
      7,748

    Raz
    Newest Member
    Raz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
    • Kara S
      Hello, my family is very new to Celiac Disease so forgive me for asking what Warrior Bread is and is there a recipe for it online?
    • jessicafreya
      I'd like to make tamales and wonder if anyone has recs for corn husks free of cross contact for a sensitive celiac little boy. Thks!
    • knitty kitty
      Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies.   B12 Cobalamine needs the seven other B vitamins to work properly.   You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency.  You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins.  Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing.  Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize.  What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize.  Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability.  The brain uses more Thiamine than other organs.  Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks.
    • knitty kitty
      Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals.  Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain.  Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high.   Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself?  The AIP diet helps lower inflammation and promotes intestinal healing.   The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in.  The low histamine AIP diet will help reduce inflammation further.   Histamine is released as part of the immune response in celiac disease.  Foods also contain various amounts of histamine or provoke histamine release.  Lowering the amount of histamine from foods helps.  The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial.  Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease.  Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants.  Processed foods like sausages and gluten-free processed products are high in histamines.  All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate.  You can have vitamin deficiency symptoms before blood levels show a deficiency.  Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized.  The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder.  Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins.   The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease.  Because they are water soluble, the body can easily excrete any excess B vitamins in urine.  The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks.  Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable.  The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily.  Benfotiamine has been shown to promote intestinal healing.   Remember your intestines are in a damaged, permeable state.  Treat them tenderly, like you would a baby until they heal.  You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts.  Change your diet so your intestines can heal.   I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain.  These three B vitamins have analgesic properties.  They relieve pain better than other otc pain relievers. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.