Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grain Free Diet

Sharon Marie

Recommended Posts

jackay Enthusiast
jackay
Posted

Thanks for all the helpful advise from so many of you.

The reason behind the rotation diet is to give the food time to clear from you system to lesson the chance that you become intolerant to it. Since I am so limited with what I can eat, I'm going to talk to my doctor about this.

As far as the foods I tested intolerant to, it is suggested that I eliminate them for 12-24 weeks before trying them again. I'm to avoid those foods that I showed a mild intolerance to, IF POSSIBLE. I may have to add them back to get more balance and variety in my diet. I'd love to add back some of my favorite fruits and vegetables.

I see my doctor in 10 days so am hoping he can help me out with this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jackay Enthusiast
jackay
Posted

A brainwave hit me and I may have figured out what is causing my additional stomach problems. I wasn't able to buy my normal calcium citrate supplement because it has been unavailable for a couple weeks. I bought the same brand but it has magnesium oxide/citrate in it. I'm thinking that may be the culprit. Hopefully, my regular calcium supplement will be back in the store tomorrow. (My doctor has me taking magnesium bis-glycinate in a much smaller dose than I am getting from the magnesium oxide/citrate.)

Hopefully I'm on to something and it isn't just wishful thinking.

RiceGuy Collaborator
RiceGuy
Posted

A brainwave hit me and I may have figured out what is causing my additional stomach problems. I wasn't able to buy my normal calcium citrate supplement because it has been unavailable for a couple weeks. I bought the same brand but it has magnesium oxide/citrate in it. I'm thinking that may be the culprit. Hopefully, my regular calcium supplement will be back in the store tomorrow. (My doctor has me taking magnesium bis-glycinate in a much smaller dose than I am getting from the magnesium oxide/citrate.)

Hopefully I'm on to something and it isn't just wishful thinking.

Well now, I think you may have hit upon something there. I don't recall what your stomach issues have been (or if you detailed them), but magnesium oxide is a form which is known for its laxative effect, more so than other types. Then, considering the fact that citric acid will enhance that effect, the calcium citrate will provide the citric acid, and...well, there you go!

jackay Enthusiast
jackay
Posted

Well now, I think you may have hit upon something there. I don't recall what your stomach issues have been (or if you detailed them), but magnesium oxide is a form which is known for its laxative effect, more so than other types. Then, considering the fact that citric acid will enhance that effect, the calcium citrate will provide the citric acid, and...well, there you go!

The stomach issues really weren't too bad until the past few days. I've had stomach discomfort, mostly in the evening. I've had more BMs but nothing too bad until yesterday it turned into bad D. I think it is just the accumulation of magnesium over the past 5-7 days. I've quit the calcium with magnesium and will see what happens.

Unfortunately, I need to take 2500 mg. calcium daily due to parathyroid issues and have only found one brand that I seem to tolerate. I haven't found it online either. It's frustrating that the store I find it at doesn't stock more and it takes them so long to get it in when they do order it. Hopefully they'll get it in today.

ElitaSue Newbie
ElitaSue
Posted

I would like to know more about the idea of a grain free diet. Are grains really necessary for our bodies?

Apparently not, my doctor put me on an entirely grain free, sugar free diet. Only protein, mono and diglycerides.

I was diagnosed with Celiacs by an Endocrinologist. I had known for a long time that I had a problem with Gluten and had been on a gluten free diet (using rice, quinoa, millet, aramanth in my diet as substitutes). Yet I was still having an awful time with hypoglycemia, seizures and other health problems - which I thought unrelated to the Celiacs. Turns out every time I have any grain whatsoever, my blood sugar has huge drops, often falling below 40 (very dangerous). It is like my body for some reason thinks anything grain is like pure sugar. Weird. Guess endocrinologists see it a lot.

Been grain free for nearly a year now. It was hard at first, but I really had no other choice - check out the "Specific Carbohydrate Diet". I feel quite a bit better.

Still have to supplement with a lot of vitamins, essential fatty acids, aminos and minerals.

Good luck!

Sue

jackay Enthusiast
jackay
Posted

Apparently not, my doctor put me on an entirely grain free, sugar free diet. Only protein, mono and diglycerides.

Still have to supplement with a lot of vitamins, essential fatty acids, aminos and minerals.

Good luck!

Sue

Do you take a digestive enzyme?

jerseyangel Proficient
jerseyangel
Posted

I'm no expert on the subject, but I eat very few grains and little sugar. My digestion works better this way, my weight is normalizing, and my blood pressure is down to a good normal.

I don't cut them completely, maybe once a week or so I'll have gluten-free pizza or something like that. I take a good multivitamin, calcium/D, and separate vitamin D daily.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Janessa Rookie
Janessa
Posted

I am on a 4 day rotation with all foods I can tolerate, to prevent new intolerances from developing.

you can by sprouted rice at some places like Whole Foods, but one way you can do it cheap is I throw my brown rice in the rice cooker cover with water and add lemon juice about a Tbsp a cup I think (I got this info people posted online mostly from a book called Nourishing Traditions) and let it sit (I close the lid so nothing falls in) for 12-24 hours then pour out most of the water and fill it up to the line with fresh water that my rice cooker suggests for brown rice and cook as normal. This would be a little trickier in a pan because you need to account for the water absorbed while it was soaking.

When I am baking I mix all my flours, sugar and add kefir or buttermilk for the liquid (or a mix of kefir and water basically need enough kefir to let the good bacteria do it's work) and cover with plastic wrap and leave on the counter 12-24 hours to ferment.

It makes your grains much easier to digest

Janessa Rookie
Janessa
Posted

I forgot to add when you are baking you only soak the flours and sugar in the kefir mixture and when they are done soaking then you add the rest of the ingredients and bake as normal.

Things you make like this come out so fluffy and tender it is amazing

jackay Enthusiast
jackay
Posted

I am on a 4 day rotation with all foods I can tolerate, to prevent new intolerances from developing.

you can by sprouted rice at some places like Whole Foods, but one way you can do it cheap is I throw my brown rice in the rice cooker cover with water and add lemon juice about a Tbsp a cup I think (I got this info people posted online mostly from a book called Nourishing Traditions) and let it sit (I close the lid so nothing falls in) for 12-24 hours then pour out most of the water and fill it up to the line with fresh water that my rice cooker suggests for brown rice and cook as normal. This would be a little trickier in a pan because you need to account for the water absorbed while it was soaking.

Is the lemon juice necessary? I tested severely intolerant to it.

Janessa Rookie
Janessa
Posted

you need something acidic like lemon juice, if you google soaking grains you will find a lot of info from people who know more than me and they might have other suggestions posted

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748
    tessycork47
    Newest Member
    tessycork47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.