Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Starting Have Few Questions

laurie9141

By laurie9141
in Coping with Celiac Disease

Recommended Posts

laurie9141 Rookie
laurie9141
Posted

several questions. suspect gluten intolerance in my 3 yr old.. am changing diet..how do I make her understand that she cant eat the fun cookies that everyone else is eating in preschool (esp w Valentines parties coming up).? If anyone has a kid in school and its "their day" to bring snaks do I bring gluten free food for everyone? this stuff is expensive. what do others do?

and lastly, her brother (2 year old) doesnt seem to have probs w gluten. but has milk allergy and has intermittent asthma symptoms and treatment.. does anyone know, if asthma (at least symptoms) can be from gluten? Maybe his show up differently? thanks, laurie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


climbmtwhitney Apprentice
climbmtwhitney
Posted

Hi Laurie,

I have treat jars at school for my kids. That way when an unexpected birthday treat comes in, they can choose something that they like from their jar. I take class parties one at a time. I find out what the plan is and then work from there. For example, my son's class is decorating heart shaped sugar cookies this week. So, I'm sending in a Gluten-free Casein-free sugar cookie, Gluten-free Casein-free frosting and special dye free sprinkles for him. My daughter's class is having parents send in treats for the whole class, so I volunteered to send in popcorn in baggies. That way I know she'll have at least one favorite to eat. As far as preschool snack day goes there are inexpensive treats. You can do cut up fruit or something like rice krispie treats made with gluten-free Rice Chex. It IS hard, but you'll find that kids adjust really quickly. I have taught my kids never to whine about what they can't have. And, I always do my best to make sure they don't feel left out. Yes, it's extra work, but I think it's important.

Good luck!

Jillian

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

First, have you had either of them tested for Celiac. If you or your pediatrician have any possible thought that it is Celiac, you're going to want to have the testing done before you remove gluten. The test doesn't work if they aren't eating gluten. Also, this is a strict, sometimes challenging lifestyle and you want to have as much motivation to stay on it as possible.

To answer your questions - when we take treats to school, I always do gluten free for the whole class. There are many options - gluten free crispy rice treats (that would be Rice Krispie treats made with gluten free crispy rice cereal, not mainstream Rice Krispies), Betty Crocker fruit snacks (they even have Valentine shaped ones out now), gluten-free cookies or brownies made by you or even cupcakes, ice cream or popsicles if there is a freezer available, Fruitabu fruit tape (made with real fruit and cool for kids because it's a long wound up thingie).

In my opinion, 3 is too young to really be able to understand. The teacher is going to have to take care of her at preschool. Eventually she'll be able to put it all together, but there are lots of adults who don't get it! And it is made even harder if you give her "look alike" products. Her crispy rice treat looks just like Johnny's Rice Krispie treat. :(

Squirrelflight Rookie
Squirrelflight
Posted

I agree that I would have the bloodtest done before trying the diet. Also, yes, I would have both children tested and try the diet with both. I have mild asthma with gluten. Again it is mild but I notice it and I do carry an inhaler with me as well.

sunnybabi1986 Contributor
sunnybabi1986
Posted

Here is a super good recipe for gluten free cookies using "normal" inexpensive ingredients...you could send some with her to share with her class.

Peanut Butter cookies:

1 cup creamy peanut butter (we use JIF or Skippy)

1 egg

1 cup sugar

1 tsp vanilla

Mix well, roll into a ball and flatten with a fork

Bake at 350 degrees for 10 minutes

laurie9141 Rookie
laurie9141
Posted
  • Author

great answers but triggers another question.. I have to wait a few to maybe more to see my ped if not an emergency... Unless I lie, lol... been having these behavior problems for too long.. ped pulmonologist just threw the now 2 yr old, on meds and said get used to it.. I dont agree. it isnt that often that he wheezes and I dnot want him on steroids to cover anyone's butt. I notice a diff on the 3 yr old when we have little or no gluten... how much is too much? and I wanna start SOON. SO HOW LONG to be off of gluten will screw up tests? I wonder if that's why mine was neg? I had to be fasting for the rest of the tests drawn... so maybe I didnt have gluten in my system? If the ped isnt seeing this first, and the pulmonologist, nor the allergist/surgeon who removed both of their tonsils, WHO AM I GONNA GET TO SEE IT?... AND finally, thank you all for helping me understand... laurie

climbmtwhitney Apprentice
climbmtwhitney
Posted

great answers but triggers another question.. I have to wait a few to maybe more to see my ped if not an emergency... Unless I lie, lol... been having these behavior problems for too long.. ped pulmonologist just threw the now 2 yr old, on meds and said get used to it.. I dont agree. it isnt that often that he wheezes and I dnot want him on steroids to cover anyone's butt. I notice a diff on the 3 yr old when we have little or no gluten... how much is too much? and I wanna start SOON. SO HOW LONG to be off of gluten will screw up tests? I wonder if that's why mine was neg? I had to be fasting for the rest of the tests drawn... so maybe I didnt have gluten in my system? If the ped isnt seeing this first, and the pulmonologist, nor the allergist/surgeon who removed both of their tonsils, WHO AM I GONNA GET TO SEE IT?... AND finally, thank you all for helping me understand... laurie

Laurie,

Only a few days without gluten shouldn't mess up the tests. I didn't realize you hadn't tested your kids yet. You need to....while ON gluten. The gluten-free lifestyle requires 100% dedication. It is life changing for the ENTIRE family. You're going to need ammunition to stick to it. IF gluten is the problem and IF the kids go gluten free before the tests, then you will notice your kids feeling better right away. Then you will have to put them back on gluten for the tests and knowingly "poison" them. In addition, when gluten is the culprit and you remove it, most people's bodies become more sensitive when they do consume it. So, a gluten challenge becomes even more difficult. And, believe me, you will want a definitive answer. You will want full testing. It may not be Celiac. It may be gluten intolerance. It may be a wheat allergy. Or something else entirely.

I know it's really difficult when you think you have the answer and just want to get going. Been there. But it will be worth it to do it right. Hang in there and get the testing.

Jillian

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Squirrelflight Rookie
Squirrelflight
Posted

great answers but triggers another question.. I have to wait a few to maybe more to see my ped if not an emergency... Unless I lie, lol... been having these behavior problems for too long.. ped pulmonologist just threw the now 2 yr old, on meds and said get used to it.. I dont agree. it isnt that often that he wheezes and I dnot want him on steroids to cover anyone's butt. I notice a diff on the 3 yr old when we have little or no gluten... how much is too much? and I wanna start SOON. SO HOW LONG to be off of gluten will screw up tests? I wonder if that's why mine was neg? I had to be fasting for the rest of the tests drawn... so maybe I didnt have gluten in my system? If the ped isnt seeing this first, and the pulmonologist, nor the allergist/surgeon who removed both of their tonsils, WHO AM I GONNA GET TO SEE IT?... AND finally, thank you all for helping me understand... laurie

That's a tough situation and if it were an adult I'd say just do the diet but the fact is children are rarely in full control of their environment. Without an official diagnosis they will not have a clear 'right' to a gluten free diet when at school, etc. That is why I feel the dx is important for children.

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

You might try calling your ped's office and requesting the Celiac blood test. You might luck out and have them be cooperative. Try firm but kind. :) Then you wouldn't have to wait.

mamaw Community Regular
mamaw
Posted

One should be on gluten for at least three months for accurate testing... Some people notice & feel better in a few days without gluten so putting it on the spin-- the other side of the coin. No gluten for several days can alter the test. I'm a seasoned celiac so that is my thought.

There are cookies & cakes , pretzels, candy that we take for our kids at school. I even match the lunch for the day with gluten-free subs. It does require time & planning. I can honestly say our kids have never felt deprived or left out of anything....they even go to CHuckie CHeese for other kids birthday parties. We just take a gluten-free pizza for them. They get to do what all the other kids do....

Stay postive - it does have its rewards.....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,112
    • Most Online (within 30 mins)
      7,748
    Donna J G
    Newest Member
    Donna J G
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • jenniber
      Celiac support is hard to find

      By jenniber · Posted

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      need help understanding testing result for Naked Nutrition Creatine please

      By RMJ · Posted

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.