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Celiac Disease And Other Illnesses


twe0708

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twe0708 Community Regular

What major health issues have you been diagnosed with since being diagnosed with Celiac Disease?


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Lgood22573 Rookie

Hashimoto's disease (autoimmune thyroiditis) was my first, Celiac my second.

bluebonnet Explorer

hypothyroid first, celiac years later. :(

MamaMeagan Apprentice

Well I have not been officialy diagnosed. I had a stroke and a positive ANA test, but nothing found.

tarnalberry Community Regular

Since celiac?

Fibromyalgia/restless leg (and it wasn't just diagnosed after I went gluten free, it started after that).

Everything else - asthma, vulvar vestibulitis, chronic migraines, hypermobility - was before celiac, some long enough before that I am certain they are not related (and I'm actually sure that none of the others are related - for me - because the gluten free diet didn't change them in any way.

Reba32 Rookie

since celiac diagnosis, I've also been told I'm vitimin D deficient and have high cholesterol. Both easily manageable with diet and supplements. I'm quite certain the cholesterol was elevated because of the gluten challenge and will go back down to normal levels the longer I'm gluten free.

sandsurfgirl Collaborator

Hypothyroism

Asthma

Chronic sinusitis

Then celiac. Hoping the others will get better or go away now that I'm gluten free.


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jerseyangel Proficient

Microscopic colitis, endometriosis, adenomyosis, hypertension, TMJ, chronic allergic rhinitis.

GG-GFree Newbie

I have been healthy my entire life and started having stomach pains this August (2009). I went to my Primary care doctor who thought maybe it was gastritis and prescribed me protonix. But the stomach ache didnt clear up so my Doc sent me to a GI who tested for celiac disease. Blood work came back postive, so an endoscopy was done which appeared normal but my biopsies came back postive for Celiac Disease [/b]and Eosinophilic Esophagits[/b]. This December I also developed Raynauds[/b]-which is a symptom associated with autoimmune disorders-when I am really cold my toes turn pale and go numb untill I warm them up. I'm only 26 and went from having nothing wrong with me to having three chronic conditons. My doctors have told me that often once someone develops an autoimune disorder they are more prone to develop another. So, know I am nervous that I might develop another condition in the future. While this is frustrating I do find myself fortunate that for the most part I actually feel pretty good, and am glad that my conditoins can be controlled though diet changes so I don't need to take long term medications.

Chrisco Apprentice

Endometriosis

Adenomyosis

Chronic Gastritis

Restless Leg Syndrome

Gall Bladder Disease (Had Gallbladder Removed)

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      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
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      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
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