Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease And Other Illnesses


twe0708

Recommended Posts

twe0708 Community Regular

What major health issues have you been diagnosed with since being diagnosed with Celiac Disease?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lgood22573 Rookie

Hashimoto's disease (autoimmune thyroiditis) was my first, Celiac my second.

bluebonnet Explorer

hypothyroid first, celiac years later. :(

MamaMeagan Apprentice

Well I have not been officialy diagnosed. I had a stroke and a positive ANA test, but nothing found.

tarnalberry Community Regular

Since celiac?

Fibromyalgia/restless leg (and it wasn't just diagnosed after I went gluten free, it started after that).

Everything else - asthma, vulvar vestibulitis, chronic migraines, hypermobility - was before celiac, some long enough before that I am certain they are not related (and I'm actually sure that none of the others are related - for me - because the gluten free diet didn't change them in any way.

Reba32 Rookie

since celiac diagnosis, I've also been told I'm vitimin D deficient and have high cholesterol. Both easily manageable with diet and supplements. I'm quite certain the cholesterol was elevated because of the gluten challenge and will go back down to normal levels the longer I'm gluten free.

sandsurfgirl Collaborator

Hypothyroism

Asthma

Chronic sinusitis

Then celiac. Hoping the others will get better or go away now that I'm gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Microscopic colitis, endometriosis, adenomyosis, hypertension, TMJ, chronic allergic rhinitis.

GG-GFree Newbie

I have been healthy my entire life and started having stomach pains this August (2009). I went to my Primary care doctor who thought maybe it was gastritis and prescribed me protonix. But the stomach ache didnt clear up so my Doc sent me to a GI who tested for celiac disease. Blood work came back postive, so an endoscopy was done which appeared normal but my biopsies came back postive for Celiac Disease [/b]and Eosinophilic Esophagits[/b]. This December I also developed Raynauds[/b]-which is a symptom associated with autoimmune disorders-when I am really cold my toes turn pale and go numb untill I warm them up. I'm only 26 and went from having nothing wrong with me to having three chronic conditons. My doctors have told me that often once someone develops an autoimune disorder they are more prone to develop another. So, know I am nervous that I might develop another condition in the future. While this is frustrating I do find myself fortunate that for the most part I actually feel pretty good, and am glad that my conditoins can be controlled though diet changes so I don't need to take long term medications.

Chrisco Apprentice

Endometriosis

Adenomyosis

Chronic Gastritis

Restless Leg Syndrome

Gall Bladder Disease (Had Gallbladder Removed)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Product Labeling Regulations
      2

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    2. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      nothing has changed

    3. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is it gluten?

    4. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    Bea71
    Newest Member
    Bea71
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.