Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Does Not Mean Gluten Free? Did You Know...


meatslayer

Recommended Posts

meatslayer Newbie

To be labeled Gluten free the FDA standard is less than 20 ppm. At that level, those with a gluten allergy will not have a reaction. However it becomes a little grayer when you are talking about Celiac. For this reason, the FDA (USA) and the CFIA (Canada) are currently reviewing the standard.

You guys know that? Anyone have any more info? 20ppm is a very small amount (tiny) To most here I would think that a Gluten free label means Gluten free, but not so. I wonder at what PPM it effects a Celiac? Anyone know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

You guys know that? Anyone have any more info? 20ppm is a very small amount (tiny) To most here I would think that a Gluten free label means Gluten free, but not so. I wonder at what PPM it effects a Celiac? Anyone know?

Meatslayer,

It is different for everyone. Everyone's body reacts differently. That is why there are so many different symptoms. We don't all have the same symptoms either.

Jackay

meatslayer Newbie

Meatslayer,

It is different for everyone. Everyone's body reacts differently. That is why there are so many different symptoms. We don't all have the same symptoms either.

Jackay

Very true indeed, thanks for pointing that out.

sandsurfgirl Collaborator

Yet another complication to the mystery that is celiac. 20ppm is really really really tiny, but... you never know. Celiac can present with so many symptoms, so you eat that stuff with 20ppm and you get a sinus infection. Is it due to celiac or just a sinus infection? I was told by a doc who is pretty knowledgable that it's very hard to truly be gluten free because it's just everywhere.

Jestgar Rising Star

Yet another complication to the mystery that is celiac. 20ppm is really really really tiny,

unless you eat 40 of them.....

DougE Rookie

Another complication for us celiacs with no appreciable symptoms. How do we know when we ate too much gluten?

tarnalberry Community Regular

Most studies suggest that 20ppm in moderate amounts of most foods won't cause damage to a celiac's intestines (or elevate antibody levels detectably).

Nothing, medically speaking, is true for everyone, of course.

And *some* testable (0 is NOT testable) limit has to be set if there is going to be a industrial use for the term.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

At this point the U.S. has no official gluten-free standard, although 20 ppm is definitely being considered. 20 ppm probably has little to no apparent effect on most people with celiac, but some definitely react. As for having zero percent gluten, no test can determine that, although it can go a good bit lower than 20.

richard

psawyer Proficient

And *some* testable (0 is NOT testable) limit has to be set if there is going to be a industrial use for the term.

What Tiffany said, as usual, is right on the money. :)

kareng Grand Master

unless you eat 40 of them.....

I understand what Tiffany said. There has to be a number, something to measure. We then have to be sure we don't eat "40" like Jess said. We will have to be vigilant to what a serving is per the packaging, not what we would usually eat. I know that what I think is a serving of cereal in my bowl is usually closer to 2. I think this problem has come up with transfat as less then 1 unit of fat per serving is considered 0. But everyone usually eats 4 "servings" thus getting 2 units of fat & it isn't really transfat free. Maybe I'll just eat Puppy's gluten-free dog food - it looks like a really balanced diet.

  • 2 weeks later...
bittykitty Rookie

I understand what Tiffany said. There has to be a number, something to measure. We then have to be sure we don't eat "40" like Jess said. We will have to be vigilant to what a serving is per the packaging, not what we would usually eat. I know that what I think is a serving of cereal in my bowl is usually closer to 2. I think this problem has come up with transfat as less then 1 unit of fat per serving is considered 0. But everyone usually eats 4 "servings" thus getting 2 units of fat & it isn't really transfat free. Maybe I'll just eat Puppy's gluten-free dog food - it looks like a really balanced diet.

Sometimes this is why it's wise to just avoid processed foods, no matter what the label says.I've reacted to a lot of stuff that proudly screamed"gluten free"on the package.You really don't know who handled it,where it was manufactured, and until federal guidelines become a little stricter, it's easy for companies to cut corners and still be in that gray area.Yeah, we all like convenience foods(hell in America it is a way of life),but you have to make the choice as to whether or not taking the chance is worth it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.