Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does The Reaction Get Worse Over Time


Googles

Recommended Posts

Googles Community Regular

I got glutened about two weeks ago now. When I first was diagnosed the gluten reaction would last 2-3 days. Now it seems to be lasting over a week. Is this normal? I had such bad depression a week later. It was just like the depression I got right after I was glutened in the past. I was really careful so I know I wasn't reglutened. Does it normally get longer over time? If it does this is just going to be even more awful.

Also do people drink soda/pop from dispensing machines? I'm pretty sure this is how I got glutened. I don't know if it was the pop or the glass or what. Can plastic have gluten in it? Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Glutenator Contributor

I have definitely found the reaction gets worse with time. When I get glutinated now, the symptoms can be much more severe and last longer. Bummer! Though I haven't had a problem with pop machines, so maybe look for another source? Or if you are worried, consider wiping the can with alcohol (or hand sanitizer if you have it) and rinsing before having the drink.

Googles Community Regular

Thanks for the info. It wasn't a pop machine that dispenses cans, it was a fountain drink dispenser. (couldn't think of the better name last time I posted.)

Ahorsesoul Enthusiast

If the machine had a soda that contained gluten running in it, it could contaminate your drink. The glass, especially if it was plastic could be contaminated from being in contact with something with gluten. Was the pop you were drinking gluten free? I know some orange and root beers are not gluten free. I'd get sick if glutened root beer had been just dispensed right before I filled my glass.

Before going gluten free I felt terrible all the time with spikes of horrible gluten poisoning. I never felt good enough to know when it really ended. Being gluten free I feel better and I know how well I can feel. I think when I am glutened now, it is worse because I compare it to how well I felt gluten free. So yes, if you get glutened you will feel awful. Worse? Probably.

Just a thought. Corn syrup also could be making you sick. Have you kept a food diary?

dilettantesteph Collaborator

At first it seemed like my reactions were getting worse as I seemed to get sensitive to lower levels of gluten. Now, after 2.5 years, my reactions are getting much better. I'm not sure how much it has to do with my figuring out how to eat, but I get over the worst of my symptoms in a day now. It is so much better than lying in bed wishing I could die for a week!

  • 7 months later...
missingtortillas Rookie

This is an older Topic but I have not learned how to use this forum just yet. I've noticed that I have reactions from Dr. Pepper when it's from the fountain machine at Circle K and from Barro's Pizza (I didn't there but my friends picked me up a Dr. Pepper at lunch). My reactions consist of my tummy painfully expanding and the feeling of not being able to take a deep breath. The feeling of not being able to breath right while having a conversation just like when I've had gluten.

They have the one size for 79cents but the lids are so hard to get out that you end up grabbing 5 at a time just to pull one lid out. I glance over at the hot dog machine and only imagine who got a hot dog first or who was eating chips etc. then touched all the lids in the front including the one I'm about to pick. I try to pull out 3, discard, then pull out 3 more and pick the center one. I don't think it works though because they all look like they've been smudged on the side from fingers. YUCK!

I just don't want it to be the Dr. Pepper itself because I'm addicted big time! Anyone have this problem?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.