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Does The Reaction Get Worse Over Time

Googles

By Googles
in Coping with Celiac Disease

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Googles Community Regular
Googles
Posted

I got glutened about two weeks ago now. When I first was diagnosed the gluten reaction would last 2-3 days. Now it seems to be lasting over a week. Is this normal? I had such bad depression a week later. It was just like the depression I got right after I was glutened in the past. I was really careful so I know I wasn't reglutened. Does it normally get longer over time? If it does this is just going to be even more awful.

Also do people drink soda/pop from dispensing machines? I'm pretty sure this is how I got glutened. I don't know if it was the pop or the glass or what. Can plastic have gluten in it? Thanks.

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The Glutenator Contributor
The Glutenator
Posted

I have definitely found the reaction gets worse with time. When I get glutinated now, the symptoms can be much more severe and last longer. Bummer! Though I haven't had a problem with pop machines, so maybe look for another source? Or if you are worried, consider wiping the can with alcohol (or hand sanitizer if you have it) and rinsing before having the drink.

Googles Community Regular
Googles
Posted
  • Author

Thanks for the info. It wasn't a pop machine that dispenses cans, it was a fountain drink dispenser. (couldn't think of the better name last time I posted.)

Ahorsesoul Enthusiast
Ahorsesoul
Posted

If the machine had a soda that contained gluten running in it, it could contaminate your drink. The glass, especially if it was plastic could be contaminated from being in contact with something with gluten. Was the pop you were drinking gluten free? I know some orange and root beers are not gluten free. I'd get sick if glutened root beer had been just dispensed right before I filled my glass.

Before going gluten free I felt terrible all the time with spikes of horrible gluten poisoning. I never felt good enough to know when it really ended. Being gluten free I feel better and I know how well I can feel. I think when I am glutened now, it is worse because I compare it to how well I felt gluten free. So yes, if you get glutened you will feel awful. Worse? Probably.

Just a thought. Corn syrup also could be making you sick. Have you kept a food diary?

dilettantesteph Collaborator
dilettantesteph
Posted

At first it seemed like my reactions were getting worse as I seemed to get sensitive to lower levels of gluten. Now, after 2.5 years, my reactions are getting much better. I'm not sure how much it has to do with my figuring out how to eat, but I get over the worst of my symptoms in a day now. It is so much better than lying in bed wishing I could die for a week!

  • 7 months later...
missingtortillas Rookie
missingtortillas
Posted

This is an older Topic but I have not learned how to use this forum just yet. I've noticed that I have reactions from Dr. Pepper when it's from the fountain machine at Circle K and from Barro's Pizza (I didn't there but my friends picked me up a Dr. Pepper at lunch). My reactions consist of my tummy painfully expanding and the feeling of not being able to take a deep breath. The feeling of not being able to breath right while having a conversation just like when I've had gluten.

They have the one size for 79cents but the lids are so hard to get out that you end up grabbing 5 at a time just to pull one lid out. I glance over at the hot dog machine and only imagine who got a hot dog first or who was eating chips etc. then touched all the lids in the front including the one I'm about to pick. I try to pull out 3, discard, then pull out 3 more and pick the center one. I don't think it works though because they all look like they've been smudged on the side from fingers. YUCK!

I just don't want it to be the Dr. Pepper itself because I'm addicted big time! Anyone have this problem?

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