Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Sure What To Do.


prisskitty

Recommended Posts

prisskitty Rookie

A few things that have made me think I have celiac disease or gluten sensitivity are this:

- Consistently feeling ill to my stomach when I don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prisskitty Rookie

Also, I am coming off of the gluten free diet for the next 40 days so I can get tested via blood.

I am beginning to think I may just have sensitivity to tomatoes, peppers, and some spices as even gluten-free dieting hasn't had any improvement on bloating and sore-stomach.

I do have a hietal hernia.

Korwyn Explorer

Nightshade intolerance is quite commonly found in conjunction with celiac disease and/or gluten intolerance. It is possible you are dealing with both. And you are correct, they would not see evidence of celiac disease unless they actually went through the small intestine and sampled the biopsies there.

prisskitty Rookie

Nightshade intolerance is quite commonly found in conjunction with celiac disease and/or gluten intolerance. It is possible you are dealing with both. And you are correct, they would not see evidence of celiac disease unless they actually went through the small intestine and sampled the biopsies there.

That's quite heartbreaking to know that there is a such thing as Nightshade intolerance.

So, what do you eat if you can't eat tomatoes, potatoes, peppers? Those make wonderful gluten-free meals I suppose. I had no idea potatoes were in that family. Thanks for that info.

WheatChef Apprentice

If you can be completely sure of being gluten-free for an extended amount of time (no eating of any processed foods unless you've contacted the manufacturer ahead of time and made sure there are no gluten products in the food and that it is also not processed on any equipment shared with gluten containing products/flavors, no medicines or vitamins without doing the same with those manufacturers, as well as no use of plastic equipment in your kitchen that has come into contact with gluten products in the past) then going on a gluten binge at the end of your gluten-free trial you would most likely experience symptoms. This can be very useful for determining a gluten intolerance.

Jestgar Rising Star

Nightshade intolerance is quite commonly found in conjunction with celiac disease and/or gluten intolerance. It is possible you are dealing with both. And you are correct, they would not see evidence of celiac disease unless they actually went through the small intestine and sampled the biopsies there.

I would modify this to say that other intolerances are commonly associated with celiac disease. You may very well have a nightshade intolerance, but consider everything you're eating before making any assumptions.

Nightshades make up the bulk of my diet, but even a little soy protein takes me out.....

Korwyn Explorer

That's quite heartbreaking to know that there is a such thing as Nightshade intolerance.

So, what do you eat if you can't eat tomatoes, potatoes, peppers? Those make wonderful gluten-free meals I suppose. I had no idea potatoes were in that family. Thanks for that info.

Sweet potatoes are good. Also, there are five families of nightshades. Most (anecdotally) people seem to only react to one or at most two of the families. I have in the last year experienced enough healing that I can tolerates tomatoes now to some degrees, and potatoes (if I ate starch which I rarely do). Peppers (jalapeno, chile, etc), paprika, and anything with capsaicin in it are still a big no-no for me.

Many food intolerance issues can heal up given sufficient time away from the food. However many will not. And the time off varies greatly from one individual to another.

And Jestgar is right. I should have pointed that out that many intolerances are common. I'm also highly intolerant of soy. The smallest amount triggers neurological and central nervous system problems for me.

I would seriously consider doing a strict elimination diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prisskitty Rookie

I actually did do a strict elimination diet for 3 weeks. I accidentally ate gluten once! I put it in my mouth one bite then realized it had beer in it as flavoring. After that I didn't eat anything I didn't buy.

Immediately, about thirty minutes later, my stomach was killing me. I went back on the gluten last night and we ate at a Mexican resteraunt. I avoided any tomatoes including the pico but now my stomach is killing me again. Never been that uncomfortable after eating food. I also got an intense headache. The same thing happened when I did my first trial. I was off of gluten for a week then went to eat a pizza because I said I wasn't going to be gluten-free until I got tested and I felt horrible. It is scaring me away from the gluten foods and I am not even 100% sure I have it.

But, when I was gluten-free, I was soooo hungry all the time. If I can find satisfying meals gluten-free I will just stick with it. My current healthcare provider doesn't know how to properly send out for a blood test so come end of July I will order the Canadian blood test, go back on gluten, and see if I have any genetic markers/antibodies.

My family history is:

IBS

Diabetes II

Edema

Ulcers

Hernias

Depression

Bipolar

Anemia

Cardiac Problems

Stomach Problems that I can't even begin to list.

My mom only has type II diabetes. I never hear her complain about her stomach hurting but she does blame her 'bowel' problems on diabetes medication which I think she needs to go gluten-free (it is a good diet for people who have type II diabetes if you ask me.)

(Sorry for the book, I am a blogger xD)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      My journey is it gluten or fiber?

    2. - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      12

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,361
    • Most Online (within 30 mins)
      7,748

    Xpedit73
    Newest Member
    Xpedit73
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference.  Thiamine HCl uses special thiamine transporters to get inside cells.  I take it myself.   Tryptophan will help heal the intestines.  Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner.  I take mine with magnesium before bedtime.
    • Known1
      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago.  As a 51 year old male, I now take a couple of different gluten free vitamins.  I have not noticed any reaction to either of these items.  Both were purchased from Amazon. 1.  Nature Made Multivitamin For Him with No Iron 2.  Gade Nutrition Organic Quercetin with Bromelain Vitamin C and Zinc Between those two, I am ingesting 2000 IU of vitamin D per day. Best of luck, Known1
    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.