Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain Please Help!


MrsBaker

Recommended Posts

MrsBaker Newbie

Hi,

I started having joint pain seven months ago and it was all over my body ( hands,feet, ankles,, wrists, shoulders, neck, back, and other places) and couldn't barely even walk for a couple of months. I went to the doctors where I was diagnosed with hyperthyroidism and hashimoto. After a while the pain did not get any better and I went to the joint specialist and he diagnosed me with celiac disease about three weeks ago. I have been eating completely gluten free but still have flare ups. I also have stopped eating nightshades because they would make it worse. But I noticed that have eating dairy, my joints would get worse throughout the day. Is this common to have problems with dairy? Also, is there any natural medications that I can take to relieve my pain and does anyone have some recipe ideas that are gluten, dairy, and nightshade free?

Thanks,

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Hi,

Welcome to the board. Read as much as you can here and ask any questions you need to.

It would be a good idea to avoid dairy for a bit. Let yourself heal for a while, especially since you are noticing problems. Some of us have an intolerance to casein, milk protein, but many are able to add dairy back in after we heal. Some find soy to be a problem also. Eliminating that helped me a great deal. It might help you to try and avoid it for a bit in addition to the gluten and dairy.

It will get better in time. I used hot showers or bathtub soaks as well as compresses on my hands. For me asprin worked as well as anything for the pain. I was on a few different arthritis meds prediagnosis but never got much relief but after a couple of months on the diet my joints felt better than in years and within six months I had pretty much full use, with no pain. I hope your pain resolves well also and soon.

You may want to check out the recipe section of the board, there is a lot there and you can ask how to make some of your favorite things gluten free.

skigirlchar Newbie

episom salt baths sometime help me for the joint pain

not too many pain meds work - i can't take aspirin or ibuprofen. i avoid acetaminophen except for dire emergencies - especially since it doesn't really work.

i tend to just nap when i can and try to sleep it off - though the falling asleep part tends to be a problem (i keep piles of partly read books next to the bed and try to get lost in them til i nod off.)

MrsBaker Newbie

Thank you so much!! Your post was big help to me and I will be taking out dairy and soy out of my diet because I rather feel better then eat those things lol Would it be smart to get a test to see if I have dairy allergies by any chance? Its weird because before this year, I ate everything and one day I just woke up and had problems with food. But this forum is great and glad to speak with people who are going through the same thing!!

Jessica

MrsBaker Newbie

I have noticed that pain meds do not work with me, which sucks but thats ok!! I will defiantly try the salt!! thank you

Jessica

one more mile Contributor

ask your doctor about niaspan er 10000 for the pain. I use it occasional when i have a fibro day. The over the counter stuff never really touches it.

weishy Newbie

ask your doctor about niaspan er 10000 for the pain. I use it occasional when i have a fibro day. The over the counter stuff never really touches it.

i'd probably make sure you're not a 'hypersensitive celiac.' (i'd ask a celiac specialist for the details and not a regular doc who may or may not know) but my 3 kids seem to be hypersensitive... that is, because gluten is a sticky protein, if they touch objects (i.e. toys) that were handled by individuals eating gluten, and then eat their snacks without washing their hands, they end up eating the trace amts of gluten which over time is enough to give them joint pain and leg pain to the point they can't walk, along with other stomach pain symptoms. good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star

Hi,

I started having joint pain seven months ago and it was all over my body ( hands,feet, ankles,, wrists, shoulders, neck, back, and other places) and couldn't barely even walk for a couple of months. I went to the doctors where I was diagnosed with hyperthyroidism and hashimoto. After a while the pain did not get any better and I went to the joint specialist and he diagnosed me with celiac disease about three weeks ago. I have been eating completely gluten free but still have flare ups. I also have stopped eating nightshades because they would make it worse. But I noticed that have eating dairy, my joints would get worse throughout the day. Is this common to have problems with dairy? Also, is there any natural medications that I can take to relieve my pain and does anyone have some recipe ideas that are gluten, dairy, and nightshade free?

After 55 years of digestive issues, then figuring out I was celiac, then being relatively free of gluten on and off (but lots of slip-ups due to non-acceptance on my part), my symptoms became more varied, and not just limited to digestive reactions. After a 3 week binge of having some gluten here and there, one morning I woke up with hands/joints so sore I literally couldn't grasp a glass of water. That really woke me up more than the other things did. It took about 3 months of being strictly gluten-free for it to gradually go away. But it came on overnight, like I said. At the worst, I just put a lot of heat on my hands, occasionally took Advil, and slowly it went away. I also cannot eat nightshades at all, and I can't tolerate starches/potatoes. I was diagnosed as sensitive to casein, and went dairy free for a long time as I was going gluten free. After 6 or 8 months gluten-free, I tried dairy again and now find that I can handle LIMITED amounts of it. But I don't eat yogurt (which I love) any more, that bothered me. I really do and feel best on a diet of meats, fish, limited green veggies, very very limited fruit (I don't handle sugar well either). And I gave up on the gluten free baked goods, I didn't do well with all the various gluten-free flour items either, they really upset my entire system.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,921
    • Most Online (within 30 mins)
      7,748

    Serena Rodriguez
    Newest Member
    Serena Rodriguez
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.