Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Have Bad Reactions To Quinoa?


GlutenFreeManna

Recommended Posts

psawyer Proficient

You don't need to soak it for hours. There is a naturally occurring coating of saponin, which needs to be rinsed off. Some quinoa you can buy is already free of the saponin and can be used out of the package. Bob's Red Mill is one of those. If you leave the saponin on, the stuff will have a bitter taste, and may cause a reaction. Saponin is a natural protection against insects and herbivores.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Saponin is a natural protection against insects and herbivores.

Saponin must be the lectin content in quinoa which does me in. I don't think you can soak it off???? Well, maybe a little bit, like kidney beans, but it doesn't all come off for those who are extremely sensitive to it.

  • 3 weeks later...
gfquestion Newbie

I am on a gluten-free diet for almost 5 months and still have problems with many foods, including grains in general. I have pain and bloating when I eat a bowl of grain which may feel almost as a reaction for gluten. I discovered I can eat only a small amount of grain (the safe ones of course) because of the high content of fiber. I decided to wait until my gut heals before. I just eat safe veggies and proteins (no spices etc) and I feel much better now.

Maybe you should wait with grains until your gut heals? B)

I get the same thing with grains, including corn. I just yesterday realized that my problem is with all starches though, including beans and rice. Is this the same for you? I am thinking I will need to limit my carb consumption to only monosaccharides--- the kind we can easily digest.

rdunbar Explorer

I phased quinoa out completely 3 months ago, and my guts felt better immediatly. I don't think it was causing symtoms other than hurting my tummy.I found out that is a gut irritant and can damage the villi of your intestine, although it does this in a very different manner than gluten which is autoimmune, not ideal when you are trying to heal up your gut.

It could be that you are also reacting to gluten cross contamination present in the corn in the pasta too. Corn on the cob fresh may be fine, but processed corn almost always is contaminated with gluten; they use the same machinery to harvest it , and it's intermingled in industrial storage and shipping, ect...

psawyer Proficient

Corn on the cob fresh may be fine, but processed corn almost always is contaminated with gluten; they use the same machinery to harvest it , and it's intermingled in industrial storage and shipping, ect...

Can you provide a source for this allegation, please. Oats and wheat are similar, and often have overlap, but corn? I've been on the gluten-free diet for more than ten years, and this is a new one to me.

  • 2 weeks later...
Marz Enthusiast

It appears that Quinoa doesn't agree with me either :( I've always rinsed it well - scrubbed the seeds between my fingers and rinsed until clear, as well as rinsing after cooking. It was pure quinoa so no cc with wheat, and there were definitely no wheat-like particles amongst the quinoa seeds.

Was fine the first week of eating it, had a break of a week or two from eating it, and now every time I eat it I get severe runs the next day. It's almost identical to my chicken/egg intolerance, except much more severe. I can't see anything else I can blame it on, so unfortunately looks like I need to find a different cereal for breakfast... again...

The reaction was different to a glutening, so I don't think the reaction has anything to do with celiac, it's just an intolerance of some sort, maybe trace amounts of that saponin substance my body is reacting to. Oh well...

Marilyn R Community Regular

I had a horrific reaction to quinoa purchased in bulk from a health food store a month after going gluten-free. I rinsed it well and steamed it in a rice steamer. Had it for dinner and made a salad with the leftovers for lunch the next day. I loved it but my body HATED it and beat me up severely for a week. (CC could have been a factor, but not with that severe of a reaction.) It will take a long, long time before I'm ready to try it again if it is an ingredient in something, and I'll probably never try it in it's whole form again. I've been fine with sesasme seed anything, so I don't think seed is the problem. And coconut has been fine, which is in the grass family. (Ok with lemongrass too.) I think it's a plant protein issue, but don't have anything to scientifically substantiate it, just wondering out loud, so to speak. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I had a horrific reaction to quinoa purchased in bulk from a health food store a month after going gluten-free. I rinsed it well and steamed it in a rice steamer. Had it for dinner and made a salad with the leftovers for lunch the next day. I loved it but my body HATED it and beat me up severely for a week. (CC could have been a factor, but not with that severe of a reaction.) It will take a long, long time before I'm ready to try it again if it is an ingredient in something, and I'll probably never try it in it's whole form again. I've been fine with sesasme seed anything, so I don't think seed is the problem. And coconut has been fine, which is in the grass family. (Ok with lemongrass too.) I think it's a plant protein issue, but don't have anything to scientifically substantiate it, just wondering out loud, so to speak. :unsure:

Quinoa is high in lectins, a plant protein (gliadin is a lectin).

WheatChef Apprentice

Quinoa was one of the grains tested in that study that showed millet was frequently unsafe. None of the quinoa forms registered any gliadin. It's totally possible to have reactions to many other compounds besides gluten but quinoa does not have gluten. This is not to say that your particular source (especially anything out of a bulk bin!) is safe from cross contamination, it just means that quinoa by itself does not contain gliadin. It is so very far away from wheat on the taxonomical charts it might as well be an animal.

mushroom Proficient

Quinoa and millet both have a high lectin content (non gliadin) and can cause problems for folks sensitive to lectins.

jester Rookie

I haven't had my tests done yet, and this is probably going to sound ridiculous, but at this point I really hope I have celiac. The more I read (especially here) the more I see myself. Everything I read I'm jumping in my chair going YES! YES! That's me! Sad, isn't it?

I was looking up quinoa because I had it for the first time last night - felt crummy but I'd felt crummy all day. Then today I had a big bowl of leftover quinoa for lunch and within half an hour I had to lie down. I felt so horrible, weak, unfocused, like I had a bowling ball in my stomach and was going to vomit. I had to just lie in bed for an hour before I felt okay to get back up.

I've never had such an obvious reaction to anything before, and I'm hoping maybe it wasn't actually FROM the quinoa because I really, REALLY liked it, but it looks that way, doesn't it?

Marilyn R Community Regular

Quinoa was one of the grains tested in that study that showed millet was frequently unsafe. None of the quinoa forms registered any gliadin. It's totally possible to have reactions to many other compounds besides gluten but quinoa does not have gluten. This is not to say that your particular source (especially anything out of a bulk bin!) is safe from cross contamination, it just means that quinoa by itself does not contain gliadin. It is so very far away from wheat on the taxonomical charts it might as well be an animal.

Wheatcheaf, I appreciate your input, but know that my reaction from quinoa was not CC. The reaction was severe. I think the protein is a problem, and appreciate the positive responses from others.

Marilyn R Community Regular

Oops, meant to add this. Good luck Jester! If indeed your problem is with gluten, life will be so much better once you know what ails you...YAY! Life will be a little more complicated, but still SO much better.

  • 4 weeks later...
eatingganesh Newbie

Thank you Mari and RunnerMom for your replies. Yes, this reaction was worse than any glutening I have had. RunnerMom I will not be quick to try Amaranth, if that is the case. I have not tried chia flour yet, but I will remember it for later. I think I'm going to stick to mostly steamed veggies and safe meats for now. I guess I need to let my stomach heal more.

And thank you for posting the thread. I love quinoa and ate a whole bunch last night, didn't get any cramps or pain, but was alarmed to awake with diarrhea and see the quinoa floating about undigested.

I have always had pretty severe grass allergies, though... so I guess I'm not surprised, but darn - one more thing to avoid.

  • 1 year later...
astrologer50 Rookie

I tried chia seeds, just a teaspoon and washed it down with juiced carrots and got pain in my stomach which lasted for ages. I know they are a superfood and love to use. How do you desensitise your body. Has anyone else had a reaction to white chia seeds?? :(

I have had CRAZY bad reactions to quinoa! Worse than gluten: I get immediate stabbing pain in my stomache, sweaty with chills, 'D', etc. It's weird because I could eat it at first then all of a sudden, one day I had a violent reaction to it. I bought amaranth as a replacement and the same thing happened! After that I read online that both are in a similar class of grasses (I think -someone correct me if I am wrong b/c I looked a couple years ago). Anyway, I stay away from both now, which is a bummer b/c they are a nutritious alternative to wheat and lower glycemic index than rice flours. Now I have found Chia flour and Chia seeds and I use this instead. It's super healthy, higher in Omega 3s than flax seed, more digestable, high in fiber...all the stuff WE need. Check it out. :)

  • 9 months later...
kwylee Apprentice

As my system has become much more discerning over the past 2+ years of strict adherence to this way of eating, I have found that I cannot tolerate quinoa, among other non gluten/non dairy/non soy foods I used to eat with no problem before. I've come to realize it's just the way I am now. C'est la vie!

1desperateladysaved Proficient

I haven't had my tests done yet, and this is probably going to sound ridiculous, but at this point I really hope I have celiac. The more I read (especially here) the more I see myself. Everything I read I'm jumping in my chair going YES! YES! That's me! Sad, isn't it?

I was looking up quinoa because I had it for the first time last night - felt crummy but I'd felt crummy all day. Then today I had a big bowl of leftover quinoa for lunch and within half an hour I had to lie down. I felt so horrible, weak, unfocused, like I had a bowling ball in my stomach and was going to vomit. I had to just lie in bed for an hour before I felt okay to get back up.

I've never had such an obvious reaction to anything before, and I'm hoping maybe it wasn't actually FROM the quinoa because I really, REALLY liked it, but it looks that way, doesn't it?

You are not happy to have a gluten problem, but to know at last about the problem you do have! It can be helped and it is real!

shadowicewolf Proficient

I don't eat straight quinoa. I normally eat it in my pasta that is mixed with corn. I normally have that once a week or so and sometimes if i eat to much i get that feeling but its probably because i over ate.

Celiac Mindwarp Community Regular

I tried quinoa twice, and I might just as well have tipped it straight down the toilet, given how quickly it went through me. Shame, I loved the taste and texture.

Corn does sound the other possible culprit (or both, you gotta love celiac). I am just starting to admit I am going to have to eliminate it.

Happy healing x

Pegleg84 Collaborator

FYI: I started another thread (linked to this one) on this topic here:

Some new relevant info coming out there, I hope.

Something to do with lectin (which is also in milk, grains, nightshades, etc)

Would be good to have a comprehensive thread/guide to the quinoa challenged.

  • 1 year later...
Starving Amy Rookie

Late to the party but quinoa messes me up. Gluten is still up for debate, though I am pretty sure. Quinoa shuts my intestines down causing joint pains and back pains, though. I want to shrink down in size and beat quinoa's butt. I was reading the outer "husk" or whatever, the outer covering will perforate intentional walls the same way gluten does. I have no idea why it's as popular as it is. My reaction to quinoa is almost worse than gluten. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.